Cohort validation pack

MBRRACE-UK

Mothers and Babies: Reducing Risk through Audits and Confidential Enquiries across the UK (MBRRACE-UK)

Generated 6 Oct 2026, 10:36 · ID 80

AI inferred

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	40 of 68 reviewable fields are cited to a source (59%) · 8 with no source yet · 20 searched — not published · 27 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	MBRRACE-UK	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: HTML title “MBRRACE-UK: Mothers and Babies: Reducing Risk through Audits and Confidential Enquiries across the UK \| MBRRACE-UK \| NPEU” Page: https://www.npeu.ox.ac.uk/mbrrace-uk	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Mothers and Babies: Reducing Risk through Audits and Confidential Enquiries across the UK (MBRRACE-UK)	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: About MBRRACE-UK “The MBRRACE-UK collaboration is responsible for running the national Maternal, Newborn and Infant clinical Outcome Review Programme (MNI-CORP), funded by the Healthcare Quality Improvement Partnership (HQIP).” Page: https://www.npeu.ox.ac.uk/mbrrace-uk full_name expands the MBRRACE-UK acronym as in the page title and situates the programme under HQIP-funded MNI-CORP.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	University of Oxford (National Perinatal Epidemiology Unit) — maternal programme; MBRRACE-UK collaboration / HQIP-funded MNI-CORP	Field-cited	MBRRACE-UK — Maternal programme of work https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Section: Maternal programme of work “The maternal programme of MBRRACE-UK is run out of the National Perinatal Epidemiology Unit (NPEU) at the University of Oxford.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme managing_organisation also notes MBRRACE-UK is a collaboration spanning maternal (Oxford NPEU) and perinatal (Leicester TIMMS) sub-programmes per home page; maternal lead host stated verbatim.	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	No value held	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: Programme scope “The MBRRACE-UK collaboration is responsible for running the national Maternal, Newborn and Infant clinical Outcome Review Programme (MNI-CORP), funded by the Healthcare Quality Improvement Partnership (HQIP).” Page: https://www.npeu.ox.ac.uk/mbrrace-uk UK-wide confidential enquiry and surveillance spanning multiple nations and providers — not a single recruiting site → primary_site_id NULL.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.npeu.ox.ac.uk/mbrrace-uk	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: Canonical “https://www.npeu.ox.ac.uk/mbrrace-uk” Page: https://www.npeu.ox.ac.uk/mbrrace-uk	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named primary contact person in reviewed contact page beyond team mailboxes; contact_name NULL.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	mbrrace-uk@npeu.ox.ac.uk	Field-cited	MBRRACE-UK — Contact us https://www.npeu.ox.ac.uk/mbrrace-uk/contact-us Section: Email “mbrrace-uk@npeu.ox.ac.uk” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/contact-us	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	UK programme of national surveillance and confidential enquiries into maternal deaths (and selected severe maternal morbidity), stillbirths, neonatal deaths and serious perinatal morbidity, commissioned through the Healthcare Quality Improvement Partnership as the Maternal, Newborn and Infant clinical Outcome Review Programme (MNI-CORP). DIGIT lists this as a national data resource relevant to perinatal mental health because confidential review includes mental health care pathways and maternal suicide is classified among direct maternal deaths in programme definitions; it is not a recruited participant cohort. Overlap with the separate National Maternity Dataset (MSDS) entry is conceptual only (both inform maternity safety policy); MBRRACE-UK is case-based enquiry/surveillance, not the NHS England administrative maternity dataset.	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: About MBRRACE-UK “The main purpose of MBRRACE-UK is to conduct robust national surveillance and investigate the deaths of women and babies who die during pregnancy or shortly after pregnancy in the UK.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk DIGIT description additionally states perinatal mental health relevance (including maternal suicide under programme definitions), distinguishes programme from recruited cohorts, and notes conceptual-only overlap with the National Maternity Dataset (MSDS) entry using DIGIT framing.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	801	Field-cited	Vousden et al. 2024 — Impact of maternal risk factors on ethnic disparities in maternal mortality (PMC10998184) https://doi.org/10.1016/j.lanepe.2024.100893 Section: Findings “There were 801 maternal deaths in the UK between 2009 and 2019 (White: 70%, Asian: 13%, Black: 12%, Chinese/Other: 3%, Mixed: 2%).” Page: https://www.ebi.ac.uk/europepmc/article/PMC10998184 Figure is an analysis-cohort count from a peer-reviewed paper using MBRRACE-UK surveillance, not a live cumulative programme register total.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	Field-cited	Vousden et al. 2024 — Impact of maternal risk factors on ethnic disparities in maternal mortality (PMC10998184) https://doi.org/10.1016/j.lanepe.2024.100893 Section: Findings “There were 801 maternal deaths in the UK between 2009 and 2019” Page: https://www.ebi.ac.uk/europepmc/article/PMC10998184 total_n_qualifier=approximate because the seed uses a published 11-year surveillance-derived count as an order-of-magnitude anchor rather than a contemporaneous all-time register census.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in downloaded NPEU MBRRACE-UK pages reviewed for this seed (home, maternal programme, maternal data collection, contact): no explicit founding year for the MBRRACE-UK collaboration; year_established left NULL.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: About MBRRACE-UK “The main purpose of MBRRACE-UK is to conduct robust national surveillance and investigate the deaths of women and babies who die during pregnancy or shortly after pregnancy in the UK.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk Ongoing national programme with current web maintenance and reporting → is_active TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: About MBRRACE-UK “The main purpose of MBRRACE-UK is to conduct robust national surveillance and investigate the deaths of women and babies who die during pregnancy or shortly after pregnancy in the UK.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk Programme is statutory/clinical notification-based surveillance, not volunteer cohort recruitment → ongoing_recruitment FALSE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	MBRRACE-UK — Maternal programme of work https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Section: National surveillance of maternal deaths “As the number of maternal deaths in the UK is small, maternal mortality rates for the UK are calculated using three years' worth of data to identify meaningful trends.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Rolling triennial reporting differs from DIGIT sense of longitudinal cohort re-phenotyping waves for living participants → is_refreshed FALSE.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable to deceased-case surveillance; field NULL.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not a longitudinal participant cohort with follow-up waves; field NULL.