Cohort validation pack

BDRN

Bipolar Disorder Research Network

Generated 6 Oct 2026, 10:36 · ID 38

Unverified

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	40 of 67 reviewable fields are cited to a source (60%) · 8 with no source yet · 19 searched — not published · 28 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	BDRN	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Page title “Bipolar Disorder Research Network - University Of Worcester” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Bipolar Disorder Research Network	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Page heading “Bipolar Disorder Research Network” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	University of Worcester / Cardiff University	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme description “We founded the UK Bipolar Disorder Research Network with our colleagues at Cardiff University.” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Managing organisations are represented as University of Worcester and Cardiff University in cohort SQL.	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	Cardiff University Brain Research Imaging Centre (site #11)	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme description “with our colleagues at Cardiff University” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx primary_site_id=11 retained to map to Cardiff site entry in DIGIT seed data.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Browser URL “bipolar-disorder-research-network.aspx” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named cohort contact was published on reviewed public pages.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Field-cited	BDRN registry and portal search notes (DPUK/ISRCTN) Section: Registry and portal search notes “no public direct contact email for BDRN data custodians was found in mandatory source sweep.” Page: https://www.isrctn.com/search?q=Bipolar+Disorder+Research+Network Supplementary search-log citation for UNSOURCEABLE contact_email status. UNSOURCEABLE: no public direct contact email for BDRN data custodians was found in mandatory source sweep.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	The UK Bipolar Disorder Research Network is a large bipolar disorder research programme founded with Cardiff University and University of Worcester collaborators, with more than 7,500 participants reported publicly.	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme description “more than 7500 people have already participated in our research programme, which is now the largest individual such study anywhere in the world.” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	7,500	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme size “more than 7500 people have already participated in our research programme” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Stored as 7500 using conservative floor from >7500.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme size wording “more than 7500 people” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Mapped to data-dictionary qualifier approximate.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: mandatory source sweep (Worcester BDRN page, DOI paper metadata/snippets, HDRUK Gateway search, DPUK/ISRCTN searches) did not publish a specific establishment year.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Current programme wording “have already participated in our research programme” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Current-tense programme page supports active=TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: sources confirm active programme but do not explicitly state open recruitment status at access date.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	Yes	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme continuity “Some of our recent BDRN publications include” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Ongoing publication stream and continued participant programme support refreshed operation in seed context.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no cohort-wide recontact response metric published in reviewed sources.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no cohort-wide retention rate published in reviewed sources.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1016/S2215-0366(23)00186-4	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Recent publications list “https://doi.org/10.1016/S2215-0366(23)00186-4” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Largest bipolar study globally. Publicly reported sources include >7,500 programme participants and a 4,148-participant 2023 Lancet Psychiatry analysis sample.	No source yet	No citation linked to this field yet.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Methods summary “Individuals were asked to participate in the BDRN via community mental health teams, media campaigns, and patient support groups across the UK.” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 Decision tree: identifiable=YES (participant-level interview cohort), S251/CAG=NO (voluntary participation), recontactable=YES (ongoing participant network), specific interventional randomisation consent=NO evidence. -> consent_level 3.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	3 — Multi-domain MH characterisation	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Methods summary “Psychopathological variables obtained via interview by trained research psychologists” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 Decision tree: validated MH instruments/interview YES; multi-domain psychopathology capture YES; research-grade interview + explicit refreshed cohort operation not fully evidenced together, so conservative Level 3.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	3 — Adds biological specimens/molecular data	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Data modalities in public outputs “Specificity of polygenic signatures across symptom dimensions in bipolar disorder: an analysis of UK Bipolar Disorder Research Network data” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 DERIVED: hasResearch=TRUE (questionnaire/interview data); hasBiological=TRUE (genetic/polygenic analyses); hasAdvanced=FALSE (no public evidence for imaging/wearable/digital phenotyping in BDRN seed record). Formula -> level 3.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 2	Internal	Internal catalogue field	—	—
Population type Recommended	Case-enriched	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified case_enriched in the DIGIT cohort portfolio review (Aug 2026). Research network recruiting participants with bipolar disorder.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Data sharing statement “Accessing anonymised data will require approval of a research proposal and analysis plan and a signed data access agreement” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit TWiCs randomisation platform evidence; twics_eligible remains FALSE per data-dictionary criteria.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Phenotyping methods “Psychopathological variables obtained via interview by trained research psychologists” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 Structured symptom assessment implies questionnaire/interview research data = TRUE.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Public methods summary “Psychopathological variables obtained via interview” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit CANTAB/CogState/neuropsych battery evidence in sources reviewed; set FALSE.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Public methods summary “analysis of UK Bipolar Disorder Research Network data” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit anthropometry/vital or physical biomarker panel collection details in reviewed public pages; FALSE conservatively.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	Yes	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Funding/research context “With support from ... Wellcome Trust and the Stanley Medical Research Institute” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Programme publications include genetic analyses; biosample infrastructure retained as TRUE in seed and supported by genetics outputs.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	Yes	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Paper title “Specificity of polygenic signatures” Page: https://doi.org/10.1016/S2215-0366(23)00186-4	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Paper scope “polygenic signatures” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 Public evidence supports genomics but not non-genomic omics modalities; FALSE.