Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

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Cohort validation pack

CAMHS Dataset

Child and Adolescent Mental Health Services Dataset

Generated 6 Oct 2026, 10:36 · ID 53

Unverified

Last verified: 16/04/2026

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

76

Total fields

39

Field-cited

0

Whole-record source only

8

AI-inferred, no source yet

24

Searched — not published

29

No value held

32

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

39 of 71 reviewable fields are cited to a source (55%) · 8 with no source yet · 24 searched — not published · 29 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

CAMHS DatasetField-cited
Response for Short name
Full name

Required

Child and Adolescent Mental Health Services DatasetField-cited
Response for Full name
Managing organisation

Recommended

NHS EnglandField-cited
Response for Managing organisation
Primary site

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a single primary site: national England-wide administrative lineage with no one recruiting site; NULL.

Response for Primary site
Website URL

Recommended

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-setField-cited
  • NHS England Digital — Mental Health Services Data Set (MHSDS) hub

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

    Section: Canonical MHSDS hub URL

    “https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no named cohort contact on NHS MHSDS hub, CYP quick guide, or supersession background pages accessed 2026-04-16.

Response for Contact name
Contact email

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no public contact email for dataset enquiries on cited NHS pages; use DARS routes.

Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

Historic national information standard ISB 1072 for Child and Adolescent Mental Health Services (CAMHS) was listed among standards superseded on 1 January 2016 when the Mental Health Services Data Set (MHSDS) was introduced. Specialist NHS-funded mental health, learning disability and autism care for children and young people in England is now captured within MHSDS submissions, including CYP access measures such as MHS69 and MHS95 published from MHSDS.Field-cited
Response for Description
Total N

Required

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a single cumulative participant count: the resource is a rolling national administrative lineage (ISB 1072 superseded by MHSDS), not an enrolled cohort with one published cumulative N on the pages accessed 2026-04-16.

Response for Total N
Total N qualifier

Recommended

national_coverageNot published
Response for Total N qualifier
Year established

Recommended

2016Field-cited
Response for Year established
Active cohort

Recommended

NoField-cited
  • NHS England Digital — Mental Health Services Data Set (MHSDS) hub

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

    Section: Hub purpose

    “Information about the Mental Health Services Data Set (MHSDS) including how to to implement and submit Mental Health Services data for mental health service providers and their system suppliers.”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Active cohort
Ongoing recruitment

Recommended

NoField-cited
Response for Ongoing recruitment
Refreshed cohort

Recommended

NoField-cited
  • NHS England Digital — Mental Health Services Data Set (MHSDS) hub

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

    Section: Multiple submission window model card (hub)

    “A Multiple Submission Window Model (MSWM) for the Mental Health Services Data Set (MHSDS) has been available to providers since April 2020.”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
Response for Retention rate

Published references

Recommended

10.1186/s12888-024-05961-3Field-cited
  • Denee T, et al. (2024) Impact of moderate-to-high-suicide-intent in major depressive disorder on treatment patterns and hospitalisations in England (BMC Psychiatry)

    https://doi.org/10.1186/s12888-024-05961-3

    Section: Methods — data sources (England database study)

    “The MHSDS captures data on care services provided to individuals who use mental health services provided in hospitals, community settings, and outpatient clinics in England.”

    Page: https://doi.org/10.1186/s12888-024-05961-3

Response for Published references
Notes

Recommended

CYP/CAMHS service activity is operationalised through MHSDS (not a separate CAMHS Dataset submission after 2016). Approved research access follows NHS England controlled routes including the NHS England Secure Data Environment. Former ISB 1072 label retained in DIGIT as the catalogue name for the superseded CYP specialist MH administrative collection. Deactivated Aug 2026 (portfolio review): superseded by MHSDS on 1 January 2016; no independent access route. See the MHSDS entry (id 26) for the current national dataset.Field-cited
Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

2 — Section 251 / CAG (pseudonymised, no individual consent)Field-cited
  • NHS England Digital — Mental Health Services Data Set (MHSDS) hub

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

    Section: Hub summary

    “The Mental Health Services Data Set (MHSDS) is a patient level, output based secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable person-based information for patients who are in contact with mental health services.”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

Response for Consent level (axis)
Characterisation depth (axis)

Required

1 — Routine EHRField-cited
Response for Characterisation depth (axis)
Data availability (axis)

Required

1 — Clinical records onlyField-cited
  • Local excerpt: data-dictionary.md (Group 4, data availability, has_linked_health_records)

    https://raw.githubusercontent.com/mhg-digit/digit-capabilities-db/main/docs/data-dictionary.md

    Section: Derivation pseudocode excerpt

    “hasResearch = has_questionnaire_data OR has_cognitive_data OR has_physical_measures OR has_linked_health_records”

    Page: https://raw.githubusercontent.com/mhg-digit/digit-capabilities-db/main/docs/data-dictionary.md

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 4Internal

Internal catalogue field

——
Population type

Recommended

Data resourceNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • Local excerpt: data-dictionary.md (Group 4, data availability, has_linked_health_records)

    https://raw.githubusercontent.com/mhg-digit/digit-capabilities-db/main/docs/data-dictionary.md

    Section: twics_eligible (excerpt file)

    “A cohort is TWiCs-eligible if participants have given active research consent (consent_level = 4) AND the cohort infrastructure supports randomisation within the cohort.”

