Cohort validation pack
DATAMIND Curated Datasets
DATAMIND — Health Data Research Hub for Mental Health (curated catalogue & TRE)
Generated 6 Oct 2026, 10:36 · ID 64
Last verified: 16/04/2026
Instructions for reviewers
- Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
- Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
- Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.
Overview
75
Total fields
41
Field-cited
0
Whole-record source only
7
AI-inferred, no source yet
22
Searched — not published
28
No value held
31
Needs review
Source coverage
Summary of how well fields in this pack are linked to evidence.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Field-level source coverage Optional | 41 of 70 reviewable fields are cited to a source (59%) · 7 with no source yet · 22 searched — not published · 28 with no value held | Computed | No citation linked to this field yet. | No response selected | No notes |
Identity and ownership
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Short name Required | DATAMIND Curated Datasets | Field-cited |
| No response selected | No notes |
Full name Required | DATAMIND — Health Data Research Hub for Mental Health (curated catalogue & TRE) | Field-cited |
| No response selected | No notes |
Managing organisation Recommended | Medical Research Council / Swansea University (SAIL Databank partnership) | Field-cited |
| No response selected | No notes |
Primary site Recommended | Swansea University (site #22) | Field-cited |
| No response selected | No notes |
Website URL Recommended | https://datamind.org.uk/ | Field-cited |
| No response selected | No notes |
Catalogue of Mental Health Measures URL Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Contact name Recommended | No value held | Not published |
| No response selected | No notes |
Contact email Recommended | datamind@swansea.ac.uk | Field-cited |
| No response selected | No notes |
Summary and status
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Description Required | DATAMIND is the MRC-funded UK Hub for Mental Health Informatics Research Development. It improves findability and secure use of UK mental health data via the HDR UK Innovation Gateway, curated resources, and the DATAMIND Trusted Research Environment (TRE) built on SAIL Databank and SeRP, where approved researchers can access, analyse, and link health and administrative data under governance. | Field-cited |
| No response selected | No notes |
Total N Required | No value held | Field-cited |
| No response selected | No notes |
Total N qualifier Recommended | meta_resource | Field-cited |
| No response selected | No notes |
Year established Recommended | No value held | Field-cited |
| No response selected | No notes |
Active cohort Recommended | Yes | Field-cited |
| No response selected | No notes |
Ongoing recruitment Recommended | No | Field-cited |
| No response selected | No notes |
Refreshed cohort Recommended | Yes | Field-cited |
| No response selected | No notes |
Recontact success rate Recommended | No value held | Not published |
| No response selected | No notes |
Retention rate Recommended | No value held | Not published |
| No response selected | No notes |
Published references Recommended | No value held | Not published |
| No response selected | No notes |
Notes Recommended | Meta-resource/TRE catalogue rather than a single-recruitment cohort. TRE access explicitly includes mental health, NHS, and genomic datasets; linkage across health, education, social care, and research datasets is supported where approvals allow. Public contact listed on DATAMIND pages: datamind@swansea.ac.uk. Operational partnership with Swansea University reflects SAIL/SeRP hosting; MHG Programme DATA workstream alignment noted in programme documentation. | Field-cited |
| No response selected | No notes |
3D cohort mapping
Consent, characterisation, and data availability axes used on the cohort map.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent level (axis) Required | 2 — Section 251 / CAG (pseudonymised, no individual consent) | Field-cited |
| No response selected | No notes |
Characterisation depth (axis) Required | 1 — Routine EHR | Field-cited |
| No response selected | No notes |
Data availability (axis) Required | 3 — Adds biological specimens/molecular data | Field-cited |
| No response selected | No notes |
Cohort map group (derived) Recommended | Group 4 | Internal | Internal catalogue field | — | — |
Population type Recommended | Data resource | Not published |
| No response selected | No notes |
Industry engagement status Recommended | Unknown | Not published |
| No response selected | No notes |
Parent cohort / programme Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
TWiCs eligible Recommended | No | Field-cited |
| No response selected | No notes |
Data modalities
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Questionnaire / interview Recommended | No | Field-cited |
| No response selected | No notes |
Cognitive testing Recommended | No | Field-cited |
| No response selected | No notes |
Physical measures Recommended | No | Field-cited |
| No response selected | No notes |
Biosamples Recommended | No | Field-cited |
| No response selected | No notes |
Genomic data Recommended | Yes | Field-cited |
| No response selected | No notes |
