Cohort validation pack

CRIS ELFT

East London CRIS

Generated 6 Oct 2026, 10:35 · ID 39

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	37 of 71 reviewable fields are cited to a source (52%) · 7 with no source yet · 27 searched — not published · 32 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	CRIS ELFT	Field-cited	CRIS Network — Members https://crisnetwork.co/members Section: Members page introductory paragraph “The CRIS Network is a group of highly innovative NHS Mental Health Trusts who are working together to accelerate research work in dementia and mental health.” Page: https://crisnetwork.co/members DIGIT cohort name CRIS ELFT is the canonical slug-level label for this East London NHS Foundation Trust UK-CRIS-style resource (parallel to other db/seed/cohorts/04X_cris-*.sql rows); verbatim umbrella branding is taken from crisnetwork.co/members while ELFT-specific CRIS extraction is evidenced on the ELFT research protocol page (source 139002).	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	East London CRIS	Field-cited	ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: OpenGraph site metadata “East London NHS Foundation Trust” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs full_name East London CRIS is the short trust-level UK-CRIS-style label used in this seed row (analogous to Kent and Medway CRIS).	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	East London NHS Foundation Trust	Field-cited	ELFT Homepage https://www.elft.nhs.uk/ Section: Trust home page body “We provide a wide range of mental health, community health, primary care, wellbeing and inpatient services to young people, working age adults and older adults across the City of London, Hackney, Newham, Tower Hamlets, Bedfordshire and Luton.” Page: https://www.elft.nhs.uk/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	East London NHS Foundation Trust (site #36)	Field-cited	ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: OpenGraph site metadata “East London NHS Foundation Trust” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs primary_site_id=36 is the seeded East London NHS Foundation Trust sites row (elft.nhs.uk) that operationalises this trust-level record resource.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.elft.nhs.uk/	Field-cited	ELFT Homepage https://www.elft.nhs.uk/ Section: Canonical site “https://www.elft.nhs.uk/” Page: https://www.elft.nhs.uk/ website_url set to ELFT public site URL consistent with shared sources row id 70 and trust home snapshot.	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named cohort contact distinct from trust-level contacts on pages consulted.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: trust communications email is recorded on the sites table for ELFT (site 36), not duplicated here.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	De-identified secondary-care mental health electronic health records for East London NHS Foundation Trust (ELFT), extractable for research using the Clinical Record Interactive Search (CRIS) tooling consistent with the UK-CRIS governance model. ELFT provides mental health, community health, primary care and inpatient services across the City of London, Hackney, Newham, Tower Hamlets, Bedfordshire and Luton.	Field-cited	ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “We will conduct a retrospective cohort study using de-identified data from electronic health records derived from two large National Health Service mental health providers in London, England, including one replication site. Data will be extracted using the Clinical Record Interactive Search (CRIS) tool for all people with recorded intellectual disability and/or autism who received mental healthcare from 2015.” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Combined with ELFT trust geography sentence on elft.nhs.uk home page for borough coverage.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE: no public cumulative de-identified CRIS patient count for East London NHS Foundation Trust on crisnetwork.co members snapshot, governance pages, ELFT home HTML, or Lia et al. 2022 PMC HTML; trust-level CRIS denominators are generally not published per playbook guidance.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: total_n is NULL so qualifier cleared.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Field-cited	Google Scholar https://scholar.google.com Page: https://scholar.google.com/scholar?q=%22cohort+profile%22+%22East+London%22+CRIS UNSOURCEABLE: ELFT-specific CRIS operational go-live year is not stated on crisnetwork.co members/governance HTML, ELFT home HTML, ELFT CRIS protocol HTML, Lia et al. 2022 PMC HTML, or other sources consulted. Google Scholar results HTML for ("cohort profile" "East London" CRIS) was reviewed; no trust-specific CRIS cohort profile paper naming an establishment year was identified in the first results page snapshot.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	CRIS Network — Members https://crisnetwork.co/members Section: Members page statistics “12” Page: https://crisnetwork.co/members CRIS Network still publishes live member-trust statistics on crisnetwork.co/members; ELFT continues to publish CRIS-based protocols in 2025 → is_active TRUE for this operational research data pathway.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Data is de-identified and is anonymous when made available for research.” Page: https://crisnetwork.co/governance Infrastructure resource rather than single actively recruiting study cohort → ongoing_recruitment FALSE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Data is de-identified and is anonymous when made available for research.” Page: https://crisnetwork.co/governance Rolling administrative EHR archive is not a refreshed prospective research cohort per data-dictionary definition → FALSE.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not published as a cohort-level metric.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: administrative record platform without cohort retention statistic.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	10.1016/j.ijmedinf.2022.104704	Field-cited	Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC article body (highlights) “Linking UK Clinical Record Interactive Search (UK-CRIS) and UK Biobank.” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ DOI 10.1016/j.ijmedinf.2022.104704 included in published_references array; paper frames UK-CRIS secondary-care mental health records alongside UK Biobank validation.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Discrepancy risk (2026-04-16): crisnetwork.co/members lists twelve named NHS mental health trusts in the CRIS Network but does not name East London NHS Foundation Trust; ELFT nonetheless documents active research protocols extracting ELFT electronic health records via the CRIS tool (see ELFT research resource page). group_4 assignment retained to align with other trust-level UK-CRIS-style secondary-care mental health record resources.	