Cohort validation pack
SleepQuest
SleepQuest UK longitudinal sleep and mental health cohort study
Generated 6 Oct 2026, 10:35 · ID 72
Last verified: 16/04/2026
Instructions for reviewers
- Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
- Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
- Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.
Overview
74
Total fields
39
Field-cited
0
Whole-record source only
7
AI-inferred, no source yet
23
Searched — not published
16
No value held
30
Needs review
Source coverage
Summary of how well fields in this pack are linked to evidence.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Field-level source coverage Optional | 39 of 69 reviewable fields are cited to a source (57%) · 7 with no source yet · 23 searched — not published · 16 with no value held | Computed | No citation linked to this field yet. | No response selected | No notes |
Identity and ownership
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Short name Required | SleepQuest | Field-cited |
| No response selected | No notes |
Full name Required | SleepQuest UK longitudinal sleep and mental health cohort study | Field-cited |
| No response selected | No notes |
Managing organisation Recommended | University of Bristol | Field-cited |
| No response selected | No notes |
Primary site Recommended | NIHR Bristol Biomedical Research Centre (site #8) | Field-cited |
| No response selected | No notes |
Website URL Recommended | https://doi.org/10.1111/jsr.14205 | Field-cited |
| No response selected | No notes |
Catalogue of Mental Health Measures URL Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Contact name Recommended | Dr Victoria Grace Gabb | Field-cited |
| No response selected | No notes |
Contact email Recommended | victoria.gabb@bristol.ac.uk | Field-cited |
| No response selected | No notes |
Summary and status
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Description Required | UK-wide adults completed a longitudinal web-based survey (REDCap, University of Bristol) at three timepoints spanning the first and second national COVID-19 lockdowns and a post-restrictions wave (2020–2022). The programme collected Pittsburgh Sleep Quality Index sleep quality, PHQ-8 depression, GAD-7 anxiety, Dysfunctional Attitudes and Beliefs About Sleep (DBAS-16), and self-reported exercise and daylight exposure, with recruitment weighted toward older adults via Join Dementia Research alongside social media and press routes. | Field-cited |
| No response selected | No notes |
Total N Required | 3,306 | Field-cited |
| No response selected | No notes |
Total N qualifier Recommended | No value held | Not published | No response selected | No notes | |
Year established Recommended | 2020 | Field-cited |
| No response selected | No notes |
Active cohort Recommended | No | Field-cited |
| No response selected | No notes |
Ongoing recruitment Recommended | No | Field-cited |
| No response selected | No notes |
Refreshed cohort Recommended | No | Field-cited |
| No response selected | No notes |
Recontact success rate Recommended | No value held | Not published |
| No response selected | No notes |
Retention rate Recommended | 36.08 | Field-cited |
| No response selected | No notes |
Published references Recommended | doi:10.1111/jsr.14205 | Field-cited |
| No response selected | No notes |
Notes Recommended | Primary public cohort summary is the open-access outcomes paper (DOI 10.1111/jsr.14205). Project website DNS was not resolvable from the population environment (Apr 2026); Bristol Pure catalogue page was archived as secondary web context. total_n uses the Spring 2020 (T1) analytic sample with complete minimum dataset (n=3306) per Table 1. Deactivated Aug 2026 (portfolio review): COVID-era web-survey cohort completed in 2022; no ongoing collection or recontact infrastructure, so it fails the industry-utility test on all four criteria. | Field-cited |
| No response selected | No notes |
3D cohort mapping
Consent, characterisation, and data availability axes used on the cohort map.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent level (axis) Required | 3 — Broad consent (recontactable for future studies) | Field-cited |
| No response selected | No notes |
Characterisation depth (axis) Required | 2 — Standardised MH instruments | Field-cited |
| No response selected | No notes |
Data availability (axis) Required | 2 — Records + research data | Not published |
| No response selected | No notes |
Cohort map group (derived) Recommended | Group 3 | Internal | Internal catalogue field | — | — |
Population type Recommended | General population | Not published |
| No response selected | No notes |
Industry engagement status Recommended | Unknown | Not published |
| No response selected | No notes |
Parent cohort / programme Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
TWiCs eligible Recommended | No | Not published |
| No response selected | No notes |
Data modalities
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Questionnaire / interview Recommended | Yes | Field-cited |
| No response selected | No notes |
Cognitive testing Recommended | No | Field-cited |
| No response selected | No notes |
Physical measures Recommended | No | Field-cited |
| No response selected | No notes |
