Cohort validation pack

CRIS Nottinghamshire

CRIS (Akrivia platform), Nottinghamshire Healthcare NHS Foundation Trust

Generated 6 Oct 2026, 10:37 · ID 31

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	42 of 74 reviewable fields are cited to a source (57%) · 7 with no source yet · 25 searched — not published · 30 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	CRIS Nottinghamshire	Field-cited	CRIS Network — Members (Nottinghamshire Healthcare NHS Foundation Trust) https://crisnetwork.co/members Section: Member trust list “Nottinghamshire Healthcare NHS Foundation Trust” Page: https://crisnetwork.co/members DIGIT short name CRIS Nottinghamshire is the canonical trust-level UK-CRIS label parallel to other CRIS cohort rows.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	CRIS (Akrivia platform), Nottinghamshire Healthcare NHS Foundation Trust	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Page meta (og:title) and Trust name in HTML title “CRIS (Akrivia platform)” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ full_name combines og:title with the Trust legal name from the page title suffix (Information about CRIS ... \| Nottinghamshire Healthcare NHS Foundation Trust).	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Nottinghamshire Healthcare NHS Foundation Trust	Field-cited	CRIS Network — Members (Nottinghamshire Healthcare NHS Foundation Trust) https://crisnetwork.co/members Section: Member trust list “Nottinghamshire Healthcare NHS Foundation Trust” Page: https://crisnetwork.co/members	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR Nottingham Biomedical Research Centre (site #10)	Field-cited	CRIS Network — Members (Nottinghamshire Healthcare NHS Foundation Trust) https://crisnetwork.co/members Section: Member trust list “Nottinghamshire Healthcare NHS Foundation Trust” Page: https://crisnetwork.co/members primary_site_id=10 (NIHR Nottingham BRC) is the DIGIT feasibility anchor documented in db/seed.sql when no dedicated Nottinghamshire Healthcare NHS FT sites row exists; the BRC host organisation differs from the mental health trust but serves as the regional research mapping convention for this seed.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Canonical link “https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named cohort PI distinct from CRIS coordinator role on pages consulted.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	cris@nottshc.nhs.uk	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Contact paragraph “cris@nottshc.nhs.uk” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	De-identified Clinical Record Interactive Search (CRIS) for Nottinghamshire Healthcare NHS Foundation Trust: pseudonymised RiO mental health records (progress notes, user assessment forms, NLP-derived diagnosis and medication signals) accessed via Akrivia Health CRIS in a trusted research environment. Member trust of the UK-CRIS / CRIS Network; federated network analyses are possible with permission.	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “CRIS is the Clinical Record Interactive Search system powered by Akrivia Health. The CRIS system allows access to our deidentified electronic patient records to help and support research studies, clinical audit, service evaluations, Quality Improvement projects here at the Trust.” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Combined with CRIS Network member-trust context and the RiO/NLP paragraphs on the same page.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE: no public cumulative de-identified CRIS record count for this trust in members-page blurb, governance pages, or trust CRIS page.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: total_n is NULL so qualifier cleared.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: trust-specific CRIS go-live year not stated on crisnetwork.co members text, governance HTML, or trust CRIS page snapshot; no trust-specific cohort profile paper retrieved via targeted web search in this pass.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	CRIS Network — Members (Nottinghamshire Healthcare NHS Foundation Trust) https://crisnetwork.co/members Section: Member trust list “Nottinghamshire Healthcare NHS Foundation Trust” Page: https://crisnetwork.co/members Member trust still listed on live CRIS Network members page → is_active TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “search the anonymous database” Page: https://crisnetwork.co/governance Infrastructure resource rather than single actively recruiting study cohort → ongoing_recruitment FALSE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “Data is de-identified and is anonymous when made available for research.” Page: https://crisnetwork.co/governance Rolling administrative EHR archive is not a refreshed prospective research cohort per data-dictionary definition → FALSE.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not published as a cohort-level metric.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: administrative record platform without cohort retention statistic.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	10.1016/j.ijmedinf.2022.104704	Field-cited	Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Crossref / DOI redirect stub “Redirecting” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704 DOI 10.1016/j.ijmedinf.2022.104704 retained as contextual UK-CRIS secondary-care mental health records literature (network-level, not trust-exclusive); publisher full text not retrieved — DOI resolver HTML saved locally.