Cohort validation pack

EDGI

Eating Disorders Genetics Initiative

Generated 6 Oct 2026, 10:35 · ID 8

Unverified

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	51 of 71 reviewable fields are cited to a source (72%) · 9 with no source yet · 11 searched — not published · 20 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	EDGI	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: Page title “Eating Disorders Genetics Initiative \| EDGI UK” Page: https://edgiuk.org/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Eating Disorders Genetics Initiative	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: About EDGI UK “The Eating Disorders Genetics Initiative UK (EDGI UK) is the UK’s largest ever research project on eating disorders.” Page: https://edgiuk.org/about	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	King's College London / NIHR BioResource	Field-cited	NIHR BioResource https://bioresource.nihr.ac.uk Section: Who runs EDGI? “EDGI UK is led by the NIHR Mental Health BioResource ... researchers at King’s College London and is in collaboration with Beat” Page: https://edgiuk.org/about	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR Maudsley Biomedical Research Centre (site #1)	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: NIHR BioResource Centre Maudsley “They also run the world’s largest genetic study into anxiety and depression called the Genetic Links to Anxiety and Depression (GLAD) study” Page: https://edgiuk.org/about Primary site set to NIHR Maudsley BRC (site id=1): EDGI UK is led from the NIHR BioResource Centre Maudsley at King’s College London per EDGI UK About page.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://edgiuk.org/	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: Method (cited URL) “sign up online: edgiuk.org” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	https://www.cataloguementalhealth.ac.uk/EDGI	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Study page title “https://www.cataloguementalhealth.ac.uk/EDGI” Page: https://www.cataloguementalhealth.ac.uk/EDGI	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named contact required for cohort row; PI named on PubMed author list but not mapped to contact_name column.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE for seed field: public contact exists on website but contact_email column left NULL by design; see website contact page if required later.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	National online and NHS-linked recruitment study for people aged 16+ in England with lifetime experience of eating disorders. Collects validated questionnaires and saliva DNA samples, with consent to medical record linkage and recontact via the NIHR Mental Health BioResource.	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “EDGI UK recruits via media and clinical services. Anyone living in England, at least 16 years old, with a lifetime probable or clinical eating disorder is eligible to sign up online: edgiuk.org. Participants complete online questionnaires, donate a saliva sample for genetic analysis, and consent to medical record linkage and recontact for future studies.” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	10,000	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: About EDGI UK “Our aim is to collect the psychological, medical, and genetic information of 10,000 people with experience of any eating disorder.” Page: https://edgiuk.org/about	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	target	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: About EDGI UK “Our aim is to collect the psychological, medical, and genetic information of 10,000 people” Page: https://edgiuk.org/about total_n is a recruitment target; qualifier uses data-dictionary token target.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2020	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Objective “EDGI UK launched in February 2020” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Public significance statement “EDGI UK is one of the largest eating disorder studies worldwide with ongoing recruitment.” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Public significance statement “with ongoing recruitment” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Public significance statement “ongoing recruitment” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Cohort continuously enrols new volunteers (open recruitment). Treated as refreshed panel per is_refreshed intent (ongoing waves of participants).	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: recontact success rate not published in sources consulted.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: longitudinal retention not defined for this open-enrolment resource in abstract.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1002/eat.24037, doi:10.1101/2022.11.11.22282083	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: PubMed record “doi:10.1002/eat.24037” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Peer-reviewed cohort profile retained as primary; medRxiv preprint retained as secondary reference.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	As of September 2022 the cohort profile paper reported 7435 survey participants, 57.8% saliva kit return, 98% female and 93.1% white ethnicity. Diagnosis proportions overlap (not mutually exclusive): anorexia nervosa 48.3%, purging disorder 37.8%, bulimia nervosa 37.5%, binge-eating disorder 15.8%, atypical anorexia nervosa 7.8%. Partnership with Beat; additional NHS trusts recruit alongside central online sign-up.	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “The most common diagnoses are anorexia nervosa (48.3%), purging disorder (37.8%), bulimia nervosa (37.5%), binge-eating disorder (15.8%), and atypical anorexia nervosa (7.8%).” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “consent to medical record linkage and recontact for future studies” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Step 1 identifiable participants: YES (named volunteers). Step 2 S251/CAG-only access: NO (prospective consent). Step 3 recontact for future studies: YES (quote). Step 4 specific interventional/randomised consent: NO explicit statement of blanket interventional consent → Level 3 per data-dictionary decision tree.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	2 — Standardised MH instruments	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ EDE-Q/PHQ-9/GAD-7 are validated instruments (site + protocol). No evidence of mandated research-grade diagnostic interview (SCID/MINI/SCAN) for all participants → above Level 1, not Level 4. No multi-domain cognitive/physical research battery documented as core for all → Level 2 per characterisation depth tree.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	3 — Adds biological specimens/molecular data	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Derivation “donate a saliva sample for genetic analysis, and consent to medical record linkage” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ DERIVED: hasResearch=true (questionnaires OR linked records); hasBiological=true (biosamples AND genotyping programme); hasAdvanced=false → data_availability=3 per data-dictionary formula.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 3	Internal	Internal catalogue field	—	—
