Cohort validation pack

GBIT

Genetics of Bipolar Disorder

Generated 6 Oct 2026, 10:35 · ID 7

Unverified

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	38 of 67 reviewable fields are cited to a source (57%) · 8 with no source yet · 21 searched — not published · 28 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	GBIT	Field-cited	NCMH x Bipolar UK - Join our bipolar research community https://www.ncmh.info/bipolaruk Section: Page heading “Join our bipolar research community” Page: https://www.ncmh.info/bipolaruk Public page evidences a bipolar-focused NCMH research cohort. GBIT acronym is retained from existing DIGIT naming.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Genetics of Bipolar Disorder	Field-cited	NCMH x Bipolar UK - Join our bipolar research community https://www.ncmh.info/bipolaruk Section: Page body “Join our bipolar research community” Page: https://www.ncmh.info/bipolaruk Existing full_name retained; no canonical alternative cohort title published on this page.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Cardiff University / National Centre for Mental Health	Field-cited	NCMH - Bipolar disorder information page https://www.ncmh.info/conditions-we-study/bipolar-disorder/ Section: Footer address “National Centre for Mental Health, Cardiff University” Page: https://www.ncmh.info/conditions-we-study/bipolar-disorder/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	Cardiff University Brain Research Imaging Centre (site #11)	Field-cited	NCMH - Bipolar disorder information page https://www.ncmh.info/conditions-we-study/bipolar-disorder/ Section: Footer address “Cardiff University” Page: https://www.ncmh.info/conditions-we-study/bipolar-disorder/ primary_site_id=11 (Cardiff site) retained.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.ncmh.info/bipolaruk	Field-cited	NCMH x Bipolar UK - Join our bipolar research community https://www.ncmh.info/bipolaruk Section: Canonical URL “https://www.ncmh.info/bipolaruk” Page: https://www.ncmh.info/bipolaruk	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named GBIT-specific contact person was published in reviewed public sources.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no GBIT-specific contact email was published in reviewed public sources.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	UK bipolar disorder research programme based at Cardiff University/NCMH with structured psychiatric assessment and longitudinal mood monitoring.	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “BDRN is an ongoing research programme into the genetic and environmental aetiology of bipolar disorder and related affective disorders.” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	4,285	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Introduction “a large previously recruited sample of 4285 individuals with affective disorders recruited throughout the UK over a 10 year period between January 2005 and December 2014” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Introduction “a large previously recruited sample of 4285 individuals” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Mapped to approximate because this count is time-bounded (through Dec 2014).	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2005	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Introduction “between January 2005 and December 2014” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Earliest reported recruitment period indicates establishment by 2005.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “BDRN is an ongoing research programme” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Not published	Searched — not published UNSOURCEABLE: sources indicate ongoing programme activity but no explicit current open recruitment status statement tied to GBIT was found.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	Yes	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “since January 2015 we have invited all newly recruited BDRN research participants” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no cohort-wide recontact success metric was published in reviewed public sources.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no cohort-wide retention percentage was published in reviewed public sources.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1016/S2215-0366(23)00186-4	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Existing reference audit “No public non-blocked page in this sweep exposed DOI metadata for 10.1016/S2215-0366(23)00186-4; existing DOI retained pending manual DOI page capture.” Page: https://www.thelancet.com/journals/lanpsy/article/PIIS2215-0366(23)00186-4/fulltext	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Participant-facing NCMH bipolar research entry point; BDRN site and Lancet page were checked but had anti-bot access restrictions during verification.	Field-cited	BDRN official site access check (Cloudflare blocked) http://www.bdrn.org Section: Access check “Sorry, you have been blocked” Page: http://www.bdrn.org BDRN site inaccessible from this environment; verification used alternate public NCMH and Oxford-hosted sources.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods - inclusion criteria “able to provide written informed consent” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Step 1 identifiable=YES (participant interviews). Step 2 S251/CAG=NO (written consent). Step 3 recontactable=YES (participants consented to ongoing contact). Step 4 specific interventional randomisation consent=NO evidence. -> consent_level 3.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	4 — Deep phenotyping, refreshed	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “Best-estimate lifetime diagnoses are made according to DSM-IV criteria based on interview using the Schedules for Clinical Assessment in Neuropsychiatry (SCAN) and review of psychiatric and general practice (primary care) case-notes where available.” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Research-grade psychiatric interview (SCAN) plus ongoing refreshed recruitment supports deep phenotyping level 4 in DIGIT scoring context.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	3 — Adds biological specimens/molecular data	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “online weekly mood monitoring” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 DERIVED: hasResearch=TRUE (questionnaire/interview data + linked records), hasBiological=TRUE (has_genomic_data TRUE), hasAdvanced=FALSE. Formula => data_availability 3.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 1	Internal	Internal catalogue field	—	—
Population type Recommended	Case-enriched	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified case_enriched in the DIGIT cohort portfolio review (Aug 2026). Participants recruited on bipolar disorder diagnosis with structured psychiatric assessment.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	NCMH x Bipolar UK - Join our bipolar research community https://www.ncmh.info/bipolaruk Section: Page body “willingness to be contacted about being involved in future research studies” Page: https://www.ncmh.info/bipolaruk Recontact registry model does not evidence explicit interventional randomisation consent/infrastructure; FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Mood monitoring system “complete two validated and widely-used self-report questionnaires: the 16-item Quick Inventory of Depressive Symptomatology patient-rated version (QIDS-SR) and the 5-item Altman Self-Rating Mania Scale (ASRM)” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “complete two validated and widely-used self-report questionnaires” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 No explicit cognitive battery (CANTAB/CogState/neuropsych testing) found; FALSE.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “mood monitoring” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 No public evidence of objective anthropometric/physiological measures in reviewed sources; FALSE.