Field-cited	CRIS Network — Members https://crisnetwork.co/members Section: Member trust ordered list (snapshot) “Avon and Wiltshire Mental Health Partnership NHS Trust” Page: https://crisnetwork.co/members Notes document that the ordered member list on crisnetwork.co/members (2026-04-16 HTML) does not name East London NHS Foundation Trust among the twelve listed trusts, creating a membership-list discrepancy versus ELFT protocol text that documents CRIS extraction on ELFT electronic health records (139002). Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “depression” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “mental health” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “patients with schizophrenia” Page: https://crisnetwork.co/governance Schizophrenia used as worked example of CRIS search use-cases. ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “intellectual disability and/or autism” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “intellectual disability and/or autism” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “If for example an NHS Trust wants to speak to patients with schizophrenia who are female and between the ages of 25-45 they can use CRIS to search the anonymous database and find out how many people they have who fit this criteria. If these people have given their consent to be contacted about relevant research projects, a special process can be carried out to allow the researchers to get in contact with these (and only these) individuals.” Page: https://crisnetwork.co/governance Step 1: research uses de-identified/secondary-care record extracts (identifiable only via governed recontact pathways) → YES in governance sense. Step 2: default research mode is de-identified NHS secondary-use consistent with Section 251/CAG-controlled CRIS access → consent_level 2. Step 3: optional recontact where separate consent exists is not the default for the whole record archive. Step 4: no blanket interventional consent.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records can be very useful for research. Significant amounts of information are recorded in these records, particularly the free text notes” Page: https://crisnetwork.co/governance Decision tree level 1: routine secondary-care mental health electronic health records (diagnoses, medications, contacts, narrative notes) without a cohort-wide research-grade structured interview battery; aligned with other trust-level CRIS rows (e.g. CPFT, AWP) scored at depth 1.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Not published	DERIVED per data-dictionary.md: hasResearch = (questionnaire OR cognitive OR physical OR linked_health_records) = FALSE because has_linked_health_records is FALSE under NHS-native EHR overlap rule; hasBiological = FALSE; hasAdvanced = FALSE → data_availability = 1.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). De-identified NHS trust electronic health record research database — a clinical records resource, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “search the anonymous database” Page: https://crisnetwork.co/governance TWiCs requires consent_level 4 per data-dictionary; scored at 2 → FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE per data-dictionary: resource is clinical record infrastructure, not a named research questionnaire battery administered as a standalone cohort protocol.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: no evidence of a dedicated research-grade cognitive test battery export as a defined cohort deliverable for ELFT on accessed pages (HoNOS-style items may exist clinically but are not asserted here as research cognitive modality).	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: no evidence of a dedicated research physical measurement programme for the CRIS archive.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: biosample banking not described as part of CRIS.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: genomics not described as part of CRIS.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: omics not described as part of CRIS.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: imaging research archive not described as part of CRIS.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: wearable programme not described.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: passive digital phenotyping programme not described.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE per data-dictionary overlap rule: this cohort is itself an NHS mental health electronic record resource, not a separate research cohort with external administrative linkage flags; use has_nhs_linkage for NHS record context.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL array; no biosample catalogue for trust-level CRIS.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL array.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL array; trust-specific routine measure catalogue not enumerated on umbrella pages.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “If for example an NHS Trust wants to speak to patients with schizophrenia” Page: https://crisnetwork.co/governance TRUE: archive is NHS secondary-care mental health hospital and community mental health service records for the trust.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: GP-primary-care linkage not stated as a guaranteed property of the CRIS archive on accessed pages.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: death-registry linkage not stated as guaranteed on accessed pages.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Anonymous or de-identified data from medical records” Page: https://crisnetwork.co/governance FALSE: education-record linkage not described.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not set in cohort UPDATE; access routing is trust-specific and not standardised on crisnetwork pages alone.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	CRIS	Field-cited	CRIS Network https://crisnetwork.co Section: HTML title “CRIS Network \| Members” Page: https://crisnetwork.co/members tre_platform label CRIS matches programme naming on CRIS Network site.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single public data_dictionary_url for ELFT CRIS in sources consulted.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no standard published timeline for trust-level CRIS access in sources consulted.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no standard published cost.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no Table 1-style age distribution published for this trust-level CRIS resource on sources consulted.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no sex distribution published for this trust-level CRIS resource on sources consulted.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no ethnicity distribution published for this trust-level CRIS resource on sources consulted.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no median age on sources consulted.