Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
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Cohort validation pack

DATAMIND Curated Datasets

DATAMIND — Health Data Research Hub for Mental Health (curated catalogue & TRE)

Generated 6 Oct 2026, 10:36 · ID 64

Unverified

Last verified: 16/04/2026

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

75

Total fields

41

Field-cited

0

Whole-record source only

7

AI-inferred, no source yet

22

Searched — not published

28

No value held

31

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

41 of 70 reviewable fields are cited to a source (59%) · 7 with no source yet · 22 searched — not published · 28 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

DATAMIND Curated DatasetsField-cited
  • DATAMIND — Home

    https://datamind.org.uk/

    Section: title

    “Home - Datamind”

    Page: https://datamind.org.uk/

Response for Short name
Full name

Required

DATAMIND — Health Data Research Hub for Mental Health (curated catalogue & TRE)Field-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: json-ld WebSite

    “The Health Data Research Hub for Mental Health”

    Page: https://datamind.org.uk/

Response for Full name
Managing organisation

Recommended

Medical Research Council / Swansea University (SAIL Databank partnership)Field-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: What We Do body

    “Funded by the Medical Research Council, DATAMIND serves as the Hub for Mental Health Informatics Research Development.”

    Page: https://datamind.org.uk/about-us/what-we-do/

  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: DATAMIND TRE welcome

    “Building on the world renowned SAIL Databank and powered by SeRP (Secure eResearch Platform) infrastructure”

    Page: https://datamind.org.uk/datamind-tre/

Response for Managing organisation
Primary site

Recommended

Swansea University (site #22)Field-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: DATAMIND TRE welcome

    “Building on the world renowned SAIL Databank”

    Page: https://datamind.org.uk/datamind-tre/

Response for Primary site
Website URL

Recommended

https://datamind.org.uk/Field-cited
Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no single named contact required on reviewed pages beyond generic enquiries email.

Response for Contact name
Contact email

Recommended

datamind@swansea.ac.ukField-cited
Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

DATAMIND is the MRC-funded UK Hub for Mental Health Informatics Research Development. It improves findability and secure use of UK mental health data via the HDR UK Innovation Gateway, curated resources, and the DATAMIND Trusted Research Environment (TRE) built on SAIL Databank and SeRP, where approved researchers can access, analyse, and link health and administrative data under governance.Field-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “We provide secure, easy access to mental health data through resources like the HDR UK Innovation Gateway and our own Trusted Research Environment (TRE). Improving access to NHS records, cohort studies, and digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Welcome paragraph

    “The DATAMIND Trusted Research Environment (TRE) is a secure, privacy-protecting digital platform designed to support cutting-edge research into mental health. It allows approved researchers to access, analyse, and link health and administrative data in a safeguarded setting”

    Page: https://datamind.org.uk/datamind-tre/

Response for Description
Total N

Required

No value heldField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Central Data Hub card

    “Securely unites anonymised, UK-wide FAIR mental health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Total N
Total N qualifier

Recommended

meta_resourceField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Central Data Hub card

    “Securely unites anonymised, UK-wide FAIR mental health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Total N qualifier
Year established

Recommended

No value heldField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: What We Do body

    “Funded by the Medical Research Council, DATAMIND serves as the Hub for Mental Health Informatics Research Development.”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Year established
Active cohort

Recommended

YesField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Mission

    “Our platform supports researchers and organisations across the UK, enabling coordinated, integrated, and innovative mental health research to improve lives.”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Active cohort
Ongoing recruitment

Recommended

NoField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Welcome paragraph

    “approved researchers to access, analyse, and link health and administrative data”

    Page: https://datamind.org.uk/datamind-tre/

Response for Ongoing recruitment
Refreshed cohort

Recommended

YesField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Deposit column

    “Your data goes straight into our TRE – safe, compliant, and research-ready”

    Page: https://datamind.org.uk/datamind-tre/

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not applicable to TRE infrastructure entity.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not applicable to TRE infrastructure entity.

Response for Retention rate

Published references

Recommended

No value heldNot published
Response for Published references
Notes

Recommended

Meta-resource/TRE catalogue rather than a single-recruitment cohort. TRE access explicitly includes mental health, NHS, and genomic datasets; linkage across health, education, social care, and research datasets is supported where approvals allow. Public contact listed on DATAMIND pages: datamind@swansea.ac.uk. Operational partnership with Swansea University reflects SAIL/SeRP hosting; MHG Programme DATA workstream alignment noted in programme documentation.Field-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Learn More / contact

    “datamind@swansea.ac.uk”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

2 — Section 251 / CAG (pseudonymised, no individual consent)Field-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Welcome paragraph

    “It allows approved researchers to access, analyse, and link health and administrative data in a safeguarded setting – without compromising public trust or data security.”

    Page: https://datamind.org.uk/datamind-tre/

Response for Consent level (axis)
Characterisation depth (axis)

Required

1 — Routine EHRField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: SMI report bullet

    “availability and quality of electronic health record (EHR) data across the UK”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Characterisation depth (axis)
Data availability (axis)

Required

3 — Adds biological specimens/molecular dataField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: WANT TO ACCESS OUR DATA?

    “Trusted & Transparent – Secure access to mental health, NHS, genomic datasets & more”

    Page: https://datamind.org.uk/datamind-tre/

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 4Internal

Internal catalogue field

——
Population type

Recommended

Data resourceNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Our Purpose

    “Provide a secure, governed space for analysing anonymised data at scale.”

