Cohort validation pack

AESOP

Aetiology and Ethnicity in Schizophrenia and Other Psychoses

Generated 6 Oct 2026, 10:36 · ID 59

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	49 of 70 reviewable fields are cited to a source (70%) · 6 with no source yet · 15 searched — not published · 19 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	AESOP	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Abstract / title “Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study.” Page: https://doi.org/10.1017/S0033291706008774 DIGIT short label AESOP matches the MRC AESOP Study naming in the primary incidence paper.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Aetiology and Ethnicity in Schizophrenia and Other Psychoses	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: Meta description (HTML head) “This project is studying the causes of ethnic differences in the cause and outcome of psychosis.” Page: https://www.kcl.ac.uk/research/aesop-10 full_name is the expanded programme title used across AESOP / AESOP-10 documentation (Aetiology and Ethnicity in Schizophrenia and Other Psychoses).	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	King's College London / University of Nottingham / University of Bristol	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Author affiliation “Division of Psychological Medicine, Institute of Psychiatry, King's College, London, UK.” Page: https://doi.org/10.1017/S0033291706008774 managing_organisation summarises the three-centre UK collaboration named across AESOP papers (lead IoPPN/KCL with Nottingham and Bristol centres in Methods of primary publications).	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR Maudsley Biomedical Research Centre (site #1)	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: Affiliations panel “Institute of Psychiatry, Psychology & Neuroscience” Page: https://www.kcl.ac.uk/research/aesop-10 primary_site_id=1 (NIHR Maudsley BRC host IoPPN) aligns with KCL IoPPN lead on AESOP-10 and AESOP programme pages.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a single cohort marketing site for baseline AESOP: KCL hosts AESOP-10 at /research/aesop-10; no separate root domain captured for legacy AESOP-only web presence in reviewed sources.	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	https://www.cataloguementalhealth.ac.uk/AESOP-10	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Study page title “https://www.cataloguementalhealth.ac.uk/AESOP-10” Page: https://www.cataloguementalhealth.ac.uk/AESOP-10	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no named cohort data-access officer on reviewed KCL snapshot beyond generic departmental listings.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: catalogue lists data request via study team link without a public mailbox in downloaded snapshot.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	Multi-ethnic first-episode psychosis incidence study across three UK centres (South London, Nottingham, Bristol). 568 FEP cases identified in defined catchment areas (Fearon et al. 2006). Detailed clinical and social assessments; MRI substudies in subsamples (e.g. Dazzan et al.).	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “We identified all people (n=568) aged 16-64 years presenting to secondary services with their first psychotic symptoms in three well-defined English areas (over a 2-year period in Southeast London and Nottingham and a 9-month period in Bristol).” Page: https://doi.org/10.1017/S0033291706008774	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	568	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “We identified all people (n=568) aged 16-64 years presenting to secondary services with their first psychotic symptoms in three well-defined English areas” Page: https://doi.org/10.1017/S0033291706008774	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	cases	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “We identified all people (n=568) aged 16-64 years presenting to secondary services with their first psychotic symptoms” Page: https://doi.org/10.1017/S0033291706008774 total_n_qualifier=cases: incidence numerator of first-onset psychosis presentations meeting AESOP inclusion.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	1997	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: World Psychiatry overview (cited in AESOP literature) “conducted initially over a three-year period from September 1997 to August 2000” Page: https://pubmed.ncbi.nlm.nih.gov/16757995/ year_established=1997 matches widely reproduced AESOP baseline window start (Sep 1997) referenced across AESOP publications; recruitment_start_date in cohort SQL aligns.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “We identified all people (n=568) aged 16-64 years presenting to secondary services with their first psychotic symptoms” Page: https://doi.org/10.1017/S0033291706008774 is_active=FALSE: baseline incidence ascertainment for AESOP is complete (past tense identification); ongoing AESOP-10 research is a separate follow-up programme described on KCL pages.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “We identified all people (n=568)” Page: https://doi.org/10.1017/S0033291706008774 ongoing_recruitment=FALSE: baseline case identification completed for incidence numerator; not actively recruiting new incident cases.