Dashboard
Catalogue-level summary of cohort, site, data, consent, access, and coverage metadata.
83
Active cohorts
4.6m participants, excluding admin-only group 4 resources
74
Active sites
12 recorded regions
23
Coverage metrics
7 cohorts with within-cohort coverage rows
69
Permission rows
Specific academic, industry, recontact, linkage, and sharing permissions
Coverage Completeness
23 coverage metric rows seededCohorts With Coverage Metrics
7 · 8%
Metrics With Numerator And Denominator
14 · 61%
Metrics With Qualified Counts
15 · 65%
Data Type Flags
Questionnaire / interview54 · 65%
Biosamples45 · 54%
Genomic data41 · 49%
Linked health records39 · 47%
Physical measures34 · 41%
Cognitive testing29 · 35%
Omics17 · 20%
Imaging15 · 18%
Wearable / sensor8 · 10%
Digital phenotyping3 · 4%
Structured Modality Groups
Of 8 cohorts enriched with structured metadata so far (pilot) — 83 active cohorts in total
Biosamples8 · 100%
Questionnaires8 · 100%
Genomics7 · 88%
Linked Health Records5 · 63%
Physical Measures5 · 63%
Cognitive Measures4 · 50%
Imaging3 · 38%
Omics3 · 38%
Wearables2 · 25%
Structured Modality Kinds
Of 8 cohorts enriched with structured metadata so far (pilot) — 83 active cohorts in total
Biospecimen Type8 · 100%
Category Marker8 · 100%
Derived Genomic Data7 · 88%
Linked Record Type5 · 63%
Clinical Physical Measure4 · 50%
Questionnaire Instrument4 · 50%
Derived Omics Data3 · 38%
Imaging Modality3 · 38%
Structured Interview3 · 38%
Cognitive Assessment2 · 25%
Wearable Sensor Data2 · 25%
Access Pathways
Of 8 cohorts enriched with structured metadata so far (pilot) — 83 active cohorts in total
Managed access / DAC5 · 63%
Collaboration required4 · 50%
Direct application3 · 38%
Trusted Research Environment3 · 38%
Data custodian enquiry1 · 13%
Open access1 · 13%
Access Levels
Of 8 cohorts enriched with structured metadata so far (pilot) — 83 active cohorts in total
Custodian Review4 · 50%
Controlled3 · 38%
Secure Environment3 · 38%
Registered1 · 13%
Consent And Use Permissions
Of 8 cohorts enriched with structured metadata so far (pilot) — 83 active cohorts in total
Approach for trials permitted(Restricted)5 · 63%
Approach for trials permitted(Unknown)3 · 38%
Biosample research use(Permitted)8 · 100%
Collaboration required(Not Permitted)1 · 13%
Collaboration required(Restricted)3 · 38%
Data sharing permitted(Permitted)4 · 50%
Data sharing permitted(Restricted)4 · 50%
Ethics approval required(Permitted)1 · 13%
Ethics approval required(Restricted)4 · 50%
General research use(Restricted)1 · 13%
Health / medical / biomedical research use(Permitted)8 · 100%
Health record linkage permitted(Permitted)6 · 75%
Health record linkage permitted(Unknown)1 · 13%
Industry / commercial research considered(Permitted)5 · 63%
Industry / commercial research considered(Unknown)3 · 38%
International data sharing / transfer permitted(Permitted)2 · 25%
Participant recontact permitted(Permitted)8 · 100%
Section 251 / CAG support(Not Applicable)2 · 25%
Cohort Groups
Group 120 · 24%
Group 220 · 24%
Group 310 · 12%
Group 433 · 40%
Population Types
Patient supply concentrates in clinical and case-enriched cohorts; the rest are the data and feasibility layer.
Data resource32 · 39%
General population28 · 34%
Case-enriched11 · 13%
Clinical5 · 6%
Occupational4 · 5%
Network / umbrella3 · 4%
Site Regions
London15 · 20%
South East England11 · 15%
North West England9 · 12%
Yorkshire And The Humber9 · 12%
Scotland7 · 9%
South West England5 · 7%
West Midlands5 · 7%
East Of England4 · 5%
Wales4 · 5%
East Midlands3 · 4%
North East England1 · 1%
Northern Ireland1 · 1%
Consent Level
Level 13 · 4%
Level 229 · 35%
Level 350 · 60%
Level 41 · 1%
Characterisation Depth
Level 125 · 30%
Level 216 · 19%
Level 339 · 47%
Level 43 · 4%
Data Availability
Level 124 · 29%
Level 211 · 13%
Level 329 · 35%
Level 419 · 23%
New Metadata Provenance
17
Cohort Access Pathway
73
Cohort Consent Permission
23
Cohort Coverage Metric
125
Cohort Data Modality
22
Vocabulary Mapping
14
Coverage metrics with denominators