Cohort validation pack

1958 NCDS

1958 National Child Development Study

Generated 6 Oct 2026, 10:37 · ID 55

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	49 of 68 reviewable fields are cited to a source (72%) · 7 with no source yet · 12 searched — not published · 16 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	1958 NCDS	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: H1 “1958 National Child Development Study” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	1958 National Child Development Study	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Opening paragraph “The 1958 National Child Development Study (NCDS) is following the lives of an initial 17,415 people born in England, Scotland and Wales in a single week of 1958.” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	UCL Centre for Longitudinal Studies	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Schema.org “the Centre for Longitudinal Studies” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Displayed organisation name; cohort is operated by UCL Centre for Longitudinal Studies per site branding.	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a DIGIT sites.id: CLS is hosted at UCL but there is no dedicated CLS sites row; national cohort does not map to a single trial site. primary_site_id remains NULL.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Canonical “https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	https://www.cataloguementalhealth.ac.uk/NCDS	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Official sitemap study URL “https://www.cataloguementalhealth.ac.uk/NCDS” Page: https://www.cataloguementalhealth.ac.uk/NCDS	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no named individual on reviewed CLS footer (generic clsdata inbox only).	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	clsdata@ucl.ac.uk	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Footer “Email: clsdata@ucl.ac.uk” Page: https://cls.ucl.ac.uk/data-access-training/linked-data/	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	Birth cohort following 17,415 people born in England, Scotland and Wales in one week in March 1958 (Perinatal Mortality Survey). Eleven main sweeps of data collection to age 62 (age 68 sweep underway), covering physical and mental health, cognitive ability, and socioeconomic factors. Mental health measures include the Malaise Inventory and GHQ; genotyping and omics data derive mainly from the age 44 biomedical sweep and later waves.	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro + Sweeps “Data are available from 11 main sweeps of NCDS.” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Combined with opening paragraph on 17,415 births and tracking of physical and mental health and cognitive ability.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	17,415	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sample design “The birth sweep collected information about 17,415 babies” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	at_birth	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sample design “The birth sweep collected information about 17,415 babies – 98 per cent of all the births in Great Britain that week.” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ total_n_qualifier=at_birth per data-dictionary (birth cohort enumeration).	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	1958	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro “in a single week of 1958” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ year_established=1958 for birth cohort enumeration year.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sweeps grid “2026” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Age 68 sweep listed for 2026 → ongoing study maintenance.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Birth cohort logic “birth cohort study” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Recruitment closed after birth week; ongoing sweeps ≠ new recruitment → ongoing_recruitment=FALSE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	Yes	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sweeps “Data are available from 11 main sweeps of NCDS.” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Repeated sweeps re-assess participants over time → is_refreshed=TRUE per data-dictionary definition.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE from snapshots reviewed: CLS publishes sweep response guides; no single numeric recontact rate extracted Apr 2026.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE from snapshots reviewed: use CLS response/missingness documentation for sweep-specific retention.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1093/ije/dyi183	Field-cited	Power & Elliott — Cohort profile: 1958 British birth cohort (NCDS), Int J Epidemiol 2006 https://doi.org/10.1093/ije/dyi183 Section: ArticleTitle “Cohort profile: 1958 British birth cohort (National Child Development Study).” Page: https://pubmed.ncbi.nlm.nih.gov/16155052/	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Core ESRC-funded study hosted at CLS (UCL Social Research Institute). Survey and linked administrative data are accessed mainly via the UK Data Service; genetics and biological samples via CLS DAC / EGA as described on CLS pages. Participant site: https://ncds.info/ .	Field-cited	CLS — Data access https://cls.ucl.ac.uk/data-access-training/data-access/ Section: UK Data Service “Most CLS research data are publicly available through public repositories, primarily the UK Data Service.” Page: https://cls.ucl.ac.uk/data-access-training/data-access/	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Genetic QC narrative “Samples which could not be included (e.g. withdrawn consent) were removed” Page: https://cls-genetics.github.io/docs/NCDS.html Step1 identifiable participants under consent-based research governance. Step2 not S251-only administrative access. Step3 longitudinal sweeps and genetics participation imply ongoing consent to research use and recontact invitations. Step4 no cohort-wide specific interventional trial consent documented here → Level 3 per data-dictionary.md.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	3 — Multi-domain MH characterisation	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro paragraph “It has tracked topics such as physical and mental health, cognitive ability, social and economic status across the life course.” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Validated MH measures (e.g. Malaise, GHQ) and multi-domain assessments (cognitive, health, social) per CLS pages and CLS Genomics omics tables → Level 3; not Level 4 (no routine SCID/MINI cohort interview architecture).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	3 — Adds biological specimens/molecular data	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Data availability table + flags “Genetic (imputed TOPMed)” Page: https://cls-genetics.github.io/docs/NCDS.html DERIVED: hasResearch=TRUE (questionnaires, cognitive measures, linked admin data); hasBiological=TRUE (biosamples, genomics, DNA methylation/exome ⇒ omics); hasAdvanced=FALSE (no imaging/wearables/digital phenotyping flags). Formula → data availability level 3.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 2	Internal	Internal catalogue field	—	—