Biosamples Recommended | No | Field-cited |
| No response selected | No notes |
Genomic data Recommended | No | Not published |
| No response selected | No notes |
Omics Recommended | No | Not published |
| No response selected | No notes |
Imaging Recommended | No | Not published |
| No response selected | No notes |
Wearable / sensor Recommended | No | Not published |
| No response selected | No notes |
Digital phenotyping Recommended | No | Not published |
| No response selected | No notes |
Linked health records Recommended | No | Not published |
| No response selected | No notes |
Biosample types Recommended | No value held | Not published | No response selected | No notes | |
Genotyping platform Recommended | No value held | Not published | No response selected | No notes | |
Imaging modalities Recommended | No value held | Not published | No response selected | No notes | |
Mental health measures Recommended | PHQ-8, GAD-7, PSQI, DBAS-16 | Field-cited |
| No response selected | No notes |
Data subcategories
Structured modality and subcategory rows used alongside the high-level data-type flags.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Consent and use permissions
Specific use permissions separate from the 3D consent-level axis.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Access pathways
One or more routes by which researchers can request or analyse data.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Within-cohort coverage
Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Linkage and access
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
NHS linkage Recommended | No | Not published |
| No response selected | No notes |
GP linkage Recommended | No | Not published |
| No response selected | No notes |
Death registry linkage Recommended | No | Not published |
| No response selected | No notes |
Education linkage Recommended | No | Not published |
| No response selected | No notes |
Data access mechanism Recommended | tre | Field-cited |
| No response selected | No notes |
TRE platform Recommended | Dementias Platform UK (DPUK) Data Portal | Field-cited |
| No response selected | No notes |
Data dictionary URL Recommended | No value held | Not published |
| No response selected | No notes |
Data access timeline (days) Recommended | No value held | Not published |
| No response selected | No notes |
Data access cost Recommended | No value held | Not published |
| No response selected | No notes |
Participant profile and dates
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Age distribution Recommended | 50+: 0.801; 18-29: 0.046; 30-49: 0.153 | Field-cited |
| No response selected | No notes |
Sex distribution Recommended | male: 0.25; female: 0.749 | Field-cited |
| No response selected | No notes |
Ethnicity distribution Recommended | asian: 0.009; white: 0.97; mixed_or_other: 0.021 | Field-cited |
| No response selected | No notes |
Smoking status distribution Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Median age Recommended | No value held | Not published |
| No response selected | No notes |
Percent female Recommended | 74.88 | Field-cited |
| No response selected | No notes |
Percent non-white Recommended | 2.60 | Field-cited |
| No response selected | No notes |
Geographic coverage Recommended | national | Field-cited |
| No response selected | No notes |
Follow-up duration Recommended | Apr 2020 – Dec 2022 (three survey waves) | Field-cited |
| No response selected | No notes |
Last data collection date Recommended | 19 Dec 2022 | Field-cited |
| No response selected | No notes |
Recruitment start date Recommended | 29 Apr 2020 | Field-cited |
| No response selected | No notes |
Recruitment end date Recommended | 19 Dec 2022 | Field-cited |
| No response selected | No notes |
Diagnosis areas
Mental health diagnosis areas represented in this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Major depressive disorder · Mood Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Generalised anxiety disorder · Anxiety Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: Sleep disorders / insomnia Recommended Confirm this diagnosis area applies and estimated N if shown. | Sleep disorders / insomnia · Sleep Disorders | Field-cited |
| No response selected | No notes |
Linked sites
Sites contributing participants or data to this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Linked site: NIHR Bristol Biomedical Research Centre Recommended | NIHR Bristol Biomedical Research Centre · South West England | Field-cited |
| No response selected | No notes |
Verification metadata
Internal catalogue status — for reference only.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Verification status Recommended | ai_inferred | Internal | Internal catalogue field | — | — |
Last verified Recommended | 16 Apr 2026 | Internal | Internal catalogue field | — | — |
Data source Recommended | Populated Apr 2026 from Blackman et al. Journal of Sleep Research 2024 (DOI 10.1111/jsr.14205; PMC11597021 HTML snapshot), DPUK Data Portal cohort directory HTML shell (portal.dementiasplatform.uk), University of Bristol Pure research information page HTML snapshot, and docs/data-dictionary.md scoring rules. | Internal | Internal catalogue field | — | — |