Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
All validation packs

Cohort validation pack

DELPHIC

Delirium and Population Health Informatics Cohort

Generated 6 Oct 2026, 10:36 · ID 84

AI inferred

Last verified: 17/04/2026

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

73

Total fields

33

Field-cited

0

Whole-record source only

7

AI-inferred, no source yet

28

Searched — not published

23

No value held

35

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

33 of 68 reviewable fields are cited to a source (49%) · 7 with no source yet · 28 searched — not published · 23 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

DELPHICField-cited
Response for Short name
Full name

Required

Delirium and Population Health Informatics CohortField-cited
Response for Full name
Managing organisation

Recommended

University College London (MRC Unit for Lifelong Health and Ageing)Field-cited
  • DPUK Data Portal — DELPHIC cohort directory entry

    https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

    Section: Institution and department rows

    “UCL”

    Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

Response for Managing organisation
Primary site

Recommended

NIHR University College London Hospitals Biomedical Research Centre (site #5)Field-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Hospital assessments

    “Participants admitted to UCH or RFH are seen every weekday.”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Primary site
Website URL

Recommended

https://www.linkage-camden.com/Field-cited
Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

Daniel DavisField-cited
Response for Contact name
Contact email

Recommended

daniel.davis@ucl.ac.ukField-cited
Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

Population-based observational cohort of older adults (aged ≥70) resident in the London Borough of Camden, recruited from general practice, hospital and memory-clinic pathways, with baseline and two-year community cognitive assessments (TICS-m and related instruments), proactive surveillance for delirium in community and hospital (including University College Hospital and Royal Free Hospital), and consent for linkage of primary and secondary care electronic health records (Camden Integrated Digital Record). Known locally as LINKAGE Camden.Field-cited
Response for Description
Total N

Required

1,510Field-cited
  • DPUK Data Portal — DELPHIC cohort directory entry

    https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

    Section: Cohort directory table

    “1510”

    Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

Response for Total N
Total N qualifier

Recommended

No value heldNot published
Response for Total N qualifier
Year established

Recommended

2017Field-cited
Response for Year established
Active cohort

Recommended

YesField-cited
Response for Active cohort
Ongoing recruitment

Recommended

YesField-cited
Response for Ongoing recruitment
Refreshed cohort

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: headline recontact response percentage not stated in the cited DPUK/HRA/protocol excerpts.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: single retention percentage not quoted in cited sources for this pass.

Response for Retention rate

Published references

Recommended

10.1186/s12877-018-0742-2, 10.48532/049000Field-cited
  • DPUK Data Portal — DELPHIC cohort directory entry

    https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

    Section: DOI row

    “https://doi.org/10.48532/049000”

    Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Article citation

    “10.1186/s12877-018-0742-2”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Published references
Notes

Recommended

Primary outcome in the 2018 protocol is change in modified Telephone Interview for Cognitive Status (TICS-m) at two years relative to delirium episodes and features. HRA summary documents later amendments (including COVID-19–related field work); geographic scope has expanded beyond Camden in amended approvals — DIGIT row reflects the Camden-anchored core design.Field-cited
Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

3 — Broad consent (recontactable for future studies)Field-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Consent

    “Consent is obtained in line with the principles of Good Clinical Practice.”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Consent level (axis)
Characterisation depth (axis)

Required

3 — Multi-domain MH characterisationField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Methods (HTML snapshot)

    “Daily inpatient assessments include the Memorial Delirium Assessment Scale, the Observational Scale for Level of Arousal, and the Hierarchical Assessment of Balance and Mobility.”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Characterisation depth (axis)
Data availability (axis)

Required

2 — Records + research dataField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Community assessments + hospital assessments + additional data sources

    “Administration of the Modified Telephone Interview for Cognitive Status (TICS-m),”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 3Internal

Internal catalogue field

——
Population type

Recommended

General populationNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

YesField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Community assessments

    “Other measures of health and wellbeing, including: general health, co-morbidities, medications, health behaviours, hearing, vision, quality of life, continence, falls, depression, personal and instrumental activities of daily living”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Questionnaire / interview
Cognitive testing

Recommended

YesField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Abstract

    “prospectively following them for two years, including daily ascertainment of all inpatient episodes for delirium.”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Cognitive testing
Physical measures

Recommended

YesField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Hospital assessments

    “Clinical: admission details, physiological measurements (National Early Warning Scores (NEWS)), illness severity scores (Acute Physiology and Chronic Health Evaluation (APACHE) II (minus arterial blood gas)), medications.”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Physical measures
Biosamples