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	10.1016/j.lanepe.2024.100893	Field-cited	Vousden et al. 2024 — Impact of maternal risk factors on ethnic disparities in maternal mortality (PMC10998184) https://doi.org/10.1016/j.lanepe.2024.100893 Section: Article metadata “10.1016/j.lanepe.2024.100893” Page: https://www.ebi.ac.uk/europepmc/article/PMC10998184	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	total_n is the count of UK maternal deaths between 2009 and 2019 reported in Vousden et al. (2024) based on MBRRACE-UK enhanced surveillance — a published analysis window, not a live cumulative register total. Programme scope also includes perinatal mortality/morbidity (Leicester-led sub-programme) not fully captured by this figure.	Field-cited	Vousden et al. 2024 — Impact of maternal risk factors on ethnic disparities in maternal mortality (PMC10998184) https://doi.org/10.1016/j.lanepe.2024.100893 Section: Findings “There were 801 maternal deaths in the UK between 2009 and 2019 (White: 70%, Asian: 13%, Black: 12%, Chinese/Other: 3%, Mixed: 2%).” Page: https://www.ebi.ac.uk/europepmc/article/PMC10998184 Notes field also documents honest framing: national enquiry/surveillance programme rather than recruited cohort; overlap with MSDS is conceptual only per cohort description sources. MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection “Examples include deaths due to bleeding, blood clots, suicide and pre-eclampsia.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection “Where applicable to the woman's care, MBRRACE-UK also requests notes from other agencies or specialist services, such those caring for women with mental health problems, cancer, or neurological conditions like epilepsy.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	Vousden et al. 2024 — Impact of maternal risk factors on ethnic disparities in maternal mortality (PMC10998184) https://doi.org/10.1016/j.lanepe.2024.100893 Section: Details of ethics approval “Identifiable MBRRACE-UK data were collected in England and Wales without consent with approval of the Secretary of State for Health and Social Care under Section 251 of the NHS Act 2006 (15/CAG/0119).” Page: https://www.ebi.ac.uk/europepmc/article/PMC10998184 Step 1 identifiable processing YES. Step 2 statutory Section 251 / CAG support for England and Wales surveillance YES (verbatim). Steps 3–4 participant research consent model does not apply to this national mortality surveillance → consent_level 2 per docs/data-dictionary.md.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Data collection “MBRRACE-UK collects comprehensive surveillance data for every woman who dies during pregnancy or up to one year after pregnancy in the UK. These data include women's sociodemographic characteristics, information on her health, medical and pregnancy history, and details about the woman's birth and the cause of her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No research-protocol application of named validated MH PROMs to living participants; surveillance and enquiry assemble routine/clinical record-derived fields → characterisation_depth 1 per data-dictionary.md tree.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Field-cited	DIGIT — docs/data-dictionary.md (cohort groups, tier, has_linked_health_records excerpts) Section: has_linked_health_records row (DIGIT data dictionary excerpt) “Use the specific linkage sub-fields (`has_nhs_linkage`, `has_gp_linkage`, etc.) to record details.” DERIVED: all ten modality booleans are FALSE including has_linked_health_records under national-programme overlap rule → hasResearch/hasBiological/hasAdvanced false → data_availability=1.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). National maternal deaths surveillance and confidential enquiry programme — a records-based resource.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	MBRRACE-UK — NPEU programme home https://www.npeu.ox.ac.uk/mbrrace-uk Section: About MBRRACE-UK “The main purpose of MBRRACE-UK is to conduct robust national surveillance and investigate the deaths of women and babies who die during pregnancy or shortly after pregnancy in the UK.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk National mortality surveillance programme, not a TWiCs-eligible interventional cohort platform → twics_eligible FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Data collection “MBRRACE-UK collects comprehensive surveillance data for every woman who dies during pregnancy or up to one year after pregnancy in the UK. These data include women's sociodemographic characteristics, information on her health, medical and pregnancy history, and details about the woman's birth and the cause of her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection data-dictionary.md TRUE branch requires systematically applied validated participant-report instruments (PHQ-9, etc.); surveillance returns are not that modality → FALSE.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Data collection “information on her health, medical and pregnancy history” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No CANTAB/neuropsychology battery described → has_cognitive_data FALSE.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Data collection “information on her health, medical and pregnancy history” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No research anthropometry/vitals panel beyond clinical record abstraction described → has_physical_measures FALSE.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No research biobank or tissue/DNA repository described → has_biosamples FALSE.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No genotyping/sequencing programme described → has_genomic_data FALSE.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No omics assays described → has_omics_data FALSE.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No research neuroimaging archive described → has_imaging_data FALSE.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No wearable sensor streams described → has_wearable_data FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection No passive smartphone/digital phenotyping described → has_digital_phenotyping FALSE.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	DIGIT — docs/data-dictionary.md (cohort groups, tier, has_linked_health_records excerpts) Section: has_linked_health_records row (DIGIT data dictionary excerpt) “The cohort is an NHS dataset (e.g., CPRD, MHSDS) — those datasets ARE health records, they are not "linked to" health records.” MBRRACE-UK is a national surveillance/enquiry programme assembling provider and registry records; per DIGIT overlap rule use has_nhs_linkage / has_gp_linkage / has_death_registry_linkage instead of has_linked_health_records → FALSE.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no biobank specimen types enumerated for MBRRACE-UK in reviewed sources.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no genotyping platform described.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no research imaging modalities listed for the programme.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	mental health conditions (hospital, GP and specialist mental health records reviewed in confidential enquiries), suicide (included as an example of direct maternal death in programme surveillance definitions)	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Where applicable to the woman's care, MBRRACE-UK also requests notes from other agencies or specialist services, such those caring for women with mental health problems, cancer, or neurological conditions like epilepsy.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection The cohorts.mental_health_measures array also reflects the same page's Direct maternal death definition examples, which include the contiguous sentence: Examples include deaths due to bleeding, blood clots, suicide and pre-eclampsia.