Population type Recommended	Case-enriched	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified case_enriched in the DIGIT cohort portfolio review (Aug 2026). Volunteers aged 16+ with lifetime experience of an eating disorder.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Established access process	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Access and recontact operate through the established NIHR BioResource governance and application process.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	NBR-MH (Umbrella member)	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) EDGI is a member study of the NIHR Mental Health BioResource umbrella (umbrella_member).	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: data-dictionary “A cohort is TWiCs-eligible if participants have given active research consent (consent_level = 4) AND the cohort infrastructure supports randomisation within the cohort.” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ DERIVED: consent_level=3 (broad/recontact) not 4 → twics_eligible must be FALSE per dictionary rule.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ TRUE per data-dictionary: validated instruments (EDE-Q, PHQ-9, GAD-7) used in protocol.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ FALSE: no computerised cognitive battery cited in abstract/protocol summary.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires, donate a saliva sample for genetic analysis” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ FALSE: no objective anthropometry/vitals programme stated in abstract; physical information may exist via linkage but that is not the same as measured physical phenotypes in cohort archive.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “donate a saliva sample for genetic analysis” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “donate a saliva sample for genetic analysis” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Protocol commits to GWAS/genotyping pipeline (Thermo Fisher microarray in full text); TRUE once genotyping executed for returned kits.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract “genetic etiology of eating disorders” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ FALSE: genomics/GWAS cited; no separate proteomics/metabolomics/transcriptomics layer evidenced in abstract.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires, donate a saliva sample for genetic analysis” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ FALSE: no research imaging modality in core protocol description.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ FALSE: no wearable/accelerometry cited.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “sign up online: edgiuk.org” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ FALSE per dictionary: online questionnaires are questionnaire data, not passive digital phenotyping (GPS/screen-time/sensor telemetry).	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “consent to medical record linkage” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	saliva	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “donate a saliva sample for genetic analysis” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	Thermo Fisher microarray (protocol; GWAS pipeline)	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Methods (protocol text cited via DOI landing) “Genome-wide genotyping and standard quality control will be undertaken using the Thermo Fisher microarray.” Page: https://doi.org/10.1101/2022.11.11.22282083 Automated medRxiv HTML download returned 403; quote taken from publicly indexed medRxiv metadata aligned with PubMed-linked preprint; cohort SQL value summarises platform for seed display.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: cohort has no imaging archive; column NULL.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	EDE-Q, PHQ-9, GAD-7	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Data/code availability (indexed article text) “All code for this study is publicly available: https://github.com/tnggroup/EDGI_protocol” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Instrument battery (EDE-Q, PHQ-9, GAD-7) retained from protocol materials referenced by the cohort profile paper; detailed module list should be confirmed from GitHub protocol or full text.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “consent to medical record linkage” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ UK NHS secondary-care record linkage (HES-class) is the primary interpretation of medical record linkage for this design; conservative TRUE for NHS hospital records.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “medical record linkage” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ UNSOURCEABLE at abstract level: linkage scope to primary-care vs hospital records not enumerated; set FALSE pending protocol table.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “medical record linkage” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ UNSOURCEABLE: ONS mortality linkage not stated in abstract.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Method “Participants complete online questionnaires, donate a saliva sample for genetic analysis, and consent to medical record linkage and recontact for future studies.” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ UNSOURCEABLE: education/DfE record linkage not mentioned in abstract; default FALSE.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	direct_application	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Data availability statement (indexed text) “EDGI UK data are not publicly available however are available via a data request application to the NIHR BioResource” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Classified as direct_application to custodian (NIHR BioResource) per data-dictionary.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: analysis may occur on researcher side but no TRE platform named for EDGI UK in abstract.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public data-dictionary URL captured in this verification pass.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “As of September 2022, EDGI UK recruited 7435 survey participants” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ UNSOURCEABLE: PubMed abstract reports survey N but not age-band distribution; cohorts.age_distribution set NULL.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.02; female: 0.98	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “98% female” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	other: 0.069; white: 0.931	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “93.1% white” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Complementary “other” share set to 6.9% so white+other=100%.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in abstract-only pass: median age not stated in PubMed abstract for EDGI UK.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	98.00	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “98% female” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	6.90	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “93.1% white” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ 100% minus 93.1% white = 6.9% non-white (single-decrement approximation).	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: Am I Eligible? “Live in England” Page: https://edgiuk.org/ England-wide recruitment satisfies data-dictionary ‘national’ definition including recruitment across an entire constituent nation of the UK.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	Ongoing since February 2020	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Objective “EDGI UK launched in February 2020” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Ongoing open cohort; duration expressed relative to February 2020 launch.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	1 Feb 2020	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Abstract — Objective “EDGI UK launched in February 2020” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Calendar day set to first day of stated launch month (2020-02-01) because PubMed abstract gives month/year only.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Eating disorders (anorexia) Recommended Confirm this diagnosis area applies and estimated N if shown.	Eating disorders (anorexia) · Eating Disorders · est. n=3,591	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “The most common diagnoses are anorexia nervosa (48.3%)” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ estimated_n = round(0.483 * 7435) = 3591 using September 2022 survey count; diagnoses overlap so counts are not additive.	Response for Diagnosis area: Eating disorders (anorexia)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Eating disorders (bulimia) Recommended Confirm this diagnosis area applies and estimated N if shown.	Eating disorders (bulimia) · Eating Disorders · est. n=2,788	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “bulimia nervosa (37.5%)” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ estimated_n = round(0.375 * 7435) = 2788.	Response for Diagnosis area: Eating disorders (bulimia)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Eating disorders (BED) Recommended Confirm this diagnosis area applies and estimated N if shown.	Eating disorders (BED) · Eating Disorders · est. n=1,175	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Results “binge-eating disorder (15.8%)” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ estimated_n = round(0.158 * 7435) = 1175.	Response for Diagnosis area: Eating disorders (BED)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Eating disorders (anorexia)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Eating disorders (anorexia) · Eating Disorders · est. n=3,591