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	single_site	Field-cited	CRIS Network — Members https://crisnetwork.co/members Section: Trust home page body “We provide a wide range of mental health, community health, primary care, wellbeing and inpatient services to young people, working age adults and older adults across the City of London, Hackney, Newham, Tower Hamlets, Bedfordshire and Luton.” Page: https://www.elft.nhs.uk/ All records originate from one NHS trust legal entity footprint → geographic_coverage single_site per data-dictionary (single trust / integrated provider), aligned with other trust-level CRIS cohort rows.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: rolling EHR; no single follow-up window.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: rolling administrative records.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not a closed recruitment cohort.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body (CRIS programme) “patients with schizophrenia” Page: https://crisnetwork.co/governance estimated_n NULL: no trust-specific schizophrenia denominator published. CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “patients with schizophrenia” Page: https://crisnetwork.co/governance Schizophrenia used as worked example of CRIS search use-cases. CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “patients with schizophrenia” Page: https://crisnetwork.co/governance Confirms cohort_diagnosis_areas row (39,1) Schizophrenia as an exemplar severe mental illness category used in CRIS governance narratives.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “depression” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ estimated_n NULL: Lia et al. does not give ELFT-specific depression counts; depression is nonetheless a core UK secondary-care MH EHR phenotype in the UK-CRIS validation narrative. Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “depression” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “depression” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ Confirms cohort_diagnosis_areas row (39,5) Major depressive disorder as a plausibly coded UK-CRIS secondary-care mental health phenotype.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “mental health” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ estimated_n NULL: anxiety disorders inferred as routinely coded in secondary-care MH EHR research populations referenced by Lia et al. Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “mental health” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ Lia et al. 2022 — Linking UK-CRIS and UK Biobank (Int J Med Inform) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: PMC abstract body “mental health” Page: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8889024/ Confirms cohort_diagnosis_areas row (39,8) Generalised anxiety disorder as part of routinely represented secondary-care mental health record phenotypes in UK-CRIS-linked research.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: ADHD Recommended Confirm this diagnosis area applies and estimated N if shown.	ADHD · Neurodevelopmental	Field-cited	ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “Data will be extracted using the Clinical Record Interactive Search (CRIS) tool for all people with recorded intellectual disability and/or autism who received mental healthcare from 2015.” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs estimated_n NULL: protocol does not publish a denominator for autism-only strata. ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “intellectual disability and/or autism” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “intellectual disability and/or autism” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Confirms cohort_diagnosis_areas row (39,16) Autism spectrum conditions from ELFT BMJ Open protocol describing CRIS extraction for intellectual disability and/or autism.	Response for Diagnosis area: ADHDAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Intellectual disability and mental health Recommended Confirm this diagnosis area applies and estimated N if shown.	Intellectual disability and mental health · Neurodevelopmental	Field-cited	ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “Data will be extracted using the Clinical Record Interactive Search (CRIS) tool for all people with recorded intellectual disability and/or autism who received mental healthcare from 2015.” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs estimated_n NULL: protocol does not publish a denominator for intellectual-disability-only strata. ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “intellectual disability and/or autism” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “intellectual disability and/or autism” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Confirms cohort_diagnosis_areas row (39,29) Intellectual disability and mental health from the same ELFT protocol text.	Response for Diagnosis area: Intellectual disability and mental healthAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: East London NHS Foundation Trust Recommended	East London NHS Foundation Trust · London	Field-cited	ELFT — Research resource: Ali 2025 protocol (CRIS extraction) https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Section: Methods and Analysis (protocol body) “We will conduct a retrospective cohort study using de-identified data from electronic health records derived from two large National Health Service mental health providers in London, England, including one replication site.” Page: https://www.elft.nhs.uk/research/resource/investigating-use-and-impact-community-care-education-and-treatment-reviews-cetrs Cohort_site link documents that this trust-level resource is anchored to East London NHS Foundation Trust site id 36. Phase B mandatory registry sweeps (union): ClinicalTrials.gov v2 JSON trust-name and ELFT mental-health queries (cohorts/cris-elft/clinicaltrialsgov_query_elft-name_2026-04-16.json; clinicaltrialsgov_query_elft-mental-health_2026-04-16.json; clinicaltrialsgov_query_london-mental-health_2026-04-16.json), ISRCTN XML trust-name and London mental-health queries (isrctn_api_query_elft_2026-04-16.xml; isrctn_api_query_london-mh_2026-04-16.xml), ELFT website/protocol HTML, and HDR UK Gateway search HTML did not identify a second distinct NHS organisation that independently hosts the ELFT trust-level CRIS record archive as a separate DIGIT site row. UNSOURCEABLE: no public per-trust cumulative CRIS denominator; local_n remains NULL.	Response for Linked site: East London NHS Foundation TrustAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from CRIS Network members and governance pages (crisnetwork.co HTML), Lia et al. 2022 UK-CRIS validation paper (PMC8889024 HTML), East London NHS Foundation Trust home and research protocol pages (elft.nhs.uk HTML), ClinicalTrials.gov v2 API JSON queries (East London NHS Foundation Trust; ELFT mental health; London mental health union search), ISRCTN XML API queries (East London NHS Foundation Trust; London AND mental health union search), HDR UK Innovation Gateway web search HTML snapshot, Google Scholar query ("cohort profile" "East London" CRIS) with no trust-specific cohort profile retrieved, and DPUK programme homepage HTML snapshot (dementiasplatform.uk) with no dedicated East London CRIS catalogue entry located in the downloaded page body.	Internal	Internal catalogue field	—	—