Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
All validation packs

Cohort validation pack

NCMH

National Centre for Mental Health

Generated 6 Oct 2026, 10:36 · ID 6

AI inferred

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

77

Total fields

40

Field-cited

0

Whole-record source only

7

AI-inferred, no source yet

25

Searched — not published

28

No value held

32

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

40 of 72 reviewable fields are cited to a source (56%) · 7 with no source yet · 25 searched — not published · 28 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

NCMHField-cited
Response for Short name
Full name

Required

National Centre for Mental HealthField-cited
Response for Full name
Managing organisation

Recommended

Cardiff University / Swansea University / Bangor UniversityField-cited
Response for Managing organisation
Primary site

Recommended

National Centre for Mental Health (site #15)Not published
  • Searched — not published

    UNSOURCEABLE externally: mapped to site id 15 to represent the NCMH lead entity, but public sources do not expose DIGIT internal site IDs.

Response for Primary site
Website URL

Recommended

https://www.ncmh.info/Field-cited
  • National Centre for Mental Health (NCMH)

    https://www.ncmh.info/

    Section: Homepage URL

    “https://www.ncmh.info/”

    Page: https://www.ncmh.info/

Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

Prof Ian JonesField-cited
Response for Contact name
Contact email

Recommended

jonesIR1@cardiff.ac.ukField-cited
Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

Pan-Wales mental health research cohort operated by Cardiff, Swansea, and Bangor Universities. The cohort collects questionnaire and interview data, biological samples, and linked routine NHS data, and supports recontact for additional studies.Field-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Our research

    “we use a variety of techniques to investigate how these areas overlap and interact”

    Page: https://www.ncmh.info/about-us/

Response for Description
Total N

Required

25,000Field-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Take part

    “More than 25,000 people have taken part in our main study”

    Page: https://www.ncmh.info/about-us/

Response for Total N
Total N qualifier

Recommended

approximateField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Take part

    “More than 25,000 people have taken part”

    Page: https://www.ncmh.info/about-us/

Response for Total N qualifier
Year established

Recommended

2011Field-cited
Response for Year established
Active cohort

Recommended

YesField-cited
Response for Active cohort
Ongoing recruitment

Recommended

YesField-cited
Response for Ongoing recruitment
Refreshed cohort

Recommended

YesField-cited
  • NCMH — Take part in mental health research

    https://www.ncmh.info/take-part

    Section: FAQs

    “We will contact you every 6-12 months”

    Page: https://www.ncmh.info/take-part

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public recontact response percentage found.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public retention percentage found.

Response for Retention rate

Published references

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: existing DOI 10.12688/wellcomeopenres.17935.2 returns 404 on resolution check; no validated replacement cohort profile DOI identified in public sources.

Response for Published references
Notes

Recommended

Main online study is open to adults aged 18+ and supports periodic recontact and participation in additional ethically approved studies.Field-cited
  • NCMH — Take part in mental health research

    https://www.ncmh.info/take-part

    Section: Study invitation

    “You must be at least 18 years old to take part in this study online.”

    Page: https://www.ncmh.info/take-part

Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

3 — Broad consent (recontactable for future studies)Field-cited
  • NCMH — Take part in mental health research

    https://www.ncmh.info/take-part

    Section: About our study / FAQs

    “participation involves consenting to complete a Basic Assessment to join the cohort”

    Page: https://www.ncmh.info/take-part

Response for Consent level (axis)
Characterisation depth (axis)

Required

3 — Multi-domain MH characterisationField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Our research

    “We use interview and questionnaire-based assessments”

    Page: https://www.ncmh.info/about-us/

Response for Characterisation depth (axis)
Data availability (axis)

Required

3 — Adds biological specimens/molecular dataField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Derivation

    “Auto-derived from modality flags”

    Page: https://www.ncmh.info/about-us/

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 2Internal

Internal catalogue field

——
Population type

Recommended

Case-enrichedNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • NCMH — Take part in mental health research

    https://www.ncmh.info/take-part

    Section: Consent and study model

    “participation involves consenting to complete a Basic Assessment”

    Page: https://www.ncmh.info/take-part

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

YesField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Psychosocial research

    “We use interview and questionnaire-based assessments”

    Page: https://www.ncmh.info/about-us/

Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
  • Registry search log (HDRUK/DPUK/ClinicalTrials.gov/ISRCTN) — NCMH

    Page: https://www.ncmh.info/about-us/

Response for Cognitive testing
Physical measures

Recommended

NoField-cited
Response for Physical measures
Biosamples

Recommended

YesField-cited
Response for Biosamples
Genomic data

Recommended

YesField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: About us

    “from our environment and life experiences to our genetics and biological makeup”

    Page: https://www.ncmh.info/about-us/

Response for Genomic data
Omics

Recommended

NoField-cited
  • Registry search log (HDRUK/DPUK/ClinicalTrials.gov/ISRCTN) — NCMH