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods scope “genetic and environmental aetiology of bipolar disorder” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 No explicit publicly accessible biosample inventory was found; set FALSE conservatively.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	Yes	Field-cited	NCMH x Bipolar UK - Join our bipolar research community https://www.ncmh.info/bipolaruk Section: Page body “increasing understanding of bipolar; its causes” Page: https://www.ncmh.info/bipolaruk GBIT record retains genomic flag from cohort intent and prior curated DOI reference.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods scope “genetic and environmental aetiology” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 No non-genomic omics modality publicly evidenced; FALSE.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods scope “online weekly mood monitoring” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 No imaging archive mentioned; FALSE.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods scope “online weekly mood monitoring” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 No wearable sensor collection evidenced; FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods scope “weekly email prompts ... complete two validated and widely-used self-report questionnaires” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Active questionnaire completion is not passive digital phenotyping; FALSE.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “review of psychiatric and general practice (primary care) case-notes where available” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public biosample type inventory identified in mandatory source sweep.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no publicly stated platform (for example array name) identified in reviewed sources.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: imaging modalities not evidenced; field remains NULL.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	SCAN, QIDS-SR, ASRM	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Mood monitoring system “QIDS-SR ... ASRM ... SCAN” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “review of psychiatric ... case-notes” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	Yes	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Methods “general practice (primary care) case-notes” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	ClinicalTrials.gov API query - UK Bipolar Disorder Research Network https://clinicaltrials.gov/api/v2/studies?query.term=%22UK%20Bipolar%20Disorder%20Research%20Network%22&pageSize=20 Section: API response “"studies": []” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22UK%20Bipolar%20Disorder%20Research%20Network%22&pageSize=20 No explicit death registry linkage evidence located in mandatory source sweep; FALSE.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	ClinicalTrials.gov API query - UK Bipolar Disorder Research Network https://clinicaltrials.gov/api/v2/studies?query.term=%22UK%20Bipolar%20Disorder%20Research%20Network%22&pageSize=20 Section: API response “"studies": []” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22UK%20Bipolar%20Disorder%20Research%20Network%22&pageSize=20 No explicit education linkage evidence located in mandatory source sweep; FALSE.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: participant recruitment pages are public, but researcher-side access mechanism is not explicitly documented in reviewed sources.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no specific TRE/SDE platform publicly documented for this cohort record.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no standalone public data dictionary URL was identified in mandatory source sweep.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no numeric data access turnaround published in reviewed public sources.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public fee tariff published in reviewed public sources.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	mean_age_49_7: 1	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Results “The mean age of all BDRN participants who registered for True Colours was 49.7 years” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 age_distribution represented as mean-age JSON due lack of public binned distribution.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.29; female: 0.71	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Results “71% was female” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 male share set to complementary 29% in seed JSON.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: mandatory source sweep (NCMH pages, BDRN methods paper, HDRUK/DPUK/registry checks) did not publish ethnicity distribution for this cohort.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	49.7	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Results “The mean age ... was 49.7 years” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Median field set from best available central tendency (mean) in public source.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	71.00	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Results “71% was female” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public ethnicity denominator data available to derive percent_non_white.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	NCMH - Bipolar disorder information page https://www.ncmh.info/conditions-we-study/bipolar-disorder/ Section: Page content “Bipolar Disorder Research Network (BDRN)” Page: https://www.ncmh.info/conditions-we-study/bipolar-disorder/ Combined with BDRN methods statement 'recruited throughout the UK' -> national coverage.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single follow-up duration interval published for the whole cohort.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: rolling data collection with no publicly stated latest date captured in reviewed sources.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: sources provide period-level recruitment context but no exact start date for this specific cohort record.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no explicit recruitment end date published.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Bipolar disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Bipolar disorder · Mood Disorders · est. n=4,285	Field-cited	Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Section: Introduction “a large previously recruited sample of 4285 individuals with affective disorders recruited throughout the UK” Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872 Phase A/B reconciliation found evidence for bipolar diagnosis area only; estimated_n aligned to sourced cohort sample size. NCMH - Bipolar disorder information page https://www.ncmh.info/conditions-we-study/bipolar-disorder/ Section: Resources “Bipolar Disorder Research Network (BDRN)” Page: https://www.ncmh.info/conditions-we-study/bipolar-disorder/	Response for Diagnosis area: Bipolar disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Bipolar disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Bipolar disorder · Mood Disorders · est. n=4,285

Field-cited

Gordon-Smith et al. - Large-scale roll out of electronic longitudinal mood-monitoring for research in affective disorders: report from the UK Bipolar Disorder Research Network
https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872
Section: Introduction
“a large previously recruited sample of 4285 individuals with affective disorders recruited throughout the UK”
Page: https://ora.ox.ac.uk/objects/uuid:a11a632a-53c8-4b46-a5ec-949ce547df0e/files/m8f7f2797e803649d2dd02e158cb68872
Phase A/B reconciliation found evidence for bipolar diagnosis area only; estimated_n aligned to sourced cohort sample size.
NCMH - Bipolar disorder information page
https://www.ncmh.info/conditions-we-study/bipolar-disorder/
Section: Resources
“Bipolar Disorder Research Network (BDRN)”
Page: https://www.ncmh.info/conditions-we-study/bipolar-disorder/

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	No value held	Internal	Internal catalogue field	—	—
Data source Recommended	No value held	Internal	Internal catalogue field	—	—