Cohort validation pack

CRIS AWP

Avon and Wiltshire CRIS

Generated 6 Oct 2026, 10:36 · ID 40

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	36 of 70 reviewable fields are cited to a source (51%) · 7 with no source yet · 27 searched — not published · 31 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	CRIS AWP	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust header “Avon and Wiltshire Mental Health Partnership NHS Trust” Page: https://crisnetwork.co/ DIGIT short label 'CRIS AWP' is the conventional CRIS + Trust shorthand; crisnetwork member list anchors the Trust identity.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Avon and Wiltshire CRIS	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust header “Avon and Wiltshire Mental Health Partnership NHS Trust” Page: https://crisnetwork.co/ full_name 'Avon and Wiltshire CRIS' is the public programme-style label for this Trust's CRIS instance (distinct from the legal Trust name in managing_organisation).	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Avon and Wiltshire Mental Health Partnership NHS Trust	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust header “Avon and Wiltshire Mental Health Partnership NHS Trust” Page: https://crisnetwork.co/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	Avon and Wiltshire Mental Health Partnership NHS Trust (site #37)	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust anchor “Avon and Wiltshire Mental Health Partnership NHS Trust (AWP) is a significant provider of high quality mental health services” Page: https://crisnetwork.co/ primary_site_id=37 is the DIGIT sites row for Avon and Wiltshire Mental Health Partnership NHS Trust hosting this Trust-local CRIS.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.awp.nhs.uk/about-us/research-and-development	Field-cited	AWP — Research and Development https://www.awp.nhs.uk/about-us/research-and-development Section: Canonical URL “https://www.awp.nhs.uk/about-us/research-and-development” Page: https://www.awp.nhs.uk/about-us/research-and-development	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no named single CRIS administrator extracted into cohort.contact_name from the pages downloaded.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: cohort.contact_email remains NULL; generic R&D contact paths exist on the Trust site but were not promoted into the cohort row in this pass.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	De-identified secondary-care mental health research database operated within Avon and Wiltshire Mental Health Partnership NHS Trust as part of the UK Clinical Record Interactive Search (CRIS) network; the CRIS Network lists AWP as a member trust serving Bath and North East Somerset, Bristol, North Somerset, South Gloucestershire, Swindon and Wiltshire with wider south west specialist services.	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust description “Avon and Wiltshire Mental Health Partnership NHS Trust (AWP) is a significant provider of high quality mental health services across a core catchment area covering Bath and North East Somerset (B&NES), Bristol, North Somerset, South Gloucestershire, Swindon and Wiltshire. The Trust also provides specialist services for a wider catchment extending throughout the south west.” Page: https://crisnetwork.co/ Description synthesises crisnetwork geography with UK-CRIS secondary-care EHR research database framing consistent with Oxford OHFT CRIS toolkit wording. Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: What CRIS is (OHFT pattern) “Clinical Record Interactive Search (CRIS) provides a means of analysing de-identified data from the Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ OHFT page documents the standard UK-CRIS technical pattern (EPR-derived pseudonymised research database) applied analogously to other member Trusts including AWP.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE in this pass: crisnetwork headline counts are network-wide (e.g. 2.6m+ de-identified records across members), not an audited AWP-only cumulative CRIS service-user total; Lia et al. 2022 Table 5 lists UK Biobank linkage subset sizes for several Trusts but does not publish a separate AWP row.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: total_n is NULL, so qualifier is NULL.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no Trust-specific CRIS launch year extracted from crisnetwork.co, AWP Research & Development hub, or Lia et al. 2022 abstract.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	AWP — Research and Development https://www.awp.nhs.uk/about-us/research-and-development Section: Present operational framing “Our team help service users, carers and staff to take part in National Institute for Health and Care Research (NIHR) portfolio studies being supported by AWP.” Page: https://www.awp.nhs.uk/about-us/research-and-development Active NHS Trust research delivery described in present tense → is_active TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	ClinicalTrials.gov https://clinicaltrials.gov Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Avon%20and%20Wiltshire%22%20CRIS&pageSize=20 ongoing_recruitment=FALSE: ClinicalTrials.gov v2 API JSON shows studies=[] for query Avon and Wiltshire + CRIS; CRIS is a pseudonymised EHR research database, not a recruiting interventional cohort protocol. ISRCTN XML API — query: "Avon and Wiltshire" (limit 200) https://www.isrctn.com/api/query/format/default?q=%22Avon%20and%20Wiltshire%22&limit=200 Page: https://www.isrctn.com/api/query/format/default?q=%22Avon%20and%20Wiltshire%22&limit=200 ISRCTN XML API returned interventional trials mentioning Avon and Wiltshire (totalCount=46) but none are a standalone CRIS archive registration; CRIS remains an NHS secondary-use database rather than an ISRCTN-recruited cohort.