    Page: https://datamind.org.uk/datamind-tre/

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “Improving access to NHS records, cohort studies, and digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Driving Innovation

    “We support AI-driven research, including Natural Language Processing (NLP), to extract insights from electronic health records (EHRs) and other mental health datasets.”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Cognitive testing
Physical measures

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: SMI report bullet

    “connections between physical and mental health”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Physical measures
Biosamples

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “NHS records, cohort studies, and digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Biosamples
Genomic data

Recommended

YesField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: WANT TO ACCESS OUR DATA?

    “Secure access to mental health, NHS, genomic datasets & more”

    Page: https://datamind.org.uk/datamind-tre/

Response for Genomic data
Omics

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Driving Innovation

    “By integrating AI, genomics, and big data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Omics
Imaging

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “NHS records, cohort studies, and digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Imaging
Wearable / sensor

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Digital phenotyping
Linked health records

Recommended

YesField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Why the DATAMIND TRE Matters

    “Federated & Linkable: Supports linkage across health, education, social care, and research datasets.”

    Page: https://datamind.org.uk/datamind-tre/

Response for Linked health records
Biosample types

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE / FALSE implied at platform row level.

Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: genomic access referenced but no single platform named for the Hub row.

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no imaging archive named for the Hub row.

Response for Imaging modalities
Mental health measures

Recommended

Routine NHS and mental health electronic health records (diagnoses, encounters, prescribing), NLP and coded phenotyping from EHR text (programme emphasis on AI/NLP methods), Cohort and research study data deposited for federated analysis in the TREField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Driving Innovation

    “Natural Language Processing (NLP), to extract insights from electronic health records (EHRs) and other mental health datasets.”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “Improving access to NHS records, cohort studies, and digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for NHS linkage
GP linkage

Recommended

YesField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: Better Use of Mental Health Data

    “Improving access to NHS records, cohort studies, and digital health data”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for GP linkage
Death registry linkage

Recommended

NoNot published
Response for Death registry linkage
Education linkage

Recommended

YesField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Why the DATAMIND TRE Matters

    “Supports linkage across health, education, social care, and research datasets.”

    Page: https://datamind.org.uk/datamind-tre/

Response for Education linkage
Data access mechanism

Recommended

treField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Guide lede

    “how the DATAMIND Trusted Research Environment (TRE) works for data providers”

    Page: https://datamind.org.uk/tre-data-providers-guide/

Response for Data access mechanism
TRE platform

Recommended

DATAMIND TRE (SAIL Databank / SeRP-hosted Trusted Research Environment)Field-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: DATAMIND TRE welcome

    “Building on the world renowned SAIL Databank and powered by SeRP (Secure eResearch Platform) infrastructure”

    Page: https://datamind.org.uk/datamind-tre/

Response for TRE platform
Data dictionary URL

Recommended

https://datamind.org.uk/datamind-glossary/Field-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: LEAG bullet

    “Shaping the DATAMIND Glossary”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: project timelines not expressed as a single days integer on reviewed pages.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public fee schedule in captured pages.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no Table 1 JSON for the meta-resource row in captured files.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: as age_distribution.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: as age_distribution.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: Why the DATAMIND TRE Matters

    “A UK-wide initiative providing consistency and reach”

    Page: https://datamind.org.uk/datamind-tre/

Response for Geographic coverage
Follow-up duration

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not a single longitudinal cohort.

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: rolling deposits and federated datasets.

Response for Last data collection date
Recruitment start date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not a recruiting cohort.

Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not a recruiting cohort.

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Schizophrenia

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Schizophrenia · Psychotic DisordersField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: We focus on

    “severe mental illness (SMI)”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Diagnosis area: Schizophrenia
Diagnosis area: Bipolar disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Bipolar disorder · Mood DisordersField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: We focus on

    “severe mental illness (SMI)”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Diagnosis area: Bipolar disorder
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood DisordersField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: How We’re Making a Difference

    “mental health conditions”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Diagnosis area: Major depressive disorder
Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety DisordersField-cited
  • DATAMIND — About Us / What We Do

    https://datamind.org.uk/about-us/what-we-do/

    Section: How We’re Making a Difference

    “mental health conditions”

    Page: https://datamind.org.uk/about-us/what-we-do/

Response for Diagnosis area: Generalised anxiety disorder

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked site: Swansea University

Recommended

Swansea University · WalesField-cited
  • DATAMIND — Trusted Research Environment (TRE) overview

    https://datamind.org.uk/datamind-tre/

    Section: DATAMIND TRE welcome

    “Building on the world renowned SAIL Databank and powered by SeRP (Secure eResearch Platform) infrastructure”

    Page: https://datamind.org.uk/datamind-tre/

Response for Linked site: Swansea University

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

16 Apr 2026Internal

Internal catalogue field

——
Data source

Recommended

Verified Apr 2026 from datamind.org.uk (home, About Us / What We Do, DATAMIND TRE overview, Guide to DATAMIND TRE for data providers), ClinicalTrials.gov API (DATAMIND query), ISRCTN API (DATAMIND query), DIGIT docs/data-dictionary.md and docs/data-population-plan.md in-repo snapshots. HDR UK Innovation Gateway dataset API was not successfully queried in this environment (HTTP error); logged in entity_sources.Internal

Internal catalogue field

——