    Page: https://www.ncmh.info/about-us/

Response for Omics
Imaging

Recommended

NoField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: Neuroimaging research

    “Neuroimaging offers a powerful insight”

    Page: https://www.ncmh.info/about-us/

Response for Imaging
Wearable / sensor

Recommended

NoField-cited
  • Registry search log (HDRUK/DPUK/ClinicalTrials.gov/ISRCTN) — NCMH

    Page: https://www.ncmh.info/about-us/

Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
  • Registry search log (HDRUK/DPUK/ClinicalTrials.gov/ISRCTN) — NCMH

    Page: https://www.ncmh.info/about-us/

Response for Digital phenotyping
Linked health records

Recommended

YesField-cited
  • NCMH — Clinical Record Interactive Search (CRIS)

    https://www.ncmh.info/resources/cris/

    Section: Clinical Record Interactive Search (CRIS)

    “CRIS ... will allow data to be safely and securely extracted from the Health Board’s electronic mental health clinical record system”

    Page: https://www.ncmh.info/resources/cris/

Response for Linked health records
Biosample types

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: sources confirm biological samples but do not provide public type-level breakdown for this cohort record.

Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public platform-level genomics metadata found.

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no explicit cohort imaging modality list found.

Response for Imaging modalities
Mental health measures

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: public pages confirm questionnaire/interview assessment but do not publish a canonical instrument list for this cohort entry.

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
Response for NHS linkage
GP linkage

Recommended

NoNot published
  • Searched — not published

    UNSOURCEABLE: linkage described at NHS level, but GP-specific linkage not publicly stated.

Response for GP linkage
Death registry linkage

Recommended

NoNot published
  • Searched — not published

    UNSOURCEABLE: no explicit death-registry linkage statement found.

Response for Death registry linkage
Education linkage

Recommended

NoNot published
  • Searched — not published

    UNSOURCEABLE: no explicit education-data linkage statement found.

Response for Education linkage
Data access mechanism

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no explicit formal access mechanism statement (tre/direct/collaboration/open/commercial) found in searched sources.

Response for Data access mechanism
TRE platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no specific TRE platform declared for NCMH main cohort access.

Response for TRE platform
Data dictionary URL

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no dedicated NCMH public data dictionary URL found.

Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no published turnaround time found.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no published access fee schedule found.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public age-bin distribution found after searching NCMH public pages, HRA summary, Be Part of Research listing, and mandatory gateway/registry checks.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public sex distribution table found in searched sources.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public ethnicity distribution table found in searched sources.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public median age found.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no verifiable public percentage female value found in searched sources.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public non-white percentage found.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
  • NCMH — Take part in mental health research

    https://www.ncmh.info/take-part

    Section: About our study

    “wherever you live”

    Page: https://www.ncmh.info/take-part

Response for Geographic coverage
Follow-up duration

Recommended

at least 15 yearsField-cited
  • NCMH — Take part in mental health research

    https://www.ncmh.info/take-part

    Section: FAQs

    “stored for use on a long term basis (at least 15 years)”

    Page: https://www.ncmh.info/take-part

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no explicit latest collection date found.

Response for Last data collection date
Recruitment start date

Recommended

9 Jan 2012Field-cited
Response for Recruitment start date
Recruitment end date

Recommended

31 Mar 2030Field-cited
Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Schizophrenia

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Schizophrenia · Psychotic DisordersField-cited
Response for Diagnosis area: Schizophrenia
Diagnosis area: Bipolar disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Bipolar disorder · Mood DisordersField-cited
Response for Diagnosis area: Bipolar disorder
Diagnosis area: PTSD

Recommended

Confirm this diagnosis area applies and estimated N if shown.

PTSD · Trauma-RelatedField-cited
Response for Diagnosis area: PTSD
Diagnosis area: Sleep disorders / insomnia

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Sleep disorders / insomnia · Sleep DisordersField-cited
Response for Diagnosis area: Sleep disorders / insomnia

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked site: National Centre for Mental Health

Recommended

National Centre for Mental Health · WalesField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: About us

    “brings together ... Cardiff, Swansea and Bangor Universities”

    Page: https://www.ncmh.info/about-us/

Response for Linked site: National Centre for Mental Health
Linked site: Swansea University

Recommended

Swansea University · WalesField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: About us

    “brings together world-leading researchers from Cardiff, Swansea and Bangor Universities”

    Page: https://www.ncmh.info/about-us/

Response for Linked site: Swansea University
Linked site: Bangor University

Recommended

Bangor University · WalesField-cited
  • NCMH — About us

    https://www.ncmh.info/about-us/

    Section: About us

    “brings together world-leading researchers from Cardiff, Swansea and Bangor Universities”

    Page: https://www.ncmh.info/about-us/

Response for Linked site: Bangor University

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

ai_inferredInternal

Internal catalogue field

——
Last verified

Recommended

No value heldInternal

Internal catalogue field

——
Data source

Recommended

No value heldInternal

Internal catalogue field

——