Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
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Cohort validation pack

CYP-IAPT

Children and Young People IAPT Dataset

Generated 6 Oct 2026, 10:36 · ID 47

Unverified

Last verified: 16/04/2026

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

76

Total fields

40

Field-cited

0

Whole-record source only

8

AI-inferred, no source yet

23

Searched — not published

31

No value held

33

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

40 of 71 reviewable fields are cited to a source (56%) · 8 with no source yet · 23 searched — not published · 31 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

CYP-IAPTField-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: HTML title

    “About the Mental Health Services Data Set (MHSDS) - NHS England Digital”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Short name
Full name

Required

Children and Young People IAPT DatasetField-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Introduction

    “The Mental Health Services Data Set (MHSDS) is a patient level, output based secondary uses data set which aims to deliver robust, comprehensive, nationally consistent and comparable person-based information for patients who are in contact with mental health services.”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Full name
Managing organisation

Recommended

NHS EnglandField-cited
Response for Managing organisation
Primary site

Recommended

No value heldField-cited
Response for Primary site
Website URL

Recommended

https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/aboutField-cited
Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no single named cohort contact published on reviewed NHS Digital dataset pages.

Response for Contact name
Contact email

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no stable public mailbox for the dataset identified on reviewed NHS Digital pages.

Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

National dataset for children and young people's psychological therapy services submitted through the Mental Health Services Data Set (MHSDS). Includes routine outcome measures (for example RCADS, SDQ) and service activity for specialist mental health, learning disability and autism services in England.Field-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Introduction; How the MHSDS is used

    “As a secondary uses data set, the Mental Health Services Data Set re-uses clinical and operational data for purposes other than direct patient care”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Description
Total N

Required

No value heldField-cited
Response for Total N
Total N qualifier

Recommended

per_year_intakeField-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Total N qualifiers (data-dictionary.md) + dataset nature

    “national reporting and analysis”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Total N qualifier
Year established

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: no verbatim establishment year for the CYP-IAPT dataset found on reviewed NHS Digital MHSDS about page sections used; programme history pages attempted returned 404. year_established set NULL in cohort seed.

Response for Year established
Active cohort

Recommended

YesField-cited
Response for Active cohort
Ongoing recruitment

Recommended

NoField-cited
Response for Ongoing recruitment
Refreshed cohort

Recommended

NoField-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Introduction

    “defines the data items, definitions and associated value sets to be extracted or derived from local information systems.”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not applicable / not published for secondary-use administrative flows.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: cohort retention metric not published on reviewed pages for this resource type.

Response for Retention rate

Published references

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: no single canonical cohort profile DOI isolated for CYP-IAPT as a named dataset in reviewed NHS Digital pages; published_references left NULL.

Response for Published references
Notes

Recommended

Covers CYP (under 18) in contact with CAMHS / CYP mental health services contributing to MHSDS. Access for research is via approved NHS Secure Data Environment routes alongside other national NHS data governance mechanisms.Field-cited
Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

2 — Section 251 / CAG (pseudonymised, no individual consent)Field-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Introduction

    “As a secondary uses data set, the Mental Health Services Data Set re-uses clinical and operational data for purposes other than direct patient care”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Consent level (axis)
Characterisation depth (axis)

Required

2 — Standardised MH instrumentsField-cited
  • CORC — Revised Children's Anxiety and Depression Scale (RCADS)

    https://www.corc.uk.net/outcome-measures-guidance/directory-of-outcome-measures/revised-childrens-anxiety-and-depression-scale-rcads/

    Section: meta description

    “The Revised Children’s Anxiety and Depression Scale (RCADS) measures the reported frequency of various symptoms of anxiety and low mood.”

    Page: https://www.corc.uk.net/outcome-measures-guidance/directory-of-outcome-measures/revised-childrens-anxiety-and-depression-scale-rcads/

Response for Characterisation depth (axis)
Data availability (axis)

Required

2 — Records + research dataField-cited
Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 4Internal

Internal catalogue field

——
Population type

Recommended

Data resourceNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Consent framework

    “As a secondary uses data set, the Mental Health Services Data Set re-uses clinical and operational data for purposes other than direct patient care”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

YesField-cited
Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
Response for Cognitive testing
Physical measures

Recommended

NoField-cited
Response for Physical measures
Biosamples

Recommended

NoField-cited
Response for Biosamples
Genomic data

Recommended

NoField-cited
Response for Genomic data
Omics

Recommended

NoField-cited
Response for Omics
Imaging

Recommended

NoField-cited
Response for Imaging
Wearable / sensor

Recommended

NoField-cited
Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
Response for Digital phenotyping
Linked health records

Recommended

NoField-cited
  • NHS England Digital — About the Mental Health Services Data Set (MHSDS)

    https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

    Section: Introduction

    “As a secondary uses data set, the Mental Health Services Data Set re-uses clinical and operational data for purposes other than direct patient care”

    Page: https://digital.nhs.uk/data-and-information/data-collections-and-data-sets/data-sets/mental-health-services-data-set/about

Response for Linked health records
Biosample types

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: NULL array; no biosample types on reviewed pages.

Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: NULL; no genotyping platform on reviewed pages.

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: NULL array; no imaging modalities on reviewed pages.

Response for Imaging modalities
Mental health measures

Recommended

RCADS, SDQ, ORS, GBOField-cited
  • CORC — Revised Children's Anxiety and Depression Scale (RCADS)

    https://www.corc.uk.net/outcome-measures-guidance/directory-of-outcome-measures/revised-childrens-anxiety-and-depression-scale-rcads/

    Section: meta description + keywords

    “The Revised Children’s Anxiety and Depression Scale (RCADS) measures the reported frequency of various symptoms of anxiety and low mood.”

    Page: https://www.corc.uk.net/outcome-measures-guidance/directory-of-outcome-measures/revised-childrens-anxiety-and-depression-scale-rcads/

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
Response for NHS linkage
GP linkage

Recommended

NoField-cited
Response for GP linkage
Death registry linkage

Recommended

NoField-cited
Response for Death registry linkage
Education linkage

Recommended

NoField-cited
Response for Education linkage
Data access mechanism

Recommended

treField-cited
  • NHS England Digital — Secure Data Environment service

    https://digital.nhs.uk/services/secure-data-environment-service

    Section: Service summary body

    “The NHS England SDE provides access to many NHS data sets including Hospital Episodes, Emergency Care, Maternity, Mental health data sets and more.”

    Page: https://digital.nhs.uk/services/secure-data-environment-service

Response for Data access mechanism
TRE platform

Recommended

NHS Secure Data EnvironmentField-cited
  • NHS England Digital — Secure Data Environment service

    https://digital.nhs.uk/services/secure-data-environment-service

    Section: meta description

    “The NHS England Secure Data Environment (SDE) is a secure data and research analysis platform, allowing approved professional to get access to NHS data.”

    Page: https://digital.nhs.uk/services/secure-data-environment-service

Response for TRE platform
Data dictionary URL

Recommended

https://digital.nhs.uk/data-and-information/information-standards/governance/latest-activity/standards-and-collections/dapb0011-mental-health-services-data-setField-cited
Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: DARS/SDE application timelines not extracted to a single integer.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: fee schedule not quoted from reviewed NHS Digital pages.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: no JSON age bands extracted from reviewed NHS Digital HTML sections; population denominators are reporting-period dependent.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: no sex split JSON extracted from reviewed NHS Digital HTML sections used.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: no ethnicity JSON extracted from reviewed NHS Digital HTML sections used.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: median age not stated on reviewed dataset summary pages.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: percent female not stated on reviewed dataset summary pages.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: ethnicity percentages not stated on reviewed dataset summary pages.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
Response for Geographic coverage
Follow-up duration

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: no single follow-up duration string for the national dataset on reviewed summary pages.

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE in this pass: rolling monthly submissions mean no single last_data_collection_date taken from reviewed static pages.

Response for Last data collection date
Recruitment start date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: administrative collection dates differ from study recruitment_start_date semantics; field left NULL.

Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: not applicable as a closed cohort recruitment end date.

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood DisordersField-cited
Response for Diagnosis area: Major depressive disorder
Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety DisordersField-cited
Response for Diagnosis area: Generalised anxiety disorder
Diagnosis area: ADHD

Recommended

Confirm this diagnosis area applies and estimated N if shown.

ADHD · NeurodevelopmentalField-cited
Response for Diagnosis area: ADHD
Diagnosis area: Autism spectrum conditions

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Autism spectrum conditions · NeurodevelopmentalField-cited
Response for Diagnosis area: Autism spectrum conditions
Diagnosis area: Intellectual disability and mental health

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Intellectual disability and mental health · NeurodevelopmentalField-cited
Response for Diagnosis area: Intellectual disability and mental health

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked sites

Optional

No value heldNo source yet

No citation linked to this field yet.

Response for Linked sites

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

16 Apr 2026Internal

Internal catalogue field

——
Data source

Recommended

Verified Apr 2026 from NHS Digital MHSDS about page, MHSDS CYP access measures quick guide, NHS Digital Secure Data Environment service page, CORC RCADS directory page, DIGIT data-population-plan.md (Group 4 list), ClinicalTrials.gov API v2 (query CYP IAPT; 0 studies), ISRCTN API XML (query CYP IAPT; trials returned are interventional studies, not a site list for this resource). HDR UK public API route tried for catalogue search returned 404.Internal

Internal catalogue field

——