Population type Recommended	General population	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified general_population in the DIGIT cohort portfolio review (Aug 2026). National birth cohort following all births in one week of March 1958.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Consent inference “withdrawn consent” Page: https://cls-genetics.github.io/docs/NCDS.html TWiCs requires consent_level=4 per data-dictionary; NCDS operates as broad longitudinal consent → twics_eligible=FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro “tracked topics such as physical and mental health, cognitive ability, social and economic status” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	Yes	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro “cognitive ability” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	Yes	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro + biomedical sweep “physical and mental health” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Biomedical sweeps collect objective measures (e.g. blood at age 44/62) per CLS genetics pages.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	Yes	Field-cited	CLS — Genetic data and biological samples https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/ Section: Stored biological samples “blood (NCDS and BCS70)” Page: https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	Yes	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Opening “Cohort members were genotyped during the biomedical sweep (sweep 8, aged 44-45).” Page: https://cls-genetics.github.io/docs/NCDS.html	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	Yes	Field-cited	CLS — Genetic data and biological samples https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/ Section: NCDS table row “Genetic, exome, epigenetic, proteomic” Page: https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/ Epigenetic (DNA methylation) and proteomic data types listed for NCDS → TRUE per Group B omics definition.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Data availability table “Genetic (imputed TOPMed)” Page: https://cls-genetics.github.io/docs/NCDS.html No neuroimaging modality in NCDS genomics table; no imaging flag in CLS NCDS overview reviewed → FALSE.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Data availability table “Genetic (imputed TOPMed)” Page: https://cls-genetics.github.io/docs/NCDS.html No wearable sensor stream described in reviewed NCDS genomics documentation → FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Data availability table “Genetic (imputed TOPMed)” Page: https://cls-genetics.github.io/docs/NCDS.html No passive smartphone/sensor digital phenotyping stream described in reviewed NCDS genomics documentation → FALSE.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	Field-cited	CLS — Health data linkage https://cls.ucl.ac.uk/data-access-training/linked-data/health-data-linkage/ Section: NCDS — Hospital Episode Statistics “Hospital Episode Statistics” Page: https://cls.ucl.ac.uk/data-access-training/linked-data/health-data-linkage/	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	blood, lymphocyte	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: NCDS table “Blood (+lymphocytes), saliva” Page: https://cls.ucl.ac.uk/data-access-training/genetic-data-and-biological-samples/	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	Multiple arrays (e.g. Infinium HumanHap 550K v1.1/v3, Illumina 660-Quad, Affymetrix 6.0); imputed TOPMed/HRC release per CLS Genomics docs	Field-cited	CLS Genomics — NCDS documentation (GitHub) https://cls-genetics.github.io/docs/NCDS.html Section: Genotyping arrays used in the HRC QC’d data set “Infinium HumanHap 550K v1.1” Page: https://cls-genetics.github.io/docs/NCDS.html Multiple chips combined after QC; cohort SQL summarises key platforms.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL in database; no imaging modalities listed in reviewed NCDS genomics documentation.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	Malaise Inventory, GHQ-12	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Intro “mental health” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Cohort UPDATE lists Malaise Inventory and GHQ-12 as primary documented MH instruments; confirm sweep questionnaires in UKDS/CLS docs.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	CLS — Health data linkage https://cls.ucl.ac.uk/data-access-training/linked-data/health-data-linkage/ Section: NCDS — Hospital Episode Statistics “Hospital Episode Statistics” Page: https://cls.ucl.ac.uk/data-access-training/linked-data/health-data-linkage/ HES comprises NHS hospital administrative records.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Not published	Searched — not published UNSOURCEABLE as explicit TRUE: reviewed CLS health data linkage hub lists HES and mortality user guides for NCDS but does not name GP primary-care linkage in the excerpted headings; conservatively FALSE pending primary-care linkage guide review.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	Yes	Field-cited	CLS — Health data linkage https://cls.ucl.ac.uk/data-access-training/linked-data/health-data-linkage/ Section: NCDS — Mortality records “Mortality records” Page: https://cls.ucl.ac.uk/data-access-training/linked-data/health-data-linkage/	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	Yes	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Education data linkage “Find out about the education datasets we’ve linked to our studies, including information from the National Pupil Database.” Page: https://cls.ucl.ac.uk/data-access-training/linked-data/ CLS cohort studies (incl. NCDS) participate in the CLS education linkage programme where datasets exist and access is approved.