Cohort validation pack

D-CYPHR

DNA, Children and Young People's Health Resource

Generated 6 Oct 2026, 10:36 · ID 79

AI inferred

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	35 of 67 reviewable fields are cited to a source (52%) · 6 with no source yet · 26 searched — not published · 29 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	D-CYPHR	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: HTML title “D-CYPHR \| DNA, Children + Young People’s Health Resource” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	DNA, Children and Young People's Health Resource	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: H1 “DNA, Children + Young People’s Health Resource” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ DIGIT uses ASCII apostrophe in SQL full_name; wording matches public H1.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	NIHR BioResource (with NHS, Anna Freud National Centre for Children and Families, and University of Cambridge partners)	Field-cited	NIHR BioResource — Centres & Programmes: D-CYPHR https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ Section: About the D-CYPHR programme “The project is led by the National Institute for Health and Care Research (NIHR) BioResource in partnership with the NHS, Anna Freud and the University of Cambridge.” Page: https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR Cambridge Biomedical Research Centre (site #4)	Field-cited	NIHR BioResource — Centres & Programmes: D-CYPHR https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ Section: About the D-CYPHR programme “The project is led by the National Institute for Health and Care Research (NIHR) BioResource in partnership with the NHS, Anna Freud and the University of Cambridge.” Page: https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ primary_site_id=4 maps to NIHR Cambridge BRC / University of Cambridge site row as the named academic partnership anchor (national programme, not a single trust intake).	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.bioresource.nihr.ac.uk/d-cyphr/	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Canonical programme URL “https://www.bioresource.nihr.ac.uk/d-cyphr/” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ website_url matches the primary D-CYPHR landing page used for extraction.	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no named programme contact on reviewed HTML body (obfuscated email only).	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: contact addresses on page are Cloudflare-obfuscated in downloaded HTML.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	UK-wide NIHR BioResource programme inviting families with children and young people aged 0–15 to donate saliva for DNA analysis (with optional blood donation described for some participants), complete a health and lifestyle questionnaire, and join a recontactable volunteer resource supporting genetics and health research including mental health conditions alongside other childhood-onset conditions.	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ DIGIT description synthesises saliva + questionnaire + ages 0–15 + UK-wide framing from the same page and partner paragraphs.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE in reviewed NIHR BioResource HTML snapshots (Apr 2026): no cumulative enrolled volunteer count published on d-cyphr or centres-programmes pages.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	NULL because total_n is NULL; no qualifier applicable.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2023	Field-cited	NIHR BioResource — Centres & Programmes: D-CYPHR https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ Section: Programme banner “D-CYPHR - Our UK wide health and genetics research programme for children and young people aged 0 – 15 is launching in full in 2023.” Page: https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ year_established=2023 matches the stated full-launch year.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Hero copy “Be a part of our health research movement for ages 0-15” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Ongoing public recruitment tone → is_active=TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	Yes	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Hero CTA “Be a part of our health research movement for ages 0-15” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Public join messaging indicates ongoing_recruitment=TRUE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ No periodic repeat questionnaire waves described in reviewed sections → is_refreshed=FALSE (conservative).	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no recontact success statistics on reviewed pages.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no retention statistics on reviewed pages.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in this pass: no cohort profile DOI captured; only NIHR BioResource web programme pages downloaded.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	D-CYPHR is a distinct, recruitable volunteer programme and sample/data resource for ages 0–15 with its own sign-up pathway and materials, while it sits under the umbrella NIHR BioResource governance and infrastructure (including researcher access via BioResource application processes). It is not the same entity as the adult general BioResource panel, but shares the parent programme.	Field-cited	NIHR BioResource https://bioresource.nihr.ac.uk Section: Shared registry metadata “NIHR BioResource” Page: https://bioresource.nihr.ac.uk Supplementary context: parent NIHR BioResource umbrella referenced from shared sources seed row id 2. NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ + partnership “When joining D-CYPHR, children and young people will be asked to provide a saliva (spit) sample” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ notes column expands DIGIT relationship statement: D-CYPHR is a dedicated child programme within NIHR BioResource infrastructure while remaining a separately recruitable resource. NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Who we are “Contributions by young heroes today could provide clues for diabetes, mental health conditions, heart disease, rare diseases, immune conditions (and many more).” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (invitations) “Your child may also be invited to specific studies if they match the criteria the researchers are looking for, such as genetic profile (from your DNA sample), or details about your health and lifestyle (from your questionnaire answers).” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Step1 identifiable participants and samples: YES. Step2 S251/CAG-only without consent: NO (voluntary family sign-up). Step3 recontact for future studies: YES (quote). Step4 blanket consent for randomised interventional research within D-CYPHR umbrella: not described as automatic → Level 3 per data-dictionary.md.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	2 — Standardised MH instruments	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works / steps + meta og:description “everything from better understanding mental health to combatting diabetes” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ CONSERVATIVE: og:description plus step text (Complete a short health and lifestyle questionnaire) evidence structured self-report and mental-health-relevant programme scope without naming validated psychiatric scales or cognitive/interview batteries in reviewed HTML → characterisation_depth=2 pending PIS instrument audit.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	3 — Adds biological specimens/molecular data	Field-cited	DIGIT — docs/data-dictionary.md excerpt (tiers + data availability derivation) Section: Derivation excerpt “hasBiological = has_biosamples OR has_genomic_data OR has_omics_data” DERIVED: hasResearch TRUE (questionnaires); hasBiological TRUE (saliva/DNA + genotyping FAQ); hasAdvanced FALSE → data_availability=3 per docs/data-dictionary.md pseudocode (biological without imaging/wearables/digital phenotyping).	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 3	Internal	Internal catalogue field	—	—
