Cohort validation pack

McPin Foundation Research

McPin Foundation Lived Experience Research

Generated 6 Oct 2026, 10:37 · ID 62

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	35 of 71 reviewable fields are cited to a source (49%) · 8 with no source yet · 28 searched — not published · 34 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	McPin Foundation Research	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home body “The McPin Foundation is a mental health research charity.” Page: https://mcpin.org/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	McPin Foundation Lived Experience Research	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Meta description “The McPin Foundation exists to transform mental health research by putting the lived experience of people affected by mental health issues at its heart.” Page: https://mcpin.org/ full_name kept as a DIGIT display label for the lived-experience research portfolio (not a separate registered legal name).	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	McPin Foundation	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Charity overview “THE MCPIN FOUNDATION” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	No value held	Not published	primary_site_id=NULL: McPin operates as a UK charity-led lived-experience research and involvement portfolio without a single primary recruiting site in the DIGIT sites table; no McPin HQ/clinic was mapped to a site_id during verification.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://mcpin.org/	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Canonical “https://mcpin.org/” Page: https://mcpin.org/	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as single cohort contact: Charity contact exists but DIGIT cohort contact_name not populated from Commission extract in this pass.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Public email appears on Charity Commission page but not re-verified verbatim into PII field in this seed pass.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	The McPin Foundation is a UK mental health research charity that runs and partners on participatory and lived-experience-informed studies. It hosts involvement networks and sign-up routes for people with lived experience of mental health conditions to shape or take part in research (including surveys and interviews).	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home body “The McPin Foundation is a mental health research charity. We believe research is done best when it involves people with relevant personal experience that relates to the research being carried out.” Page: https://mcpin.org/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE: No single public cumulative participant count for the whole McPin portfolio (networks + multiple studies). Searched: Charity Commission activities narrative, mcpin.org home and involvement pages, ClinicalTrials.gov collaborator listing (not a cohort N). Removed prior approximate figure.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: total_n is NULL; no public qualifier text applies.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2006	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Registration history “20 December 2006: Standard registration” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print year_established uses calendar year of charity standard registration (2006).	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Charity overview “Charity reporting is up to date (on time)” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Interpreted as organisation still operating and reporting; aligns with ongoing website updates in 2026.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	Yes	Field-cited	The McPin Foundation — Get involved https://mcpin.org/get-involved/ Section: Get involved “sign up to our involvement networks” Page: https://mcpin.org/get-involved/	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: DIGIT cohort definition “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ is_refreshed=FALSE: McPin is not a single longitudinal cohort with defined repeat assessment waves; it is a charity portfolio and involvement networks (different from refreshed deep phenotyping cohorts).	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No published recontact response rate for involvement networks.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single portfolio retention statistic published.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as array: No single canonical cohort profile DOI for the whole McPin portfolio. Searched: Google Scholar style query for McPin cohort profile (no dedicated profile paper identified in this pass).	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	DIGIT models McPin as a Group 3 lived-experience research and participation resource: broad/recontact-style consent for involvement and study participation, questionnaire-led characterisation across projects, but not a single harmonised cohort archive with one published N.	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: DIGIT modelling note “We call this lived experience and integrate this into our work.” Page: https://mcpin.org/ notes field summarises how DIGIT represents McPin as a Group 3 lived-experience portfolio (see cohort row).	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	The McPin Foundation — McPin Involvement Network https://mcpin.org/projects-programmes/mcpin-involvement-network/ Section: What does involvement mean? “Participation means individuals consent to formally take part in the research, by answering interview questions or filling out surveys, for example.” Page: https://mcpin.org/projects-programmes/mcpin-involvement-network/ Decision tree: identifiable individuals YES (participants/members); not S251 NHS record access; recontactable via involvement networks/opportunities YES; no evidence of blanket pre-consent to randomised interventional trials across the portfolio -> Level 3 (broad/recontact-style consent for research participation and involvement).	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	2 — Standardised MH instruments	Field-cited	The McPin Foundation — McPin Involvement Network https://mcpin.org/projects-programmes/mcpin-involvement-network/ Section: Participation vs involvement “Participation means individuals consent to formally take part in the research, by answering interview questions or filling out surveys, for example.” Page: https://mcpin.org/projects-programmes/mcpin-involvement-network/ Characterisation tree: research participation uses interviews/surveys (validated instruments may be used per study) but portfolio is not defined by research-grade diagnostic interviews + multi-domain deep phenotyping for all members -> Level 2.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	2 — Records + research data	Field-cited	The McPin Foundation — McPin Involvement Network https://mcpin.org/projects-programmes/mcpin-involvement-network/ Section: Flag derivation “filling out surveys” Page: https://mcpin.org/projects-programmes/mcpin-involvement-network/ DERIVED: has_questionnaire_data=TRUE and all other modality flags FALSE -> hasResearch=TRUE -> data_availability=2 per data-dictionary derivation rule.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 3	Internal	Internal catalogue field	—	—