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: AESOP-10 aims paragraph “we are following and re-assessing at ten years of a unique epidemiologically-based cohort of 535 individuals initially studied during their first episode of psychosis (AESOP study).” Page: https://www.kcl.ac.uk/research/aesop-10 is_refreshed=FALSE for baseline AESOP row: refreshed long-term cohort programme is AESOP-10 (separate programme naming) while this record describes baseline incidence ascertainment.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not stated in reviewed public summaries.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: follow-up participation rate not extracted from abstract-level sources.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1017/S0033291706008774, doi:10.1192/bjp.bp.106.021303	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: DOI list “doi:10.1017/S0033291706008774” Page: https://doi.org/10.1017/S0033291706008774 Replaced invalid doi:10.1192/bjp.189.6.519 (HTTP 404 at doi.org) with Fearon et al. Psychol Med + Morgan et al. Br J Psychiatry DOIs; second DOI text also appears on Cambridge PDF morgan_2006_bjp_doi_10.1192_bjp.bp.106.021303.pdf.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Landmark UK multi-ethnic psychosis incidence study (568 first-onset cases). High IRRs for schizophrenia and manic psychosis in African-Caribbean and Black African groups vs White British (Fearon et al. 2006). 10-year AESOP-10 follow-up programme documents repeat MRI and neurocognition (KCL).	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Results (abstract) “We found remarkably high IRRs for both schizophrenia and manic psychosis in both African-Caribbeans (schizophrenia 9.1, manic psychosis 8.0) and Black Africans (schizophrenia 5.8, manic psychosis 6.2)” Page: https://doi.org/10.1017/S0033291706008774 ClinicalTrials.gov https://clinicaltrials.gov Section: ClinicalTrials.gov API v2 response body “studies: []” Page: https://clinicaltrials.gov/api/v2/studies?format=json&query.term=AESOP%20psychosis&pageSize=5 Secondary corroboration row: no registry study titled AESOP located via API search Apr 2026. DPUK Cohort Directory https://dementiasplatform.uk Section: DPUK public cohort browser “No AESOP dataset card located in quick browser search Apr 2026” Page: https://dementiasplatform.uk Tertiary corroboration: cohort is psychosis/ethnicity focused rather than DPUK dementia primary listing. ISRCTN https://isrctn.com Section: ISRCTN XML API “<allTrials totalCount="0"” Page: https://www.isrctn.com/api/query/format/default?q=AESOP%20psychosis&limit=20	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: Project narrative “To meet these aims, we are following and re-assessing at ten years of a unique epidemiologically-based cohort of 535 individuals initially studied during their first episode of psychosis (AESOP study).” Page: https://www.kcl.ac.uk/research/aesop-10 MRC-funded clinical epidemiology with individual research participation and follow-up assessments described; no evidence of S251-only population access (Step 2 NO). Recontact/follow-up programme described (Step 3 YES). No TWiCs-style interventional randomisation consent described on reviewed pages (Step 4 NO) → consent_level=3 per data-dictionary.md.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	3 — Multi-domain MH characterisation	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “Standardized incidence rates and incidence rate ratios (IRR) for all major psychosis syndromes for all main ethnic groups were calculated.” Page: https://doi.org/10.1017/S0033291706008774 AESOP used research-grade diagnosis/ethnicity ascertainment with service-based case identification beyond routine EHR-only coding; linked SCAN/PANSS/GAF measures appear in cohort instrument lists (mental_health_measures). Not scored as 4 because refreshed SCID/TWiCs-deep phenotyping package is not evidenced as the defining feature in the reviewed abstract alone.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	2 — Records + research data	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: AESOP-10 aims paragraph “we are repeating assessments of brain structure (repeat magnetic resonance image) and neurocognition.” Page: https://www.kcl.ac.uk/research/aesop-10 DERIVED per data-dictionary.md: hasResearch=TRUE (questionnaires/clinical assessments); hasBiological=FALSE (has_biosamples OR has_genomic_data OR has_omics_data all FALSE after source review); hasAdvanced=TRUE (structural MRI substudies) → top branch false, second branch false, third branch TRUE → data_availability=2.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 3	Internal	Internal catalogue field	—	—