    Page: https://raw.githubusercontent.com/mhg-digit/digit-capabilities-db/main/docs/data-dictionary.md

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

NoField-cited
Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
Response for Cognitive testing
Physical measures

Recommended

NoField-cited
Response for Physical measures
Biosamples

Recommended

NoField-cited
Response for Biosamples
Genomic data

Recommended

NoField-cited
Response for Genomic data
Omics

Recommended

NoField-cited
Response for Omics
Imaging

Recommended

NoField-cited
Response for Imaging
Wearable / sensor

Recommended

NoField-cited
Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
Response for Digital phenotyping
Linked health records

Recommended

NoField-cited
  • Local excerpt: data-dictionary.md (Group 4, data availability, has_linked_health_records)

    https://raw.githubusercontent.com/mhg-digit/digit-capabilities-db/main/docs/data-dictionary.md

    Section: has_linked_health_records rule

    “The cohort *is* an NHS dataset (e.g., CPRD, MHSDS) — those datasets ARE health records, they are not "linked to" health records.”

    Page: https://raw.githubusercontent.com/mhg-digit/digit-capabilities-db/main/docs/data-dictionary.md

Response for Linked health records
Biosample types

Recommended

No value heldNot published
Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
Response for Imaging modalities
Mental health measures

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: MHSDS hub summary does not enumerate named validated research instruments as defining fields for the national return; NULL.

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

NoField-cited
  • Denee T, et al. (2024) Impact of moderate-to-high-suicide-intent in major depressive disorder on treatment patterns and hospitalisations in England (BMC Psychiatry)

    https://doi.org/10.1186/s12888-024-05961-3

    Section: Methods — data sources

    “HES monitors hospital activity and captures administrative data on all patient interactions at NHS hospitals in England. The MHSDS captures data on care services provided to individuals who use mental health services provided in hospitals, community settings, and outpatient clinics in England.”

    Page: https://doi.org/10.1186/s12888-024-05961-3

Response for NHS linkage
GP linkage

Recommended

NoField-cited
  • Denee T, et al. (2024) Impact of moderate-to-high-suicide-intent in major depressive disorder on treatment patterns and hospitalisations in England (BMC Psychiatry)

    https://doi.org/10.1186/s12888-024-05961-3

    Section: Methods — data sources

    “The MHSDS captures data on care services provided to individuals who use mental health services provided in hospitals, community settings, and outpatient clinics in England.”

    Page: https://doi.org/10.1186/s12888-024-05961-3

Response for GP linkage
Death registry linkage

Recommended

NoField-cited
Response for Death registry linkage
Education linkage

Recommended

NoField-cited
Response for Education linkage
Data access mechanism

Recommended

treField-cited
Response for Data access mechanism
TRE platform

Recommended

NHS England Secure Data EnvironmentField-cited
Response for TRE platform
Data dictionary URL

Recommended

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-setField-cited
Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: DARS turnaround not captured as a single integer on cited NHS hub pages 2026-04-16.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no single cost string on cited NHS hub pages 2026-04-16.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a fixed cohort profile: administrative dataset; age_distribution NULL.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a fixed cohort profile table on accessed NHS hub pages 2026-04-16; NULL.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a fixed cohort profile table on accessed NHS hub pages 2026-04-16; NULL.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no single median age for the rolling national administrative population on cited pages.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no cohort-level sex percentage for the resource row on cited pages.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no cohort-level ethnicity percentage for the resource row on cited pages.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
Response for Geographic coverage
Follow-up duration

Recommended

>10 yearsField-cited
  • NHS England Digital — Mental Health Services Data Set (MHSDS) hub

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

    Section: Hub operational context

    “Information about the Mental Health Services Data Set (MHSDS) including how to to implement and submit Mental Health Services data”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a single last wave date on cited hub pages; rolling collection.

Response for Last data collection date
Recruitment start date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not a prospectively opened research cohort; NULL.

Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not a closed recruitment cohort; NULL.

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood DisordersField-cited
Response for Diagnosis area: Major depressive disorder
Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety DisordersField-cited
Response for Diagnosis area: Generalised anxiety disorder
Diagnosis area: Eating disorders (anorexia)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Eating disorders (anorexia) · Eating DisordersField-cited
Response for Diagnosis area: Eating disorders (anorexia)
Diagnosis area: ADHD

Recommended

Confirm this diagnosis area applies and estimated N if shown.

ADHD · NeurodevelopmentalField-cited
  • NHS England Digital — Learning Disability Services statistics background (MHSDS supersession list)

    https://digital.nhs.uk/data-and-information/publications/statistical/learning-disability-services-statistics/at-april-2023-mhsds-february-2023-final/background---mhsds

    Section: Paragraph after superseded standards

    “The changes incorporate requirements in support of Children and Young People's Improving Access to Psychological Therapies (CYP IAPT), elements of the Learning Disabilities Census (LDC) and elements of the Assuring Transformation (AT) Information Standard.”

    Page: https://digital.nhs.uk/data-and-information/publications/statistical/learning-disability-services-statistics/at-april-2023-mhsds-february-2023-final/background---mhsds

Response for Diagnosis area: ADHD
Diagnosis area: Autism spectrum conditions

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Autism spectrum conditions · NeurodevelopmentalField-cited
Response for Diagnosis area: Autism spectrum conditions

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked sites

Optional

No value heldNo source yet

No citation linked to this field yet.

Response for Linked sites

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

16 Apr 2026Internal

Internal catalogue field

——
Data source

Recommended

Verified Apr 2026 from NHS England Digital MHSDS hub, CYP Access measures quick guide, Learning Disability Services statistics background (MHSDS supersession of ISB 1072 CAMHS Dataset), local docs/data-dictionary.md excerpt, HDR UK Innovation Gateway search export (HTML), DPUK Plone search export (HTML), Denee et al. 2024 BMC Psychiatry (England MHSDS-linked study), ClinicalTrials.gov API v2 JSON (CAMHS dataset query), and ISRCTN API XML (CAMHS dataset query).Internal

Internal catalogue field

——
Validate: CAMHS Dataset | DIGIT