Cohort validation pack

HealthWise Wales

Generated 6 Oct 2026, 10:36 · ID 70

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	47 of 70 reviewable fields are cited to a source (67%) · 8 with no source yet · 15 searched — not published · 21 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	HealthWise Wales	Field-cited	Hurt et al. — Cohort profile: HealthWise Wales (BMJ Open, 2019) https://doi.org/10.1136/bmjopen-2019-031705 Section: Article title “Cohort profile: HealthWise Wales.” Page: https://doi.org/10.1136/bmjopen-2019-031705 DIGIT name uses the public programme token HealthWise Wales from the cohort profile title.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	HealthWise Wales	Field-cited	Hurt et al. — Cohort profile: HealthWise Wales (BMJ Open, 2019) https://doi.org/10.1136/bmjopen-2019-031705 Section: Article title “Cohort profile: HealthWise Wales.” Page: https://doi.org/10.1136/bmjopen-2019-031705 full_name mirrors the cohort profile title wording.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Cardiff University / Swansea University (SAIL) / NHS Wales partners	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Author affiliations (HTML) “Division of Population Medicine, Cardiff University School of Medicine” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ managing_organisation summarises Cardiff lead plus Swansea (SAIL) / NHS Wales partnership named in affiliations and linkage narrative.	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	No value held	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Recruitment methods “Participant Resource Centre at Cardiff University” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ primary_site_id NULL: no discrete DIGIT sites row for Cardiff University School of Medicine / Centre for Trials Research; Swansea University (site 22) is linked separately in cohort_sites for SAIL/UKSeRP hosting.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.healthwisewales.gov.wales/	Field-cited	HealthWise Wales — programme website https://www.healthwisewales.gov.wales/ Section: Recruitment methods “www.healthwisewales.gov.wales” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Canonical HTTPS URL used on cohort row.	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named public cohort owner contact extracted for this field.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: programme contact routes vary by channel; no stable single mailbox captured in reviewed sources.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	Welsh national research register and longitudinal health data platform for adults (16+) resident or receiving healthcare in Wales. Participants consent to follow-up surveys, research contact, and pseudonymous linkage of questionnaire data to routinely collected NHS records (including primary care and hospital data) within the Secure Anonymised Information Linkage (SAIL) environment, with project-specific analysis in SAPPHIRe on the UK Secure e-Research Platform (UKSeRP).	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Abstract “HealthWise Wales (HWW) aims to facilitate research by recruiting a cohort of individuals who have consented to be informed about research projects, advertising studies to participants, supporting data collection on specific topics and providing access to linked healthcare data for secondary analyses.” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	43,000	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Findings to date “HWW has facilitated the recruitment of 43 826 participants to 15 different studies” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ total_n rounded to 43000 approximate because the published figure counts study-level participations across multiple studies while active registrants are reported separately (~21k alive registered in abstract snapshot).	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Findings to date “many of the 21 779 registrants taking part in multiple studies” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ approximate qualifier because headline N mixes register size and study facilitation counts.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2015	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Ethical approval “HWW received ethical approval from Wales Research Ethics Committee (REC) 3 on 16th March 2015” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ year_established=2015 from first ethics approval date.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Eligibility / recruitment “Recruitment into HWW is ongoing and dynamic” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Cohort description “Recruitment into HWW is ongoing and dynamic” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Methods of data collection “repeated at intervals of 2–3 years as appropriate” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Repeated core modules support is_refreshed TRUE.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no headline recontact success percentage in cohort profile.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: retention reported narratively (e.g. module completion) without a single cohort retention_rate field.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1136/bmjopen-2019-031705	Field-cited	Hurt et al. — Cohort profile: HealthWise Wales (BMJ Open, 2019) https://doi.org/10.1136/bmjopen-2019-031705 Section: Citation “doi:10.1136/bmjopen-2019-031705” Page: https://doi.org/10.1136/bmjopen-2019-031705	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Primary delivery involves Cardiff University (Centre for Trials Research / Population Medicine) and Swansea University Medical School for SAIL-based linkage; NHS Wales Informatics Service acts as trusted third party for anonymised linkage fields. Cohort profile statistics (e.g. 72% female) reflect active registered participants at publication and will drift over time; see entity_sources for field-level notes.	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Linkage methods “The NHS Wales Informatics Service (a trusted third party) uses the personal details of participants (with their consent) to generate an anonymised linking field” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Participants “Participants consent to be contacted for follow-up data collection and for their details to be used to access their routinely collected National Health Service records for research purposes.” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Step1 identifiable participants consent to join register: YES. Step2 S251-only pathway: NO. Step3 broad consent with recontact and record access: YES. => consent_level 3 per data-dictionary.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	2 — Standardised MH instruments	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Methods of data collection / Table 1 outline “Mood over the past month, measured using the five-item Mental Health Inventory (MHI-5)” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Validated PROMs (MHI-5, WEMWBS, etc.) with lifestyle modules but not a refreshed SCID-class programme across the whole cohort -> characterisation_depth 2.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	2 — Records + research data	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “outcome information can be obtained through record linkage with national health databases ... within the Secure Anonymised Information Linkage (SAIL) databank” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ DERIVED: questionnaires/PROMs plus linked NHS records; no standing population-wide biosample/genomics programme on the cohort row -> data_availability 2.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 3	Internal	Internal catalogue field	—	—