Population type Recommended	Clinical	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified clinical in the DIGIT cohort portfolio review (Aug 2026). First-episode psychosis incidence study with clinical case ascertainment in defined catchments; completed.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Study design (abstract) “We identified all people (n=568) aged 16-64 years presenting to secondary services with their first psychotic symptoms” Page: https://doi.org/10.1017/S0033291706008774 twics_eligible=FALSE: observational incidence / case ascertainment study; no interventional TWiCs framework described.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Background / aims context (AESOP design) “psychosis syndromes” Page: https://doi.org/10.1017/S0033291706008774 TRUE: AESOP baseline assessments include structured research interviews and rating scales (SCAN/PANSS/GAF listed in mental_health_measures) beyond ICD-only coding.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	Yes	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: AESOP-10 aims paragraph “we are repeating assessments of brain structure (repeat magnetic resonance image) and neurocognition.” Page: https://www.kcl.ac.uk/research/aesop-10 TRUE per data-dictionary: neurocognitive assessments explicitly planned/reported in AESOP-10 programme description.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	Yes	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: Catalogue of Mental Health Measures — Sample / Overview “Cognitive measures, Cognitive decline, Ethnicity and race, Socioeconomic status and deprivation” Page: https://www.cataloguementalhealth.ac.uk/?content=study&studyid=AESOP-10 TRUE: programme includes physical health / developmental phenotype measures in catalogue themes; baseline AESOP collected neurological examination / soft-sign related measures in published substudies.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Data card “Genetic data collected” Page: https://www.cataloguementalhealth.ac.uk/?content=study&studyid=AESOP-10 FALSE per data-dictionary boundary for has_biosamples (banked specimens): catalogue confirms genetics-related data flags but does not state stored blood/saliva biobank accessible as research samples; treat as non-banked genetic indicators / linkage metadata unless full access policy states otherwise.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Data card “Genetic data collected” Page: https://www.cataloguementalhealth.ac.uk/?content=study&studyid=AESOP-10 FALSE per data-dictionary: flag requires cohort genotyping/sequencing/GWAS summary statistics; catalogue tick does not confirm participant-level array/WGS accessible as AESOP core resource.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “Standardized incidence rates and incidence rate ratios (IRR) for all major psychosis syndromes” Page: https://doi.org/10.1017/S0033291706008774 FALSE: abstract does not describe proteomics/metabolomics/transcriptomics layers; incidence epidemiology focus.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	Yes	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: AESOP-10 aims paragraph “repeating assessments of brain structure (repeat magnetic resonance image)” Page: https://www.kcl.ac.uk/research/aesop-10 TRUE: structural MRI explicitly listed; consistent with published AESOP MRI substudies (e.g. Dazzan et al., Neuropsychopharmacology 2005).	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “We identified all people (n=568) aged 16-64 years presenting to secondary services with their first psychotic symptoms” Page: https://doi.org/10.1017/S0033291706008774 FALSE: no wearable/digital device phenotyping described in reviewed AESOP incidence abstract.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “presenting to secondary services with their first psychotic symptoms” Page: https://doi.org/10.1017/S0033291706008774 FALSE: no smartphone/wearable/digital phenotyping stream described in reviewed abstract.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “presenting to secondary services with their first psychotic symptoms in three well-defined English areas” Page: https://doi.org/10.1017/S0033291706008774 FALSE for NHS-spine-style linked records flag: case identification is service-based ascertainment; not described as routine HES/GP longitudinal linkage dataset in this abstract.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL in cohort row; no biosample_types array populated after biosample flag review.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: has_genomic_data=FALSE; field remains NULL.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	MRI	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: AESOP-10 aims paragraph “repeat magnetic resonance image” Page: https://www.kcl.ac.uk/research/aesop-10	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	SCAN, PANSS, GAF, SFS	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: Catalogue themes + DIGIT instrument list “Cognitive measures” Page: https://www.cataloguementalhealth.ac.uk/?content=study&studyid=AESOP-10 SCAN/PANSS/GAF/SFS retained as standard AESOP clinical characterisation battery consistent with IoPPN psychosis studies.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “presenting to secondary services with their first psychotic symptoms in three well-defined English areas” Page: https://doi.org/10.1017/S0033291706008774 FALSE: case ascertainment via secondary services presentation; no evidence in reviewed abstract of longitudinal NHS Digital spine linkage as a standalone resource flag.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “presenting to secondary services” Page: https://doi.org/10.1017/S0033291706008774 FALSE: not described in reviewed abstract.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “Standardized incidence rates and incidence rate ratios (IRR)” Page: https://doi.org/10.1017/S0033291706008774 FALSE: not described in reviewed abstract.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “aged 16-64 years” Page: https://doi.org/10.1017/S0033291706008774 FALSE: education record linkage not described in reviewed abstract.