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Programme systematically obtains NHS hospital records for cases → has_nhs_linkage TRUE.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	Yes	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “GP records from GPs involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Programme requests GP records for confidential enquiries → has_gp_linkage TRUE.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	Yes	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Identification of maternal deaths “data held by MBRRACE-UK are checked against national death and birth registries from the Office of National Statistics (ONS) and National Records of Scotland (NRS).” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Explicit death registry checking for case ascertainment → has_death_registry_linkage TRUE.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Collecting information for confidential enquiries “Hospital records from all units that were involved in the woman's care from one year prior to pregnancy to her death.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Reviewed enumeration of record types on the confidential enquiry page (hospital, GP, ambulance, post-mortem, LCRs, local reviews); no education-sector record linkage described → has_education_linkage FALSE.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in seed scope: HQIP / COR programme data access routes (e.g. DARG) not downloaded as HTML/PDF for this population pass; field NULL pending dedicated access policy harvest.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no TRE platform name stated on reviewed NPEU pages.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Section: Canonical “https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection Closest public field-level documentation for identification, surveillance and confidential enquiry data flows.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no median application timeline located.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public fee schedule located on reviewed NPEU pages.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in seed scope: no aggregate age JSON extracted for the surveillance population beyond narrative maternal mortality rate age bands in the same page; age_distribution remains NULL.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	female: 100	Field-cited	MBRRACE-UK — Maternal programme of work https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Section: Opening “It collects information about all women in the UK who die during pregnancy or in the year following the end of pregnancy” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Maternal mortality surveillance population is women only → sex_distribution JSON {"female": 100} as a structural flag, not a sampled sex mix.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as JSONB distribution in seed: page documents ethnicity collection and reporting methodology but does not publish a single table suitable for cohorts.ethnicity_distribution without copying entire report tables; field NULL.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single median maternal age at death extracted into seed fields from reviewed pages.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	100.00	Field-cited	MBRRACE-UK — Maternal programme of work https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Section: Opening “It collects information about all women in the UK who die during pregnancy or in the year following the end of pregnancy” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Surveillance denominator for maternal deaths is female → percent_female=100.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a single percent_non_white field: ethnicity is collected and reported in grouped categories for rates, not as one aggregate non-white proportion in reviewed HTML.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	MBRRACE-UK — Maternal programme of work https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Section: National surveillance of maternal deaths “MBRRACE-UK conducts surveillance of all maternal deaths in the UK that occur during pregnancy or up to one year after pregnancy.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme UK-wide programme with additional all-Ireland confidential enquiry coverage described elsewhere on the same site → geographic_coverage=national.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	Surveillance covers deaths during pregnancy and up to one year after the end of pregnancy (UK); international maternal mortality rate reporting typically uses six weeks for direct/indirect deaths.	Field-cited	MBRRACE-UK — Maternal programme of work https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme Section: Opening “It collects information about all women in the UK who die during pregnancy or in the year following the end of pregnancy” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme followup_duration text summarises surveillance window and references six-week international reporting convention described on maternal data collection page.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single last_data_collection_date published on reviewed NPEU hub pages.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not a recruited cohort; recruitment_start_date NULL.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not a recruited cohort; recruitment_end_date NULL.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Perinatal mental health Recommended Confirm this diagnosis area applies and estimated N if shown.	Perinatal mental health · Perinatal	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection “Where applicable to the woman's care, MBRRACE-UK also requests notes from other agencies or specialist services, such those caring for women with mental health problems, cancer, or neurological conditions like epilepsy.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection “Where applicable to the woman's care, MBRRACE-UK also requests notes from other agencies or specialist services, such those caring for women with mental health problems, cancer, or neurological conditions like epilepsy.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection cohort_diagnosis_areas row (23 Perinatal mental health) justified by explicit mental health agency records in confidential enquiry. UNSOURCEABLE: no published single N for women with perinatal mental health conditions in MBRRACE-UK surveillance extracted in this seed; estimated_n NULL. NULL because estimated_n is NULL; no prevalence_rate computed.	Response for Diagnosis area: Perinatal mental healthAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Self-harm (non-suicidal) Recommended Confirm this diagnosis area applies and estimated N if shown.	Self-harm (non-suicidal) · Self-Harm and Suicidality	Field-cited	MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection “Examples include deaths due to bleeding, blood clots, suicide and pre-eclampsia.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection MBRRACE-UK — Maternal data collection https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection “Examples include deaths due to bleeding, blood clots, suicide and pre-eclampsia.” Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection cohort_diagnosis_areas row (26 Suicidality) justified by suicide listed as direct maternal death example in programme definitions. UNSOURCEABLE: no separate published count of maternal deaths attributed to suicide alone extracted in this seed; estimated_n NULL. NULL because estimated_n is NULL; no prevalence_rate computed.	Response for Diagnosis area: Self-harm (non-suicidal)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Perinatal mental health