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Database nature “CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ Live EPR feed into CRIS is not the same as a discrete prospective cohort refreshment wave; is_refreshed=FALSE.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not published as a metric for this EHR resource.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not meaningful as a cohort retention rate for this register-type resource.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1016/j.ijmedinf.2022.104704	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PubMed citation metadata “doi:10.1016/j.ijmedinf.2022.104704” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Lia et al. 2022 is a UK-CRIS network-relevant validation paper (CRIS vs UK Biobank) cited to support mental-health phenotyping context; not a cohort profile for AWP specifically.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	CRIS Network page states the network is harnessing over 2 million deidentified patient records across member trusts (not a per-trust audited census for AWP). University of Bristol ALSPAC reports mental health record linkages with AWP are under development. Lia et al. (2022) UK-CRIS validation paper focuses on CRIS/Oxford vs UK Biobank for dementia, depression, bipolar disorder and schizophrenia; its Table 5 of UKB linkage counts does not list a separate AWP Trust row.	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “Here, we present the first validation study using secondary care mental health data with linkage to UKB from Oxford - Clinical Record Interactive Search (CRIS) focusing on comparison of demographic information, diagnostic outcome, medication record and cognitive test results” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Contextualises that Lia et al. pilot is CRIS/Oxford-centric; Table 5 linkage counts in full text do not list AWP separately. CRIS Network https://crisnetwork.co Section: Network scale banner “The CRIS Network is developing a research platform across the country that harnesses over 2 million deidentified patient records to advance research into dementia and mental health.” Page: https://crisnetwork.co/ Clarifies that multi-million record counts are network marketing copy, not a sourced AWP-only census. ALSPAC — Linkage to routine health and social records https://www.bristol.ac.uk/alspac/researchers/our-data/linkage/ Section: Links under development “Health data linkages are being developed with NHS Wales and the Avon & Wiltshire Mental Health Partnership NHS Trust.” Page: https://www.bristol.ac.uk/alspac/researchers/our-data/linkage/ Supports notes sentence that ALSPAC↔AWP mental health linkages are described as in development rather than completed. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Bipolar disorder explicitly named → maps to diagnosis_area_id=4 (Bipolar disorder) per db/seed/diagnosis_areas.sql. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Dementia explicitly named in UK-CRIS validation abstract PPV sentence. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Depression explicitly named → diagnosis_area_id=5 retained. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Schizophrenia explicitly named in UK-CRIS vs UKB validation abstract → diagnosis_area_id=1 (Schizophrenia) row.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Governance / pseudonymous access “CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ Step 1: Trust-held identifiable clinical records exist in the source EPR (YES). Step 2: Public-facing UK-CRIS documentation for OHFT describes pseudonymised secondary-use CRIS with Trust Oversight Group approval rather than per-query participant consent for the de-identified analysis database (aligned with statutory/institutional NHS secondary-use governance → consent_level 2 per data-dictionary). Steps 3–4: no cohort-wide assertion of prospective recontact consent or interventional trial consent for the archive as a whole → not levels 3–4. audit_flag: NEEDS-HUMAN for an AWP-branded Section 251/CAG patient leaflet URL (not found on crawled AWP pages in this pass).	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR-derived phenotype “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ Phenotype information is derived from routine Trust electronic patient records for secondary analysis (not a prospective named research questionnaire battery as the defining design) → characterisation_depth=1, aligned with verified CRIS SW London (cohort 44).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Derivation “N/A — derived score” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ Mechanical derivation per data-dictionary: hasResearch = questionnaire OR cognitive OR physical OR linked_health_records = FALSE; hasBiological=FALSE; hasAdvanced=FALSE → data_availability=1. has_linked_health_records is FALSE because NHS-hosted CRIS is a health-records research resource (dictionary overlap rule).	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). De-identified NHS trust electronic health record research database — a clinical records resource, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Not published	twics_eligible=FALSE: requires consent_level=4 per schema notes; this resource is consent_level=2.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE per data-dictionary: public materials describe CRIS as an EPR-derived pseudonymised database, not a named research protocol systematically administering validated PROM batteries as the defining resource modality.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE for the cohort modality flags: Lia et al. abstract mentions cognitive test results for the Oxford pilot comparison, but that does not redefine AWP CRIS as a dedicated cognitive phenotyping archive.