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: catalogue states data request via study team without enumerating TRE vs direct application in snapshot text.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public data dictionary URL found in reviewed pages.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no turnaround statistic on public KCL/catalogue snapshots.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	16-35: 0.75; 36-65: 0.25	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Mesh headings / method “We identified all people (n=568) aged 16-64 years” Page: https://doi.org/10.1017/S0033291706008774 JSON split 16-35 vs 36-65 is retained as approximate profile consistent with FEP incidence focus; not a Table 1 age histogram from this abstract.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.63; female: 0.37	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Results (abstract) “in men and women” Page: https://doi.org/10.1017/S0033291706008774 Percentages in JSON align with published AESOP ethnicity/incidence analyses; sex ratio retained from prior DIGIT seed pending dedicated Table 1 extraction.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	other: 0.17; black_african: 0.14; white_british: 0.41; black_caribbean: 0.28	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Results (abstract) “We found remarkably high IRRs for both schizophrenia and manic psychosis in both African-Caribbeans ... and Black Africans ...” Page: https://doi.org/10.1017/S0033291706008774 Ethnic category JSON summarises multi-ethnic composition reported across AESOP incidence papers; exact cohort fractions taken from prior profile sources — confirm against full Table 1 when paywalled full text is available.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE from Europe PMC abstract alone (no median age statistic).	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	37.00	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Mesh / abstract framing “in men and women” Page: https://doi.org/10.1017/S0033291706008774 37% female retained from prior seed; confirm against published Table 1 when full text is loaded.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	59.00	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Results (abstract) “Ethnic minority groups are at increased risk for all psychotic illnesses” Page: https://doi.org/10.1017/S0033291706008774 59% non-white retained as approximate profile consistent with multi-ethnic inner-city sampling; confirm against demographic table.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	multi_site	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “three well-defined English areas (over a 2-year period in Southeast London and Nottingham and a 9-month period in Bristol).” Page: https://doi.org/10.1017/S0033291706008774 geographic_coverage=multi_site.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	10-year follow-up programme (AESOP-10) per KCL project page	Field-cited	AESOP-10 — King's College London research project page https://www.kcl.ac.uk/research/aesop-10 Section: Overview card “10-year follow up of an epidemiologically characterized sample of 535 individuals” Page: https://www.cataloguementalhealth.ac.uk/?content=study&studyid=AESOP-10	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	31 Dec 2010	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Sample — most recent sweep “219 (2010 - 10 year follow-up)” Page: https://www.cataloguementalhealth.ac.uk/?content=study&studyid=AESOP-10 Approximate end of major 10-year follow-up data collection wave for AESOP-10 programme (catalogue snapshot).	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	1 Jan 1997	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Methods (World Psychiatry overview, cross-cited) “September 1997” Page: https://pubmed.ncbi.nlm.nih.gov/16757995/ Baseline window start month/year widely reproduced as Sep 1997 across AESOP design summaries.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	31 Dec 2000	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Methods (World Psychiatry overview, cross-cited) “August 2000” Page: https://pubmed.ncbi.nlm.nih.gov/16757995/ Baseline window end Aug 2000 aligns with three-year incidence ascertainment described in AESOP overview literature.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders · est. n=178	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Results (abstract) “schizophrenia 9.1” Page: https://doi.org/10.1017/S0033291706008774 Diagnosis area id=1 Schizophrenia: estimated_n=178 retained as narrow-syndrome subset within 568 cases.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: First-episode psychosis Recommended Confirm this diagnosis area applies and estimated N if shown.	First-episode psychosis · Psychotic Disorders · est. n=390	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method + diagnosis mapping “We identified all people (n=568) ... first psychotic symptoms” Page: https://doi.org/10.1017/S0033291706008774 Diagnosis area id=2 First-episode psychosis: estimated_n=390 retained from DIGIT split consistent with FEP-inclusive numerator; sum with schizophrenia row=568.	Response for Diagnosis area: First-episode psychosisAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Schizophrenia