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Biosamples
Genomic data

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Genomic data
Omics

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Omics
Imaging

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Imaging
Wearable / sensor

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Wearable / sensor
Digital phenotyping

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Digital phenotyping
Linked health records

Recommended

YesField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Community assessments

    “record linkage of electronic health data in primary and secondary care”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Linked health records
Biosample types

Recommended

No value heldNot published
Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
Response for Imaging modalities
Mental health measures

Recommended

Modified Telephone Interview for Cognitive Status (TICS-m), Memorial Delirium Assessment Scale (MDAS), Informant Assessment of Geriatric Delirium (I-AGeD), Geriatric Depression Scale (GDS), Center for Epidemiological Studies – Depression (CES-D)Field-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Table 1 footnotes

    “<em>GDS</em> Geriatric Depression Scale; <em>CES-D</em> Center for Epidemiological Studies – Depression;”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Additional data sources

    “Participants are asked to consent for access to their NHS medical and social care notes, including data from GP, community mental health, community rehabilitation and social services records throughout the duration of the study.”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for NHS linkage
GP linkage

Recommended

YesField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Additional data sources

    “including data from GP, community mental health, community rehabilitation and social services records”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for GP linkage
Death registry linkage

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Death registry linkage
Education linkage

Recommended

NoNot published
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2
Response for Education linkage
Data access mechanism

Recommended

direct_applicationField-cited
  • DPUK Data Portal — DELPHIC cohort directory entry

    https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

    Section: DOI row

    “https://doi.org/10.48532/049000”

    Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

Response for Data access mechanism
TRE platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: specific TRE/SDE product name for analysis is not stated in the three cited snapshots (DPUK entry names the platform at catalogue level only indirectly via DOI).

Response for TRE platform
Data dictionary URL

Recommended

https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHICField-cited
  • DPUK Data Portal — DELPHIC cohort directory entry

    https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

    Section: Cohort directory

    “https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC”

    Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: turnaround days not stated in cited DPUK/HRA/protocol excerpts.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: costs not stated in cited snapshots.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

70_plus: 1Field-cited
Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in cited snapshots: sex proportions not extracted from DPUK table or HRA summary body text in this pass.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: ethnicity JSON breakdown not present in the DPUK directory rows or HRA summary text captured here (BMC protocol discusses area-level census context, not participant-level JSON).

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: inclusion is age ≥70 but median age is not enumerated in the DPUK directory rows captured here.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: sex split percentage not present in cited DPUK table or HRA summary text.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: participant ethnicity percentages not extracted from cited sources (protocol mentions census context for Camden, not cohort table).

Response for Percent non-white
Geographic coverage

Recommended

regionalField-cited
Response for Geographic coverage
Follow-up duration

Recommended

2 years core follow-up (protocol); programme extended with HRA-approved amendmentsField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Design

    “prospectively following them for two years”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a single DATE: rolling recruitment and multi-wave contacts continue beyond the original protocol window per DPUK ongoing flag.

Response for Last data collection date
Recruitment start date

Recommended

1 Mar 2017Field-cited
  • DPUK Data Portal — DELPHIC cohort directory entry

    https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

    Section: Study start date

    “01/03/2017 00:00:00”

    Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Item?fingerPrintID=DELPHIC

Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood DisordersField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Community assessments

    “depression”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Table 1 footnotes

    “<em>GDS</em> Geriatric Depression Scale;”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Diagnosis area: Major depressive disorder
Diagnosis area: Dementia / neurodegeneration

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Dementia / neurodegeneration · Neurodegenerative · est. n=51Field-cited
Response for Diagnosis area: Dementia / neurodegeneration

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked site: NIHR University College London Hospitals Biomedical Research Centre

Recommended

NIHR University College London Hospitals Biomedical Research Centre · LondonField-cited
  • Davis et al. 2018 — The delirium and population health informatics cohort study protocol (BMC Geriatrics)

    https://doi.org/10.1186/s12877-018-0742-2

    Section: Hospital assessments

    “Camden is served by two acute hospitals, University College Hospital (UCH) and the Royal Free Hospital (RFH).”

    Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC5807842/

Response for Linked site: NIHR University College London Hospitals Biomedical Research Centre

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

ai_inferredInternal

Internal catalogue field

——
Last verified

Recommended

17 Apr 2026Internal

Internal catalogue field

——
Data source

Recommended

Populated Apr 2026 from DPUK cohort directory (DELPHIC), HRA application summary (IRAS 164446), Davis et al. BMC Geriatrics 2018 (PMC5807842), and docs/data-dictionary.md (axes, flags, group_2).Internal

Internal catalogue field

——