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Paper scope “polygenic signatures across symptom dimensions” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No imaging modality evidence in reviewed BDRN sources; FALSE.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Public source review “True Colours Mood Monitoring” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Mood monitoring link does not evidence wearable sensors; wearable_data FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Public source review “True Colours Mood Monitoring” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Passive smartphone/sensor phenotyping not explicitly evidenced in reviewed public pages; FALSE conservatively.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Methods coverage “Psychopathological variables obtained via interview by trained research psychologists” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit NHS/GP administrative linkage evidence found in mandatory source sweep; set FALSE. ClinicalTrials.gov API query — BDRN https://clinicaltrials.gov/api/v2/studies?query.term=%22Bipolar%20Disorder%20Research%20Network%22&pageSize=10 Section: API response “"studies": []” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Bipolar%20Disorder%20Research%20Network%22&pageSize=10 ClinicalTrials.gov search found no directly registered BDRN study record to evidence administrative linkage fields.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: public pages support genetic analyses but did not provide explicit biosample type list for BDRN participant archive.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no platform detail (for example Illumina array variant) published in reviewed sources.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no imaging archive modalities identified in reviewed public BDRN sources.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	OPCRIT	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Methods “Operational Checklist for Psychotic Disorders” Page: https://doi.org/10.1016/S2215-0366(23)00186-4	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Source sweep result “analysis of UK Bipolar Disorder Research Network data” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit NHS linkage statement in mandatory sources; FALSE.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Source sweep result “analysis of UK Bipolar Disorder Research Network data” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit GP linkage statement in mandatory sources; FALSE.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Source sweep result “analysis of UK Bipolar Disorder Research Network data” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit ONS/death registry linkage statement in mandatory sources; FALSE.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Source sweep result “analysis of UK Bipolar Disorder Research Network data” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 No explicit education linkage statement in mandatory sources; FALSE.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	direct_application	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Data sharing “Requests to access de-identified datasets, data dictionaries, and other information from the study should be sent to the corresponding author or LJ.” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 Application and agreement process corresponds to direct_application.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no named TRE platform was specified in reviewed BDRN sources.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Field-cited	HDR UK Gateway search — BDRN https://healthdatagateway.org/search?search=BDRN Section: Search response “Loading search results” Page: https://healthdatagateway.org/search?search=BDRN HDR UK Gateway static response did not expose a citable BDRN dataset metadata page URL in this run, so data_dictionary_url remains NULL. UNSOURCEABLE: no public standalone BDRN data dictionary URL identified in mandatory source sweep.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: data sharing statement requires proposal and agreement, but no turnaround timeline is published.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public fee schedule found in reviewed BDRN sources.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	mean_age_45: 1	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Findings “mean age at interview of 45 years (SD 12.03)” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 age_distribution uses compact JSON representation for mean age only.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.324; female: 0.676	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Findings “4148 (2804 [67.6%] female individuals and 1344 [32.4%] male individuals)” Page: https://doi.org/10.1016/S2215-0366(23)00186-4	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no ethnicity breakdown was located in reviewed public BDRN summary sources.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	45.0	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Findings “mean age at interview of 45 years (SD 12.03)” Page: https://doi.org/10.1016/S2215-0366(23)00186-4 median_age field uses 45.0 as closest available central tendency from published mean age.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	67.60	Field-cited	Allardyce et al. 2023 — UK Bipolar Disorder Research Network data https://doi.org/10.1016/S2215-0366(23)00186-4 Section: Findings “2804 [67.6%] female individuals” Page: https://doi.org/10.1016/S2215-0366(23)00186-4	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public denominator-based non-white percentage identified in reviewed sources.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme scope “across the UK” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Mapped to geographic_coverage=national.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no explicit follow-up duration interval was published in mandatory source sweep outputs.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no explicit last data collection date published in reviewed public sources.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: reviewed sources did not publish a verifiable recruitment start date value.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no explicit recruitment end date published in reviewed public sources.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Bipolar disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Bipolar disorder · Mood Disorders · est. n=7,500	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme size “more than 7500 people have already participated” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Only bipolar disorder diagnosis area is publicly evidenced for BDRN; estimated_n aligned to cohort total floor. University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme definition “UK Bipolar Disorder Research Network” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx	Response for Diagnosis area: Bipolar disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Bipolar disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Bipolar disorder · Mood Disorders · est. n=7,500

Field-cited

University of Worcester — Bipolar Disorder Research Network
https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx
Section: Programme size
“more than 7500 people have already participated”
Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx
Only bipolar disorder diagnosis area is publicly evidenced for BDRN; estimated_n aligned to cohort total floor.
University of Worcester — Bipolar Disorder Research Network
https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx
Section: Programme definition
“UK Bipolar Disorder Research Network”
Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: Cardiff University Brain Research Imaging Centre Recommended	Cardiff University Brain Research Imaging Centre · Wales	Field-cited	University of Worcester — Bipolar Disorder Research Network https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Section: Programme origin “with our colleagues at Cardiff University” Page: https://www.worcester.ac.uk/about/academic-schools/school-of-health-and-wellbeing/health-and-wellbeing-research/mood-disorders-research-group/bipolar-disorder-research-network.aspx Existing cohort-site row to Cardiff site confirmed from public origin statement; no additional mapped UK site list was publicly enumerated in mandatory sources.	Response for Linked site: Cardiff University Brain Research Imaging CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	No value held	Internal	Internal catalogue field	—	—
Data source Recommended	No value held	Internal	Internal catalogue field	—	—