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no cohort-wide objective physical measurement programme described as a defining CRIS modality.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: CRIS described as pseudonymised EPR-derived database, not a biobank resource.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no genomics archive described for Trust-hosted CRIS in reviewed pages.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no separate -omics research modalities described as defining features.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no research imaging archive described.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no wearable sensor programme described.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: EPR transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE per data-dictionary (passive smartphone digital phenotyping); CRIS is an EHR-derived database.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Overlap resolution “N/A — dictionary rule” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE per docs/data-dictionary.md: NHS-hosted CRIS is a health-records research resource; use has_nhs_linkage and related linkage flags rather than has_linked_health_records.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no biosample_types array evidenced for this Trust CRIS instance.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable to CRIS as described.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable to CRIS as described.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a stable TEXT[] instrument list for AWP CRIS: Lia abstract references cognitive tests for the Oxford validation pilot, but no enumerated instrument battery list is extracted for AWP.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “first validation study using secondary care mental health data with linkage to UKB from Oxford - Clinical Record Interactive Search (CRIS)” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Secondary source: UK-CRIS to UK Biobank linkage validation exists for Oxford CRIS in-network; supports that UK-CRIS implementations can operate under approved NHS-wide linkage study designs (not AWP-specific counts). Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: What CRIS is “Clinical Record Interactive Search (CRIS) provides a means of analysing de-identified data from the Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ has_nhs_linkage=TRUE aligned with other trust-hosted UK-CRIS cohort rows: CRIS is built from Trust NHS electronic patient records (secondary-care NHS mental health documentation). OHFT page documents the standard UK-CRIS technical pattern applied across member trusts including AWP (listed on crisnetwork.co). Lia et al. 2022 additionally evidences approved research linkage pathways from UK-CRIS to UK Biobank in participating trusts.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Oversight / database scope “The CRIS Oversight Group, led by the Chief Clinical Information Officer (CCIO) will review all requests to use CRIS as a de-identified database.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: reviewed AWP and generic UK-CRIS pages in this pass do not enumerate a standing GP-record linkage programme comparable to some CDLS documentation elsewhere.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Oversight / database scope “The CRIS Oversight Group, led by the Chief Clinical Information Officer (CCIO) will review all requests to use CRIS as a de-identified database.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no ONS mortality / death registry linkage programme described on reviewed UK-CRIS pattern pages for AWP.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Oversight / database scope “The CRIS Oversight Group, led by the Chief Clinical Information Officer (CCIO) will review all requests to use CRIS as a de-identified database.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no education-administration linkage programme described on reviewed UK-CRIS pattern pages for AWP.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	tre	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Oversight governance “All work, which requires the use of CRIS must be reviewed and approved by the CRIS Oversight Group.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ data_access_mechanism=tre: access is gated through Trust oversight and approvals consistent with a trusted research environment model (not open access).	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	CRIS (AWP; trust-hosted pseudonymised CRIS database with project governance consistent with UK-CRIS member implementations)	Field-cited	Oxford Health NHS FT — Register your project for Clinical Record Interactive Search (CRIS) https://oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Oversight governance “The CRIS Oversight Group, led by the Chief Clinical Information Officer (CCIO) will review all requests to use CRIS as a de-identified database.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/ tre_platform string summarises trust-hosted secure CRIS environment with Oversight Group governance.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE in this pass: HDR UK Innovation Gateway-style dataset API request to api.healthdatagateway.org returned HTTP 404; no stable Gateway dataset URL bound.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no numeric access timeline published in the Trust R&D pages reviewed.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public access tariff extracted.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no extractable age_distribution JSON for this Trust CRIS archive in sources downloaded for this pass.