Population type Recommended	Network / umbrella	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified network_umbrella in the DIGIT cohort portfolio review (Aug 2026). Research charity running involvement and recruitment networks — a network entity, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	The McPin Foundation — McPin Involvement Network https://mcpin.org/projects-programmes/mcpin-involvement-network/ Section: Participation definition “Participation means individuals consent to formally take part in the research, by answering interview questions or filling out surveys, for example.” Page: https://mcpin.org/projects-programmes/mcpin-involvement-network/ FALSE: consent_level is not 4 and no TWiCs infrastructure described for the portfolio entity.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	The McPin Foundation — McPin Involvement Network https://mcpin.org/projects-programmes/mcpin-involvement-network/ Section: Participation definition “Participation means individuals consent to formally take part in the research, by answering interview questions or filling out surveys, for example.” Page: https://mcpin.org/projects-programmes/mcpin-involvement-network/ TRUE per data-dictionary: structured surveys are part of formal research participation across McPin-linked studies.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: no public statement that McPin holds a harmonised archive of research-grade cognitive test batteries across the portfolio.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: portfolio characterised as lived-experience research and involvement; no programme-wide objective physical phenotyping archive described.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: McPin is not described as operating a central biobank accessible as part of this DIGIT cohort record.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: no cohort-wide genomics archive for McPin portfolio stated on primary pages.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: no programme-wide omics data layer described for this resource record.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: no imaging archive described for the McPin portfolio entity.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: no wearable sensor archive described for this entity.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Home “Delivering high-quality mental health research and evaluations that use collaborative methods” Page: https://mcpin.org/ FALSE: no passive digital phenotyping data stream described for the portfolio entity.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Activities “We deliver research in collaboration with partners, we provide patient and public involvement in mental health research studies” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print FALSE per data-dictionary nuance: McPin is not an NHS record resource linked to HES/GP for a unified cohort archive; partner studies may link separately.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL aligns with has_biosamples=FALSE.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL aligns with has_genomic_data=FALSE.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL aligns with has_imaging_data=FALSE.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Instruments vary by study; no canonical named-instrument list published for the whole portfolio on primary pages.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	No	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Activities “We deliver research in collaboration with partners” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print FALSE: entity record is not an NHS-linked research archive.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Activities “We deliver research in collaboration with partners” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print FALSE: not a GP-linked cohort archive entity.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Activities “We deliver research in collaboration with partners” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print FALSE: not described as a death-registry-linked resource.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Activities “We deliver research in collaboration with partners” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print FALSE: not described as education-linked.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	collaboration	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Work with us “Looking for a mental health research partner with expertise in peer research? We can help with training, public involvement work, hosting and more.” Page: https://mcpin.org/work-with-us/ collaboration: access is via partnering/commissioning with McPin rather than a single open TRE download.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No TRE named for a unified McPin archive.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single public data dictionary URL for McPin portfolio.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single data-access timeline for the portfolio.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No standardised public cost schedule for McPin-as-cohort.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public aggregate age distribution for the involvement/participation portfolio.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public aggregate sex distribution for the portfolio.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public aggregate ethnicity distribution for the portfolio.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public median age for the portfolio.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public sex split for the portfolio.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public ethnicity split for the portfolio.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	Charity Commission — THE MCPIN FOUNDATION (1117336) full print https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print Section: Where the charity operates “Throughout England” Page: https://register-of-charities.charitycommission.gov.uk/en/charity-search/-/charity-details/4028270/full-print geographic_coverage=national: Charity Commission lists England-wide operation; data-dictionary treats a constituent nation as national coverage.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Portfolio has heterogeneous study durations.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single last collection date for the portfolio.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not a single-cohort recruitment window; charity registration date captured in year_established only.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Ongoing involvement/participation routes.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Projects teaser “how virtual reality can help with psychosis” Page: https://mcpin.org/ Schizophrenia/psychotic disorders area supported by psychosis-focused research themes.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: First-episode psychosis Recommended Confirm this diagnosis area applies and estimated N if shown.	First-episode psychosis · Psychotic Disorders	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: News card “PsyMetRiC, one of the first risk prediction tools specifically for psychosis in young people” Page: https://mcpin.org/ First-episode / youth psychosis focus.	Response for Diagnosis area: First-episode psychosisAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Bipolar disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Bipolar disorder · Mood Disorders	Field-cited	ClinicalTrials.gov — NCT06687694 (JSON export) https://clinicaltrials.gov/study/NCT06687694 Section: conditionsModule keywords “Bipolar affective disorder” Page: https://clinicaltrials.gov/study/NCT06687694 McPin is named collaborator on NCT06687694; condition keywords include bipolar affective disorder -> cohort_diagnosis_areas includes diagnosis_area_id=4 (Bipolar disorder).	Response for Diagnosis area: Bipolar disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	The McPin Foundation — Official Website https://mcpin.org/ Section: Get involved “people with lived experience of mental health issues” Page: https://mcpin.org/get-involved/ Depressive disorders are core to general lived-experience mental health involvement population.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	ISRCTN XML API — McPin Foundation query snapshot https://www.isrctn.com/api/query/format/default?q=McPin%20Foundation&limit=50 Section: plainEnglishSummary “Depression and anxiety are common mental health problems” Page: https://www.isrctn.com/api/query/format/default?q=McPin%20Foundation&limit=50 ISRCTN hit (PLANS) documents McPin Head of Research and Involvement as PPI co-applicant; summary centres depression/anxiety in NHS Talking Therapies -> anxiety/depression-related coverage includes diagnosis_area_id=8 (Generalised anxiety disorder) alongside id=5.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from mcpin.org (home, get involved, McPin Involvement Network), Charity Commission for England and Wales charity 1117336 (full print), ClinicalTrials.gov API v2 (NCT06687694 JSON), ISRCTN XML API (McPin Foundation query), DIGIT data-population-plan.md §3.3 (Group 3 list). No standard cohort profile paper located (Google Scholar). HDR UK Gateway search UI did not return machine-readable dataset hits for McPin in this pass; DPUK site checked — no McPin cohort directory entry found.	Internal	Internal catalogue field	—	—