Population type Recommended	General population	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified general_population in the DIGIT cohort portfolio review (Aug 2026). National research register open to residents of Wales aged 16+.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Participants “consented to be informed about research projects” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE: register facilitates study advertising and linkage; not a TWiCs basket trial design.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Methods of data collection “Data are collected using a web-based application” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 1 outline “Physical activity (General Practice Physical Activity Questionnaire, GPPAQ)” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE: no named cognitive test battery (e.g. full neuropsychology panel) in core module list; mental health uses PROMs.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 1 outline “Anthropometry (self-report of weight and height)” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ TRUE: self-reported anthropometry and GPPAQ physical activity module.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “patient-reported outcome measures and those relevant to conditions likely to be under-represented in routinely collected data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE for cohort-level standing biobank: cohort profile centres on questionnaires plus routine linkage, not a default biosample repository.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Linkage methods “link participants' data with routinely collected healthcare data sets” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE: no population genotyping programme described in cohort profile.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Linkage methods “routinely collected healthcare data sets” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE: no multi-omics layer described as a default HWW resource.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Abstract / design “web-based application” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE: imaging not described as a core cohort modality.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 3 examples “validate data on physical activity collected using mobile devices” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE for cohort row: device studies appear as researcher-led modules, not a standing cohort-wide wearable archive.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “web-based application” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE: passive digital phenotyping streams are not described as a default resource.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “record linkage with national health databases (such as the Patient Episode Database for Wales and general practice data) within the Secure Anonymised Information Linkage (SAIL) databank” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ TRUE: consented linkage from register data to routine NHS datasets.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	NULL: has_biosamples FALSE.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	NULL: has_genomic_data FALSE.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	NULL: has_imaging_data FALSE.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	MHI-5, WEMWBS, RRC-ARM (28-item)	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 1 outline “MHI-5 ... Warwick-Edinburgh Mental Well-being Scale ... Resilience Research Centre Adult Resilience Measure (RRC-ARM 28)” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Single provenance row for the cohort mental_health_measures array (MHI-5, WEMWBS, RRC-ARM per module list).	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “Patient Episode Database for Wales” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	Yes	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “general practice data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Outcome data “Patient Episode Database for Wales and general practice data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE on cohort row: cohort profile names PEDW and GP exemplars; mortality register linkage not explicitly asserted for HWW in reviewed text (may exist via broader SAIL catalogues but not sourced here).	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Future linkage “Future phases of the project will also include linkage with other administrative data sets” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ FALSE for current row: education administrative linkage described as future phase, not implemented claim in cohort profile.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	tre	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Linkage methods “project-specific, anonymised HWW data can be accessed” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Mapped to tre (secure analysis environment) consistent with UKSeRP/SAPPHIRe description.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	SAPPHIRe (HealthWise Wales) on UKSeRP; linkage via SAIL Databank	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Linkage methods “SAPPHIRe ... stored in separate areas of the UK Secure e-Research Platform (UKSeRP” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	https://bmjopen.bmj.com/content/9/12/e031705	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Open access publication “BMJ Open” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ data_dictionary_url points to open cohort profile (structured design + module list) pending a stable machine-readable data dictionary URL from the programme.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: access timelines are project-dependent in researcher governance materials.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public fee schedule captured in reviewed cohort profile.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as structured JSON on cohort row: paper emphasises skew to 45–64 without a clean multi-bin JSON mapping in this pass.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.28; female: 0.72	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 2 narrative “The percentage of women is higher than in the general population (72% compared with 51%).” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	white: 0.98; non_white: 0.02	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 2 narrative “The percentage of participants in non-white ethnic groups (2%) is the same as in the general population.” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Stored as simplified JSON on cohort row with white/non_white split consistent with quoted 2% non-white.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: cohort profile reports age band skew but not a single median age for active participants.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	72.00	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 2 narrative “72% compared with 51%” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	2.00	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Table 2 narrative “non-white ethnic groups (2%)” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	regional	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Setting “Wales has a population of over three million people, within clearly defined geographical boundaries” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ geographic_coverage=regional (single UK nation programme), not UK-wide national.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	10+ years (2015-present)	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Methods of data collection “The project launched in 2015” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ followup_duration expressed as 10+ years at 2026 verification.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: rolling module deployment; no single last_data_collection_date for the register entity.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	16 Mar 2015	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Ethical approval “16th March 2015” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Mapped to 2015-03-16 as first ethics approval anchor.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	NULL by design: ongoing recruitment with no fixed end date in cohort profile.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Research themes / CMD statistics “28% of participants have a Mental Health Inventory Score consistent with a common mental disorder” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Major depressive disorder / mood disorders theme supported by CMD prevalence narrative and core mood PROMs.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Research themes “mental health” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Anxiety disorders included under broad mental health theme and PROM-based distress measurement.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Research themes “dementia” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Perinatal mental health Recommended Confirm this diagnosis area applies and estimated N if shown.	Perinatal mental health · Perinatal	Field-cited	PMC — Cohort profile: HealthWise Wales (full text HTML) https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Section: Modified questionnaires “additional set of modified core questionnaires that collect information from pregnant women” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC7003385/ Perinatal mental/physical health stream explicitly described.	Response for Diagnosis area: Perinatal mental healthAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: Swansea University Recommended	Swansea University · Wales	No source yet	No citation linked to this field yet.	Response for Linked site: Swansea UniversityAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from Hurt L et al. BMJ Open 2019;9:e031705 (PMC7003385 cohort profile), HealthWise Wales public programme pages where reachable, ClinicalTrials.gov API v2 (?query.term="HealthWise Wales"), ISRCTN XML API (q=HealthWise Wales), HDR UK Innovation Gateway source id 1, DPUK source id 3, and DIGIT docs/data-dictionary.md.	Internal	Internal catalogue field	—	—