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Trust-level UK-CRIS archive. has_linked_health_records=FALSE and data_availability=1 follow docs/data-dictionary.md: the cohort is the NHS mental health record system (use has_nhs_linkage); has_linked_health_records is for external administrative linkage to a separate research dataset. primary_site_id=10 and cohort_sites (31,10) follow the DIGIT convention documented in db/seed.sql when no dedicated Nottinghamshire Healthcare sites row exists.	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: cohorts.notes (synthesised with data-dictionary citations) “Trust-level UK-CRIS archive. has_linked_health_records=FALSE and data_availability=1 follow docs/data-dictionary.md: the cohort is the NHS mental health record system (use has_nhs_linkage); has_linked_health_records is for external administrative linkage to a separate research dataset. primary_site_id=10 and cohort_sites (31,10) follow the DIGIT convention documented in db/seed.sql when no dedicated Nottinghamshire Healthcare sites row exists.” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Operational notes field encodes overlap rule for has_linked_health_records vs has_nhs_linkage, mechanical data_availability=1 derivation, and DIGIT cohort_sites/primary_site anchor convention. Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Publisher metadata “mental health outcomes” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704 Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Publisher metadata “mental health outcomes” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704 ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 conditions list “ADHD” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies example briefTitle “Narrative Exposure Therapy for Adults With Intellectual Disability” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies example briefTitle “Narrative Exposure Therapy for Adults With Intellectual Disability” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies example briefTitle “Promoting Activity, Independence and Stability in Early Dementia and Mild Cognitive Impairment” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 conditions list “Tourette Syndrome” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “patients with schizophrenia” Page: https://crisnetwork.co/governance Schizophrenia used as worked example of CRIS search use-cases.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “If for example an NHS Trust wants to speak to patients with schizophrenia who are female and between the ages of 25-45 they can use CRIS to search the anonymous database and find out how many people they have who fit this criteria. If these people have given their consent to be contacted about relevant research projects, a special process can be carried out to allow the researchers to get in contact with these (and only these) individuals.” Page: https://crisnetwork.co/governance Step 1: default research mode uses de-identified secondary-care extracts. Step 2: consistent with Section 251/CAG-governed NHS secondary-use model for CRIS → consent_level 2. Step 3: optional recontact where separate consent exists is not the default for the whole archive. Step 4: no blanket interventional consent.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	2 — Standardised MH instruments	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: RiO and NLP paragraph “CRIS enables access to data held on RiO in a pseudonymised form. This includes progress notes and user assessment forms. This can be done using a standard search or one of the many NLP tools available on the platform to help interpret data currently not available elsewhere.” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Decision tree: baseline routine MH EHR (level 1). Trust CRIS adds structured documentation plus NLP-derived diagnosis and medication tables beyond bare ICD codes → conservative level 2 (not a SCID-grade research interview cohort).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Not published	DERIVED per docs/data-dictionary.md Data Availability (1-4): hasResearch = questionnaire OR cognitive OR physical OR linked_health_records. has_linked_health_records is FALSE because this resource is the NHS mental health record system itself (Overlap rule in Cohort Data Type Flags — use has_nhs_linkage), not external administrative linkage. All Group A flags FALSE → hasResearch=FALSE. hasBiological=FALSE; hasAdvanced=FALSE → score 1.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). De-identified NHS trust electronic health record research database — a clinical records resource, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “search the anonymous database” Page: https://crisnetwork.co/governance TWiCs requires consent_level 4 per data-dictionary; scored at 2 → FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE per data-dictionary: RiO user assessment forms and NLP tables are clinical record infrastructure, not a named research questionnaire battery administered as a standalone cohort protocol.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: no evidence of a dedicated research cognitive test battery as a defined CRIS archive deliverable.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: no evidence of a dedicated research physical measurement programme for the CRIS archive.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: biosample banking not described as part of CRIS.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: genomics not described as part of CRIS.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: omics not described as part of CRIS.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: imaging research archive not described as part of CRIS.