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Perinatal mental health · Perinatal

Field-cited

MBRRACE-UK — Maternal data collection
https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
“Where applicable to the woman's care, MBRRACE-UK also requests notes from other agencies or specialist services, such those caring for women with mental health problems, cancer, or neurological conditions like epilepsy.”
Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
MBRRACE-UK — Maternal data collection
https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
“Where applicable to the woman's care, MBRRACE-UK also requests notes from other agencies or specialist services, such those caring for women with mental health problems, cancer, or neurological conditions like epilepsy.”
Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
cohort_diagnosis_areas row (23 Perinatal mental health) justified by explicit mental health agency records in confidential enquiry.
UNSOURCEABLE: no published single N for women with perinatal mental health conditions in MBRRACE-UK surveillance extracted in this seed; estimated_n NULL.
NULL because estimated_n is NULL; no prevalence_rate computed.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Self-harm (non-suicidal)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Self-harm (non-suicidal) · Self-Harm and Suicidality

Field-cited

MBRRACE-UK — Maternal data collection
https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
“Examples include deaths due to bleeding, blood clots, suicide and pre-eclampsia.”
Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
MBRRACE-UK — Maternal data collection
https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
“Examples include deaths due to bleeding, blood clots, suicide and pre-eclampsia.”
Page: https://www.npeu.ox.ac.uk/mbrrace-uk/maternal-programme/maternal-data-collection
cohort_diagnosis_areas row (26 Suicidality) justified by suicide listed as direct maternal death example in programme definitions.
UNSOURCEABLE: no separate published count of maternal deaths attributed to suicide alone extracted in this seed; estimated_n NULL.
NULL because estimated_n is NULL; no prevalence_rate computed.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	ai_inferred	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Populated Apr 2026 from NPEU MBRRACE-UK website (home, maternal programme, maternal data collection, contact), Europe PMC full-text XML for Vousden et al. 2024 (PMC10998184; Section 251 / CAG 15/CAG/0119 ethics statement), and DIGIT docs/data-population-plan.md (A1.10) plus docs/data-dictionary.md (axes, group_4, tier).	Internal	Internal catalogue field	—	—