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no extractable sex_distribution JSON for this Trust CRIS archive in sources downloaded for this pass.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no extractable ethnicity_distribution JSON for this Trust CRIS archive in sources downloaded for this pass.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no median age statistic extracted for the Trust CRIS archive in reviewed materials.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no percent_female statistic extracted for the Trust CRIS archive in reviewed materials.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no percent_non_white statistic extracted for the Trust CRIS archive in reviewed materials.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	regional	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust description “core catchment area covering Bath and North East Somerset (B&NES), Bristol, North Somerset, South Gloucestershire, Swindon and Wiltshire” Page: https://crisnetwork.co/ geographic_coverage=regional: one NHS provider with a multi-county south west England footprint.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single follow-up duration string sourced for the Trust CRIS archive in reviewed pages.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: live EHR-backed resource without a single last_data_collection_date suitable for this DATE column.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: administrative register / live EHR resource — not a protocol with recruitment_start_date.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 NULL: no trust-specific ICD prevalence counts for schizophrenia on crisnetwork AWP card, AWP R&D hub, or Lia abstract (Oxford pilot counts only). Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Schizophrenia explicitly named in UK-CRIS vs UKB validation abstract → diagnosis_area_id=1 (Schizophrenia) row. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Relationship retained: schizophrenia (diagnosis_area_id=1) explicitly named in UK-CRIS vs UK Biobank validation abstract as a condition class evaluated.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Bipolar disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Bipolar disorder · Mood Disorders	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 NULL: no trust-specific prevalence counts for bipolar disorder on crisnetwork AWP card or AWP R&D pages. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Bipolar disorder explicitly named → maps to diagnosis_area_id=4 (Bipolar disorder) per db/seed/diagnosis_areas.sql. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Relationship retained: bipolar disorder (diagnosis_area_id=4) explicitly named in the same UK-CRIS validation abstract.	Response for Diagnosis area: Bipolar disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 NULL: no trust-specific prevalence counts for major depressive disorder on crisnetwork AWP card or AWP R&D pages. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Depression explicitly named → diagnosis_area_id=5 retained. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Relationship retained: depression named in abstract → maps to diagnosis_area_id=5 (Major depressive disorder) as the DIGIT mood bucket for depression phenotypes.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 NULL: no trust-specific prevalence counts for dementia on crisnetwork AWP card or AWP R&D pages. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Dementia explicitly named in UK-CRIS validation abstract PPV sentence. Lia et al. 2022 — Validation of UK Biobank data for mental health outcomes (PubMed abstract) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Abstract “PPVs for any mental health diagnosis for dementia, depression, bipolar disorder and schizophrenia were 41.6%, and were 59.5%, 12.5%, 50.0% and 52.6%, respectively.” Page: https://pubmed.ncbi.nlm.nih.gov/35168089/ Phase B NEW: dementia named alongside other MH diagnoses in UK-CRIS vs UKB validation abstract → add diagnosis_area_id=20 (Dementia / neurodegeneration) per db/seed/diagnosis_areas.sql.	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: Avon and Wiltshire Mental Health Partnership NHS Trust Recommended	Avon and Wiltshire Mental Health Partnership NHS Trust · South West England	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust description “Avon and Wiltshire Mental Health Partnership NHS Trust (AWP) is a significant provider of high quality mental health services across a core catchment area covering Bath and North East Somerset (B&NES), Bristol, North Somerset, South Gloucestershire, Swindon and Wiltshire.” Page: https://crisnetwork.co/ cohort_sites links cohort 40 to site_id=37 (AWP) as the Trust hosting this CRIS instance. NULL: no sourced cumulative CRIS archive service-user total for AWP; network headline counts are not Trust-specific.	Response for Linked site: Avon and Wiltshire Mental Health Partnership NHS TrustAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from crisnetwork.co (member trust card and network scale copy), awp.nhs.uk/about-us/research-and-development (Research & Development hub), University of Bristol ALSPAC linkage page, Oxford Health NHS Foundation Trust CRIS toolkit page (UK-CRIS technical pattern), PubMed PMID 35168089 abstract (Lia et al. 2022 UK-CRIS UK Biobank validation), ClinicalTrials.gov v2 API (saved JSON: empty studies for "Avon and Wiltshire" AND CRIS), ISRCTN XML API (saved XML: portfolio trials for "Avon and Wiltshire"; none are a standalone CRIS archive protocol), and attempted HDR UK dataset API query (HTTP 404 in this environment).	Internal	Internal catalogue field	—	—