Population type Recommended	General population	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified general_population in the DIGIT cohort portfolio review (Aug 2026). Children and young people's BioResource open to families UK-wide; recontact by design rather than condition-based entry.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Established access process	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Operates within the NIHR BioResource access and recontact framework.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	NBR-MH (Umbrella member)	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) D-CYPHR is the children and young people's programme of the NIHR BioResource (umbrella_member).	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (invitations) “You will be given all the necessary information on each study when invited and can decide to take part or not” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Per-study invitation model with separate decisions implies umbrella consent is broad (Level 3), not blanket interventional/TWiCs-ready Level 4 → twics_eligible=FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Structured participant-reported health and lifestyle questionnaire satisfies cohort questionnaire data flag per data-dictionary.md.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: reviewed pages do not describe computerised cognitive batteries or formal neuropsychological testing.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: optional blood draw exists for biosamples but reviewed hero copy does not describe research-grade anthropometry/vitals panels; blood pathway is biospecimen not has_physical_measures per dictionary boundary.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	Yes	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (saliva) “When joining D-CYPHR, children and young people will be asked to provide a saliva (spit) sample by dribbling around 2ml of spit into a collection tube.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	Yes	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (genotyping) “Your sample will have a basic genetic analysis (genotyping) done and is then stored securely for studies.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (genotyping) “Your sample will have a basic genetic analysis (genotyping) done and is then stored securely for studies.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: pages describe genotyping/DNA preparation; no separate proteomics/metabolomics/transcriptomics offering asserted.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: no neuroimaging acquisition described in reviewed sections.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: no wearable device data stream described.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: questionnaire is active self-report, not passive smartphone/sensor digital phenotyping per dictionary.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: reviewed public pages do not state NHS HES/GP administrative record linkage for the baseline programme.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	saliva, blood	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (saliva) + FAQ (blood) “When joining D-CYPHR, children and young people will be asked to provide a saliva (spit) sample by dribbling around 2ml of spit into a collection tube.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ ARRAY includes saliva (quote) plus optional blood arm per FAQ sentence: If you decide to give a blood sample when you join D-CYPHR, a phlebotomist will take three vials of blood.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	Research genotyping array (genome-wide markers; programme FAQ describes standard research genotyping tool)	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (genotyping) “The tool used for genotyping is a standard research tool with markers across the human genome.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ DIGIT genotyping_platform paraphrases programme FAQ; array vendor/version not named in reviewed HTML.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	NULL: has_imaging_data=FALSE; no imaging_modalities list applicable.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: reviewed HTML does not list specific named psychiatric instruments in the health and lifestyle questionnaire.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: no NHS HES linkage described in reviewed sections.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: no GP record linkage described in reviewed sections.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: no mortality registry linkage described.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: How it works “Each child or young person donates a saliva (spit) sample and answers a health and lifestyle questionnaire.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ FALSE: no education administrative linkage described.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	collaboration	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: FAQ (researcher access) “Researchers must formally apply to the BioResource to use data, are fully vetted and agree to strict protocol.” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Formal application pathway to NIHR BioResource maps to data_access_mechanism=collaboration in DIGIT.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: TRE hosting product not stated on reviewed D-CYPHR pages.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in this pass: no separate public data-dictionary URL located on reviewed programme pages.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: BioResource application timelines not stated on reviewed D-CYPHR pages.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: access costs not stated on reviewed D-CYPHR pages.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: programme spans ages 0–15 but reviewed pages do not publish JSON-ready band percentages.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no sex split tables on reviewed HTML pages.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no ethnicity breakdown published on reviewed HTML pages.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	NULL: cohort spans ages 0–15; a single median_age is not meaningful without distribution tables.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no sex percentages on reviewed pages.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no ethnicity percentages on reviewed pages.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Centres programme banner “Our UK wide health and genetics research programme for children and young people aged 0 – 15” Page: https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ UK-wide wording supports geographic_coverage=national.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single fixed follow-up window stated; FAQ describes storage and future study invitations.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: programme ongoing; no last collection date published on reviewed pages.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: pages state 2023 full launch but not a specific calendar recruitment_start_date.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	NULL: ongoing open recruitment per programme tone; no end date.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Transdiagnostic (anxiety-depression) Recommended Confirm this diagnosis area applies and estimated N if shown.	Transdiagnostic (anxiety-depression) · Transdiagnostic	Field-cited	NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Who we are “Contributions by young heroes today could provide clues for diabetes, mental health conditions, heart disease, rare diseases, immune conditions (and many more).” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ NIHR BioResource — D-CYPHR programme page https://www.bioresource.nihr.ac.uk/d-cyphr/ Section: Who we are “Contributions by young heroes today could provide clues for diabetes, mental health conditions, heart disease, rare diseases, immune conditions (and many more).” Page: https://www.bioresource.nihr.ac.uk/d-cyphr/ Transdiagnostic (anxiety-depression) diagnosis_area_id=32 used because mental health is one of several parallel childhood research themes, not a single-disorder cohort. UNSOURCEABLE: no mental-health-specific enrolled N published. NULL: prevalence_rate not computable without estimated_n and total_n.	Response for Diagnosis area: Transdiagnostic (anxiety-depression)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Transdiagnostic (anxiety-depression)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Transdiagnostic (anxiety-depression) · Transdiagnostic