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	direct_application	Field-cited	CLS — Data access https://cls.ucl.ac.uk/data-access-training/data-access/ Section: UK Data Service “Most CLS research data are publicly available through public repositories, primarily the UK Data Service.” Page: https://cls.ucl.ac.uk/data-access-training/data-access/ Researchers apply to UKDS/CLS DAC for datasets → direct_application.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	UK Data Service (Secure Lab / remote access); specialist genetics via EGA per CLS	Field-cited	CLS — Data access https://cls.ucl.ac.uk/data-access-training/data-access/ Section: UK Data Service “primarily the UK Data Service” Page: https://cls.ucl.ac.uk/data-access-training/data-access/ Genetics additionally distributed via EGA per CLS genetic page.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Canonical “https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ CLS study hub links to documentation and UK Data Service catalogue entries for datasets.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: UKDS/CLS processing times not captured in reviewed HTML snapshots.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: costs depend on UK Data Service project route; not fixed on reviewed CLS pages.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	current_age_68: 1	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sweeps timing “2026” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ DERIVED quick-filter JSON: single current_age band ~68 years in 2026 for surviving cohort members.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.51; female: 0.49	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sample design (augmented sample) “18,558 cohort members” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Approximately balanced sex split retained from prior seed; CLS sample design text does not restate male/female % on this page — audit_flag NEEDS-HUMAN for precise Table 1 percentages.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE on reviewed CLS pages (no ethnicity JSON in seed sources). Searched CLS NCDS homepage HTML snapshot Apr 2026.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	68.0	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sweeps grid “2026” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Approximate median age of surviving participants ~68 years in 2026.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	49.00	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sex balance “female” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Seed value 49% approximate; confirm against cohort profile Table 1 when paywalled full text available.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE from free CLS pages reviewed; ethnicity JSON NULL.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Opening paragraph “born in England, Scotland and Wales” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Great Britain birth week → geographic_coverage national (UK-wide relevance; Northern Ireland not in birth sweep text).	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	68+ years (1958–present)	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Sweeps “1965” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Follow-up from 1958 birth to latest sweeps (2020s) → 68+ years.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	31 Dec 2024	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Age 62 sweep “carried out in 2020-24 when participants were aged 61-65 years” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ncds-age-62-sweep/ Conservative upper bound 2024-12-31 for latest major sweep wave cited on CLS.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	3 Mar 1958	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Recruitment window “one particular week of March 1958” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Uses seed dates 1958-03-03 to 1958-03-09 for March birth week (PMS enumeration).	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	9 Mar 1958	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Recruitment window “one particular week of March 1958” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Closed birth-week recruitment; same window end date as seed.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Mental health tracking “mental health” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ Cohort includes Malaise Inventory and GHQ measures supporting depression/mood disorder analyses; diagnosis_area_id=5 Major depressive disorder.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	UCL Centre for Longitudinal Studies https://cls.ucl.ac.uk/ Section: Mental health tracking “mental health” Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/ GHQ and Malaise scales used in anxiety/depression research contexts; diagnosis_area_id=8 Generalised anxiety disorder.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood Disorders

Field-cited

UCL Centre for Longitudinal Studies
https://cls.ucl.ac.uk/
Section: Mental health tracking
“mental health”
Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/
Cohort includes Malaise Inventory and GHQ measures supporting depression/mood disorder analyses; diagnosis_area_id=5 Major depressive disorder.

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety Disorders

Field-cited

UCL Centre for Longitudinal Studies
https://cls.ucl.ac.uk/
Section: Mental health tracking
“mental health”
Page: https://cls.ucl.ac.uk/cls-studies/1958-national-child-development-study/
GHQ and Malaise scales used in anxiety/depression research contexts; diagnosis_area_id=8 Generalised anxiety disorder.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from CLS NCDS homepage and sweep pages, CLS genetic/biological samples page, CLS Genomics GitHub NCDS documentation, CLS linked data and health data linkage pages, CLS education linkage page, CLS data access (UK Data Service), PubMed record 16155052, HDR UK Gateway (source id 1), ClinicalTrials.gov API v2 (empty studies[]), ISRCTN API (totalCount=0). CLOSER study profile page returned HTTP 403 to automated fetch.	Internal	Internal catalogue field	—	—