Field-cited

Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord)
https://doi.org/10.1002/eat.24037
Section: Results
“The most common diagnoses are anorexia nervosa (48.3%)”
Page: https://pubmed.ncbi.nlm.nih.gov/37584261/
estimated_n = round(0.483 * 7435) = 3591 using September 2022 survey count; diagnoses overlap so counts are not additive.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Eating disorders (bulimia)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Eating disorders (bulimia) · Eating Disorders · est. n=2,788

Field-cited

Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord)
https://doi.org/10.1002/eat.24037
Section: Results
“bulimia nervosa (37.5%)”
Page: https://pubmed.ncbi.nlm.nih.gov/37584261/
estimated_n = round(0.375 * 7435) = 2788.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Eating disorders (BED)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Eating disorders (BED) · Eating Disorders · est. n=1,175

Field-cited

Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord)
https://doi.org/10.1002/eat.24037
Section: Results
“binge-eating disorder (15.8%)”
Page: https://pubmed.ncbi.nlm.nih.gov/37584261/
estimated_n = round(0.158 * 7435) = 1175.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: NIHR Cambridge Biomedical Research Centre Recommended	NIHR Cambridge Biomedical Research Centre · East of England	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Author affiliations (indexed) “NIHR BioResource, Cambridge University Hospitals NHS Foundation, Cambridge Biomedical Campus, Cambridge, UK” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ Mapped to NIHR Cambridge BRC site id=4 as the Cambridge Biomedical Campus BRC host for BioResource infrastructure.	Response for Linked site: NIHR Cambridge Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked site: NIHR Maudsley Biomedical Research Centre Recommended	NIHR Maudsley Biomedical Research Centre · London	Field-cited	EDGI UK — Official Website https://edgiuk.org/ Section: NIHR BioResource Centre Maudsley “The centre supports a large range of mental health studies to recruit new participants into the NIHR BioResource, and also leads EDGI UK” Page: https://edgiuk.org/about	Response for Linked site: NIHR Maudsley Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked site: Institute of Psychiatry, Psychology & Neuroscience Recommended	Institute of Psychiatry, Psychology & Neuroscience · London	Field-cited	Monssen et al. — The United Kingdom Eating Disorders Genetics Initiative (Int J Eat Disord) https://doi.org/10.1002/eat.24037 Section: Affiliations “Institute of Psychiatry, Psychology & Neuroscience” Page: https://pubmed.ncbi.nlm.nih.gov/37584261/ IoPPN site id=13 is the KCL department hosting the SGDP programme that leads EDGI UK alongside NIHR Maudsley BRC.	Response for Linked site: Institute of Psychiatry, Psychology & NeuroscienceAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	No value held	Internal	Internal catalogue field	—	—
Data source Recommended	No value held	Internal	Internal catalogue field	—	—