Field-cited

NIHR BioResource — D-CYPHR programme page
https://www.bioresource.nihr.ac.uk/d-cyphr/
Section: Who we are
“Contributions by young heroes today could provide clues for diabetes, mental health conditions, heart disease, rare diseases, immune conditions (and many more).”
Page: https://www.bioresource.nihr.ac.uk/d-cyphr/
NIHR BioResource — D-CYPHR programme page
https://www.bioresource.nihr.ac.uk/d-cyphr/
Section: Who we are
“Contributions by young heroes today could provide clues for diabetes, mental health conditions, heart disease, rare diseases, immune conditions (and many more).”
Page: https://www.bioresource.nihr.ac.uk/d-cyphr/
Transdiagnostic (anxiety-depression) diagnosis_area_id=32 used because mental health is one of several parallel childhood research themes, not a single-disorder cohort.
UNSOURCEABLE: no mental-health-specific enrolled N published.
NULL: prevalence_rate not computable without estimated_n and total_n.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: NIHR Cambridge Biomedical Research Centre Recommended	NIHR Cambridge Biomedical Research Centre · East of England	Field-cited	NIHR BioResource — Centres & Programmes: D-CYPHR https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ Section: About the D-CYPHR programme “The project is led by the National Institute for Health and Care Research (NIHR) BioResource in partnership with the NHS, Anna Freud and the University of Cambridge.” Page: https://www.bioresource.nihr.ac.uk/centres-programmes/d-cyphr/ cohort_sites row links D-CYPHR to Cambridge BRC site id 4 as named University of Cambridge partnership anchor. NULL: no Cambridge-specific recruitment count split published.	Response for Linked site: NIHR Cambridge Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	ai_inferred	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Populated Apr 2026 from NIHR BioResource D-CYPHR public pages (bioresource.nihr.ac.uk/d-cyphr/ and centres-programmes/d-cyphr/ HTML snapshots), docs/data-dictionary.md scoring trees, and shared NIHR BioResource registry context (sources id 2).	Internal	Internal catalogue field	—	—