Omics Recommended | No | Field-cited |
| No response selected | No notes |
Imaging Recommended | No | Field-cited |
| No response selected | No notes |
Wearable / sensor Recommended | No | Field-cited |
| No response selected | No notes |
Digital phenotyping Recommended | No | Field-cited |
| No response selected | No notes |
Linked health records Recommended | Yes | Field-cited |
| No response selected | No notes |
Biosample types Recommended | No value held | Not published |
| No response selected | No notes |
Genotyping platform Recommended | No value held | Not published |
| No response selected | No notes |
Imaging modalities Recommended | No value held | Not published |
| No response selected | No notes |
Mental health measures Recommended | Routine NHS and mental health electronic health records (diagnoses, encounters, prescribing), NLP and coded phenotyping from EHR text (programme emphasis on AI/NLP methods), Cohort and research study data deposited for federated analysis in the TRE | Field-cited |
| No response selected | No notes |
Data subcategories
Structured modality and subcategory rows used alongside the high-level data-type flags.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Consent and use permissions
Specific use permissions separate from the 3D consent-level axis.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Access pathways
One or more routes by which researchers can request or analyse data.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Within-cohort coverage
Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Linkage and access
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
NHS linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
GP linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
Death registry linkage Recommended | No | Not published |
| No response selected | No notes |
Education linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
Data access mechanism Recommended | tre | Field-cited |
| No response selected | No notes |
TRE platform Recommended | DATAMIND TRE (SAIL Databank / SeRP-hosted Trusted Research Environment) | Field-cited |
| No response selected | No notes |
Data dictionary URL Recommended | https://datamind.org.uk/datamind-glossary/ | Field-cited |
| No response selected | No notes |
Data access timeline (days) Recommended | No value held | Not published |
| No response selected | No notes |
Data access cost Recommended | No value held | Not published |
| No response selected | No notes |
Participant profile and dates
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Age distribution Recommended | No value held | Not published |
| No response selected | No notes |
Sex distribution Recommended | No value held | Not published |
| No response selected | No notes |
Ethnicity distribution Recommended | No value held | Not published |
| No response selected | No notes |
Smoking status distribution Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Median age Recommended | No value held | Not published |
| No response selected | No notes |
Percent female Recommended | No value held | Not published |
| No response selected | No notes |
Percent non-white Recommended | No value held | Not published |
| No response selected | No notes |
Geographic coverage Recommended | national | Field-cited |
| No response selected | No notes |
Follow-up duration Recommended | No value held | Not published |
| No response selected | No notes |
Last data collection date Recommended | No value held | Not published |
| No response selected | No notes |
Recruitment start date Recommended | No value held | Not published |
| No response selected | No notes |
Recruitment end date Recommended | No value held | Not published |
| No response selected | No notes |
Diagnosis areas
Mental health diagnosis areas represented in this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown. | Schizophrenia · Psychotic Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: Bipolar disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Bipolar disorder · Mood Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Major depressive disorder · Mood Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Generalised anxiety disorder · Anxiety Disorders | Field-cited |
| No response selected | No notes |
Linked sites
Sites contributing participants or data to this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Linked site: Swansea University Recommended | Swansea University · Wales | Field-cited |
| No response selected | No notes |
Verification metadata
Internal catalogue status — for reference only.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Verification status Recommended | unverified | Internal | Internal catalogue field | — | — |
Last verified Recommended | 16 Apr 2026 | Internal | Internal catalogue field | — | — |
Data source Recommended | Verified Apr 2026 from datamind.org.uk (home, About Us / What We Do, DATAMIND TRE overview, Guide to DATAMIND TRE for data providers), ClinicalTrials.gov API (DATAMIND query), ISRCTN API (DATAMIND query), DIGIT docs/data-dictionary.md and docs/data-population-plan.md in-repo snapshots. HDR UK Innovation Gateway dataset API was not successfully queried in this environment (HTTP error); logged in entity_sources. | Internal | Internal catalogue field | — | — |