Cohort validation pack

ECHILD

Education and Child Health Insights from Linked Data

Generated 6 Oct 2026, 10:36 · ID 86

AI inferred

Last verified: 09/08/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	12 of 69 reviewable fields are cited to a source (17%) · 52 with no source yet · 5 searched — not published · 30 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	ECHILD	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage “Education and Child Health Insights from Linked Data (ECHILD)” Page: https://www.echild.ac.uk/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Education and Child Health Insights from Linked Data	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage “Education and Child Health Insights from Linked Data” Page: https://www.echild.ac.uk/	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	University College London (with NHS England, Department for Education, and ONS)	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage Page: https://www.echild.ac.uk/ UCL-led programme (UCL branding and @ucl_echild identity on the site) in partnership with NHS England, the Department for Education, and ONS.	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.echild.ac.uk/	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage Page: https://www.echild.ac.uk/	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	De-identified linked cohort of health, education and social care records for children in England (around 14.7 million pupils), built to answer questions about the relationship between children's education and health. Data are held in a secure research environment and used by accredited researchers for approved projects under the Five Safes framework.	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage “health, education and social care records for children in England to answer questions that help children live healthier lives” Page: https://www.echild.ac.uk/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	14,700,000	Field-cited	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Section: Study index “Sample size at recruitment: 14,700,000” Page: https://www.cataloguementalhealth.ac.uk/search	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	No source yet	No citation linked to this field yet.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2020	Field-cited	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Section: Study index “Start year: 2020” Page: https://www.cataloguementalhealth.ac.uk/search	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	No source yet	No citation linked to this field yet.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	No source yet	No citation linked to this field yet.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	No source yet	No citation linked to this field yet.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Whole-population administrative data resource, not a recruited cohort. For mental health study planning it supports feasibility questions spanning CAMHS pathways, school outcomes, and social care contact — coverage no recruited cohort can match.	No source yet	No citation linked to this field yet.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	1 — Anonymised / no consent	Not published	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Score 1: whole-population de-identified administrative linkage with no participant consent or contact route (anonymised/no consent tier of the consent decision tree).	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Not published	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Score 1: characterisation is routine administrative coding (health, education, social care), no research instruments.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	2 — Records + research data	Not published	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Score 1: linked administrative records only; auto-derived from has_linked_health_records.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search data_resource: whole-population administrative linkage, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: engagement status not publicly documented; default unknown pending an owner conversation.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	No source yet	No citation linked to this field yet.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	No source yet	No citation linked to this field yet.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	No source yet	No citation linked to this field yet.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	No source yet	No citation linked to this field yet.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	No source yet	No citation linked to this field yet.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	No source yet	No citation linked to this field yet.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	No source yet	No citation linked to this field yet.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	No source yet	No citation linked to this field yet.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	No source yet	No citation linked to this field yet.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	No source yet	No citation linked to this field yet.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	No source yet	No citation linked to this field yet.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	No source yet	No citation linked to this field yet.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	No source yet	No citation linked to this field yet.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	No source yet	No citation linked to this field yet.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	Yes	No source yet	No citation linked to this field yet.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	tre	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage “ECHILD is de-identified, held in a secure research environment, and only used by accredited researchers for approved projects that benefit the public.” Page: https://www.echild.ac.uk/ Mapped to tre: accredited-researcher access to a de-identified extract inside a secure research environment.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	ONS Secure Research Service	Field-cited	ECHILD — Official Website https://www.echild.ac.uk/ Section: Homepage “held in a secure research environment” Page: https://www.echild.ac.uk/ ECHILD extracts are accessed through the ONS Secure Research Service accreditation route; recorded pending confirmation of current environments.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	No source yet	No citation linked to this field yet.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	Administrative records from 1997 birth cohorts onward, refreshed with new extracts	No source yet	No citation linked to this field yet.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Page: https://www.cataloguementalhealth.ac.uk/search Depression-related hospital contact (including self-harm admissions) identifiable in HES-derived records; area-level N not published.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: ADHD Recommended Confirm this diagnosis area applies and estimated N if shown.	ADHD · Neurodevelopmental	Field-cited	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Page: https://www.cataloguementalhealth.ac.uk/search ADHD service contact and prescribing identifiable in linked hospital/community records; area-level N not published.	Response for Diagnosis area: ADHDAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Autism spectrum conditions Recommended Confirm this diagnosis area applies and estimated N if shown.	Autism spectrum conditions · Neurodevelopmental	Field-cited	Catalogue of Mental Health Measures — study index entry: ECHILD https://www.cataloguementalhealth.ac.uk/search Page: https://www.cataloguementalhealth.ac.uk/search Autism identifiable through linked health and SEND education records; area-level N not published.	Response for Diagnosis area: Autism spectrum conditionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood Disorders

Field-cited

Catalogue of Mental Health Measures — study index entry: ECHILD
https://www.cataloguementalhealth.ac.uk/search
Page: https://www.cataloguementalhealth.ac.uk/search
Depression-related hospital contact (including self-harm admissions) identifiable in HES-derived records; area-level N not published.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: ADHD

Recommended

Confirm this diagnosis area applies and estimated N if shown.

ADHD · Neurodevelopmental

Field-cited

Catalogue of Mental Health Measures — study index entry: ECHILD
https://www.cataloguementalhealth.ac.uk/search
Page: https://www.cataloguementalhealth.ac.uk/search
ADHD service contact and prescribing identifiable in linked hospital/community records; area-level N not published.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Autism spectrum conditions

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Autism spectrum conditions · Neurodevelopmental

Field-cited

Catalogue of Mental Health Measures — study index entry: ECHILD
https://www.cataloguementalhealth.ac.uk/search
Page: https://www.cataloguementalhealth.ac.uk/search
Autism identifiable through linked health and SEND education records; area-level N not published.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	ai_inferred	Internal	Internal catalogue field	—	—
Last verified Recommended	9 Aug 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Populated Aug 2026 from echild.ac.uk (purpose, linkage scope, access model, Five Safes) and the Catalogue of Mental Health Measures study index entry (design, N, coverage). Pending verification against the ECHILD cohort profile and user guide.	Internal	Internal catalogue field	—	—