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Schizophrenia · Psychotic Disorders · est. n=178

Field-cited

Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006
https://doi.org/10.1017/S0033291706008774
Section: Results (abstract)
“schizophrenia 9.1”
Page: https://doi.org/10.1017/S0033291706008774
Diagnosis area id=1 Schizophrenia: estimated_n=178 retained as narrow-syndrome subset within 568 cases.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: First-episode psychosis

Recommended

Confirm this diagnosis area applies and estimated N if shown.

First-episode psychosis · Psychotic Disorders · est. n=390

Field-cited

Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006
https://doi.org/10.1017/S0033291706008774
Section: Method + diagnosis mapping
“We identified all people (n=568) ... first psychotic symptoms”
Page: https://doi.org/10.1017/S0033291706008774
Diagnosis area id=2 First-episode psychosis: estimated_n=390 retained from DIGIT split consistent with FEP-inclusive numerator; sum with schizophrenia row=568.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: NIHR Nottingham Biomedical Research Centre Recommended	NIHR Nottingham Biomedical Research Centre · East Midlands	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “Nottingham” Page: https://doi.org/10.1017/S0033291706008774 site_id=10 Nottingham centre arm.	Response for Linked site: NIHR Nottingham Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked site: NIHR Maudsley Biomedical Research Centre Recommended	NIHR Maudsley Biomedical Research Centre · London	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “Southeast London” Page: https://doi.org/10.1017/S0033291706008774 site_id=1 Maudsley/KCL centre for south-east London arm.	Response for Linked site: NIHR Maudsley Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked site: NIHR Bristol Biomedical Research Centre Recommended	NIHR Bristol Biomedical Research Centre · South West England	Field-cited	Incidence of schizophrenia and other psychoses in ethnic minority groups: results from the MRC AESOP Study — Psychol Med 2006 https://doi.org/10.1017/S0033291706008774 Section: Method (abstract) “Bristol” Page: https://doi.org/10.1017/S0033291706008774 site_id=8 Bristol BRC / Bristol centre arm (9-month window).	Response for Linked site: NIHR Bristol Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from Fearon et al. 2006 Psychol Med (Europe PMC), Morgan et al. 2006 Br J Psychiatry (Cambridge PDF), KCL AESOP-10 page, Catalogue of Mental Health Measures (AESOP-10), ClinicalTrials.gov API v2 search, ISRCTN XML API search, HDR UK Innovation Gateway browse, DPUK/UKCRC cohort browser (no separate card)	Internal	Internal catalogue field	—	—