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: wearable programme not described.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: passive digital phenotyping (GPS/metadata) programme not described; NLP is not digital phenotyping per data-dictionary.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE per docs/data-dictionary.md Cohort Data Type Flags — has_linked_health_records: the cohort is an NHS mental health electronic record resource; those records are not linkage to external administrative datasets. Detail sub-fields with has_nhs_linkage=TRUE.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL array; no biosample catalogue for trust-level CRIS.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL array.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: NULL array; routine NLP-derived signals are not enumerated as validated named instruments (PHQ-9, GAD-7, etc.) on accessed pages.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “If for example an NHS Trust wants to speak to patients with schizophrenia” Page: https://crisnetwork.co/governance TRUE: archive is NHS secondary-care mental health service records for the trust.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: RiO paragraph “CRIS enables access to data held on RiO in a pseudonymised form.” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: GP-primary-care record linkage is not stated as a guaranteed property of the CRIS archive on accessed pages.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: ONS death-registry linkage not stated as guaranteed on accessed pages.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Opening paragraph “deidentified electronic patient records” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ FALSE: education-record linkage not described.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	tre	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: Security paragraph “access to CRIS is through a secure and trusted research environment that protects and maintains the anonymity of our service users” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Mapped to enumerated value tre (Trusted Research Environment) per data-dictionary definition.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	CRIS	Field-cited	Nottinghamshire Healthcare NHS Foundation Trust — CRIS (Akrivia platform) https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ Section: CRIS Network bullet “combine our data with that of other Trusts in the CRIS Network” Page: https://www.nottinghamshirehealthcare.nhs.uk/re-uk-cris/ tre_platform label CRIS matches programme naming on the Trust page and CRIS Network context.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Field-cited	HDR UK Innovation Gateway — dataset filter API (Nottinghamshire CRIS) https://api.healthdatagateway.org/filters/dataset?search=Nottinghamshire%20CRIS Page: https://api.healthdatagateway.org/filters/dataset?search=Nottinghamshire%20CRIS UNSOURCEABLE (HDR UK leg): Innovation Gateway filters/dataset API returned JSON error body (route not found) in downloaded snapshot. DPUK Data Portal — Cohort Directory https://data.dpuk.ukserp.ac.uk/CohortDirectory Page: https://data.dpuk.ukserp.ac.uk/CohortDirectory UNSOURCEABLE (DPUK leg): Cohort Directory HTML downloaded; text search for Nottinghamshire / CRIS returned no match — no DPUK data dictionary URL for this trust CRIS resource.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no standard published timeline for trust-level CRIS access in sources consulted.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no standard published cost.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no Table 1-style age distribution published for this trust-level CRIS resource on sources consulted.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no sex distribution published for this trust-level CRIS resource on sources consulted.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no ethnicity distribution published for this trust-level CRIS resource on sources consulted.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no median age on sources consulted.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	single_site	Field-cited	CRIS Network — Members (Nottinghamshire Healthcare NHS Foundation Trust) https://crisnetwork.co/members Section: Member trust list body “for the people of Nottinghamshire” Page: https://crisnetwork.co/members All records originate from one NHS trust footprint → geographic_coverage single_site per data-dictionary, aligned with other trust-level CRIS cohort rows.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: rolling EHR; no single follow-up window.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: rolling administrative records.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not a closed recruitment cohort.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body (CRIS programme) “patients with schizophrenia” Page: https://crisnetwork.co/governance estimated_n NULL: no trust-specific schizophrenia denominator published. CRIS Network — Governance https://crisnetwork.co/governance Section: Governance body “patients with schizophrenia” Page: https://crisnetwork.co/governance Schizophrenia used as worked example of CRIS search use-cases.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Publisher metadata “mental health outcomes” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704 estimated_n NULL: Lia et al. abstract does not give Nottinghamshire-specific depression counts; depression is nonetheless a core UK secondary-care MH EHR phenotype. Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Publisher metadata “mental health outcomes” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Publisher metadata “mental health outcomes” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704 estimated_n NULL: anxiety disorders inferred as routinely coded in secondary-care MH EHR research populations. Lia et al. 2022 — Validation of UK Biobank mental health outcomes using UK-CRIS (International Journal of Medical Informatics) https://doi.org/10.1016/j.ijmedinf.2022.104704 Section: Publisher metadata “mental health outcomes” Page: https://doi.org/10.1016/j.ijmedinf.2022.104704	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: PTSD Recommended Confirm this diagnosis area applies and estimated N if shown.	PTSD · Trauma-Related	Field-cited	ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies union conditionsModule “PTSD” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Phase B: PTSD appears among conditions returned for studies listing this trust. estimated_n NULL. ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies example briefTitle “Narrative Exposure Therapy for Adults With Intellectual Disability” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json	Response for Diagnosis area: PTSDAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: ADHD Recommended Confirm this diagnosis area applies and estimated N if shown.	ADHD · Neurodevelopmental	Field-cited	ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies union conditionsModule “ADHD” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Phase B NEW: ADHD appears in conditions union for studies with this trust as a location. estimated_n NULL. ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 conditions list “ADHD” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json	Response for Diagnosis area: ADHDAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies union conditionsModule “Dementia” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Phase B: dementia/MCI conditions appear among returned studies listing this trust; mapped to diagnosis_area_id 20. estimated_n NULL. ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies example briefTitle “Promoting Activity, Independence and Stability in Early Dementia and Mild Cognitive Impairment” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Tourette syndrome Recommended Confirm this diagnosis area applies and estimated N if shown.	Tourette syndrome · Neurodevelopmental	Field-cited	ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies union conditionsModule “Tourette Syndrome” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Phase B NEW: Tourette syndrome appears in conditions union. estimated_n NULL. ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 conditions list “Tourette Syndrome” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json	Response for Diagnosis area: Tourette syndromeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Intellectual disability and mental health Recommended Confirm this diagnosis area applies and estimated N if shown.	Intellectual disability and mental health · Neurodevelopmental	Field-cited	ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies union conditionsModule “Intellectual Disability” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Phase B NEW: intellectual disability conditions appear in union; mapped to diagnosis_area_id 29. estimated_n NULL. ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies example briefTitle “Narrative Exposure Therapy for Adults With Intellectual Disability” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json	Response for Diagnosis area: Intellectual disability and mental healthAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: NIHR Nottingham Biomedical Research Centre Recommended	NIHR Nottingham Biomedical Research Centre · East Midlands	Field-cited	ClinicalTrials.gov API v2 — studies query (Nottinghamshire Healthcare NHS Foundation Trust) https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Section: ClinicalTrials.gov v2 studies[0].protocolSection.identificationModule.briefTitle “Narrative Exposure Therapy for Adults With Intellectual Disability” Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Nottinghamshire%20Healthcare%20NHS%20Foundation%20Trust%22&pageSize=20&format=json Registry confirms mental health trial activity at the trust but does not publish a CRIS archive denominator; local_n remains NULL. CRIS Network — Members (Nottinghamshire Healthcare NHS Foundation Trust) https://crisnetwork.co/members Section: Member trust list “Nottinghamshire Healthcare NHS Foundation Trust” Page: https://crisnetwork.co/members Site id 10 (NIHR Nottingham BRC) is the DIGIT anchor documented in db/seed.sql when no dedicated Nottinghamshire Healthcare sites row exists; Phase B ClinicalTrials.gov and ISRCTN union did not surface an alternative mapped DIGIT site_id for this trust-level CRIS instance.	Response for Linked site: NIHR Nottingham Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from CRIS Network (crisnetwork.co members and governance HTML), Nottinghamshire Healthcare NHS FT CRIS page (nottinghamshirehealthcare.nhs.uk/re-uk-cris/), Lia et al. 2022 doi:10.1016/j.ijmedinf.2022.104704 (DOI redirect HTML), ClinicalTrials.gov v2 API (Nottinghamshire Healthcare NHS FT; Nottingham mental health union query), ISRCTN XML API (trust name; Nottingham AND mental health; Nottshc acronym; 0 trials), DPUK Data Portal Cohort Directory HTML (data.dpuk.ukserp.ac.uk; no Nottinghamshire CRIS listing), HDR UK Innovation Gateway REST JSON error (api.healthdatagateway.org/filters/dataset), Google Scholar-style web search found no trust-specific “cohort profile” paper for this CRIS instance.	Internal	Internal catalogue field	—	—