Cohort validation pack

CRIS CNTW

Cumbria, Northumberland, Tyne and Wear CRIS

Generated 6 Oct 2026, 10:36 · ID 30

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	39 of 73 reviewable fields are cited to a source (53%) · 7 with no source yet · 27 searched — not published · 30 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	CRIS CNTW	Field-cited	CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Page title “CRIS - Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ Short catalogue label 'CRIS CNTW' abbreviates the Trust CRIS programme title (CRIS + CNTW acronym), consistent with other CRIS-* cohort rows.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Cumbria, Northumberland, Tyne and Wear CRIS	Field-cited	CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Page title “CRIS - Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ full_name 'Cumbria, Northumberland, Tyne and Wear CRIS' appends CRIS to the registered Trust legal name from the canonical CRIS page title.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust	Field-cited	CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Page title “Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR Newcastle Biomedical Research Centre (site #9)	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust listing “Northumberland, Tyne and Wear NHS Foundation Trust is one of the largest mental health and disability Trusts in England employing more than 6,000 staff, serving a population of approximately 1.4 million” Page: https://crisnetwork.co/ primary_site_id=9 (NIHR Newcastle BRC) is used as the regional mental health research anchor because DIGIT has no dedicated CNTW Trust site row; Newcastle BRC sits in the same city region as the Trust headquarters. CRIS Network member text still uses the legacy name Northumberland, Tyne and Wear NHS Foundation Trust; the legal provider is Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust (Trust CRIS page title).	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.cntw.nhs.uk/services/research-and-development/cris/	Field-cited	CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Canonical URL “https://www.cntw.nhs.uk/services/research-and-development/cris/” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ website_url points to the Trust's dedicated CRIS information page (primary public documentation for this resource).	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No named CRIS programme lead role/title extracted from reviewed public pages (only role mailboxes).	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	CRISAdministrator@cntw.nhs.uk	Field-cited	CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Applications “To apply for CRIS access or to discuss a project application, please email” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ Primary CRIS access mailbox decoded from Cloudflare data-cfemail attributes in the archived HTML: CRISAdministrator@cntw.nhs.uk (secondary contact Simon.walker@cntw.nhs.uk on the same paragraph). cohorts.contact_email stores the administrator address.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	CRIS (Clinical Record Interactive Search) at CNTW removes information from electronic mental health records that might identify an individual and produces a de-identified database the Trust can use for research, audits and service evaluation under registration, training, contract and oversight-committee controls; the resource does not constitute a separate prospective recruitment cohort.	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Methods “All clinical data, including free text, are available for analysis in the form of anonymised datasets.” Page: https://doi.org/10.1186/1471-244X-9-51 Second provenance row documents the generic CRIS / case-register architecture referenced by the Trust CRIS page. CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: What is CRIS? “CRIS stands for the Clinical Record Interactive Search system. It is a software solution that removes information from an electronic medical record that might identify an individual. It then produces a de-identified database that an NHS organisation can use for research.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE: No public cumulative CRIS record / service-user census for CNTW was found on the Trust CRIS page (https://www.cntw.nhs.uk/services/research-and-development/cris/) or the Trust R&D hub page. CRIS Network describes a national platform scale (2.5M records) but does not allocate counts per trust. HDR UK search capture did not yield an extractable CNTW-specific dataset census; DPUK cohort directory search (https://data.dpuk.ukserp.ac.uk/cohortdirectory/Search?q=CNTW, local_file cohorts/cris-cntw/dpuk_cohort_search_cntw_2026-04-16.html) likewise did not surface a CNTW CRIS census.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: total_n is NULL; qualifier not applicable.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Field-cited	Google Scholar https://scholar.google.com Section: Scholar results header “1 result (<b>0.07</b> sec)” Page: https://scholar.google.com/scholar?q=%22cohort%20profile%22+CNTW+CRIS UNSOURCEABLE: No identifiable IJE-style 'cohort profile' for 'CRIS CNTW'; the returned hit was unrelated (machine-learning ADHD video paper). Prior seed year_established=2017 matched website copyright text, not a CRIS go-live date — removed and left NULL.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	CNTW — Research and Development https://www.cntw.nhs.uk/services/research-and-development/ Section: Present tense “In a typical year we proudly sponsor around 50 studies and host between 50 to 60 large scale” Page: https://www.cntw.nhs.uk/services/research-and-development/ Trust research enterprise is described as ongoing; CRIS Network lists the Trust as a member → is_active TRUE for the CRIS resource.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	ClinicalTrials.gov https://clinicaltrials.gov Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Cumbria%2C%20Northumberland%2C%20Tyne%20and%20Wear%20NHS%20Foundation%20Trust%22&pageSize=100 ongoing_recruitment=FALSE: CRIS is an EHR research database, not a single recruiting cohort protocol. ClinicalTrials.gov API v2 mandatory union saved as local_file cohorts/cris-cntw/clinicaltrials_gov_api_cntw_full_trust_2026-04-16.json, cohorts/cris-cntw/clinicaltrials_gov_api_cntw_acronym_2026-04-16.json, cohorts/cris-cntw/clinicaltrials_gov_api_st_nicholas_2026-04-16.json, and cohorts/cris-cntw/clinicaltrials_gov_api_newcastle_mental_health_2026-04-16.json — returned portfolio studies but none define the CRIS database itself as an open-recruitment cohort. ISRCTN https://isrctn.com Page: https://www.isrctn.com/api/query/format/default?q=%22Cumbria%2C%20Northumberland%2C%20Tyne%20and%20Wear%20NHS%20Foundation%20Trust%22&limit=200 ISRCTN API mandatory union also saved as cohorts/cris-cntw/isrctn_api_cntw_mental_health_2026-04-16.xml and cohorts/cris-cntw/isrctn_api_cntw_acronym_2026-04-16.xml; no standalone ISRCTN record for the CRIS database contradicting ongoing_recruitment=FALSE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 No discrete prospective cohort refreshment protocol separate from live EHR updates → is_refreshed=FALSE.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not published as a CRIS database metric on reviewed pages.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not applicable as a closed-cohort retention statistic for this resource type.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1186/1471-244X-9-51	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Citation “10.1186/1471-244X-9-51” Page: https://doi.org/10.1186/1471-244X-9-51 Foundational open-access cohort profile for the CRIS tool class applied across member trusts.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	CRIS Network member text still uses the former name Northumberland, Tyne and Wear NHS Foundation Trust; the legal NHS provider is Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust, described on Trust pages as one of the largest mental health, learning disability and neurorehabilitation trusts in England. R&D pages highlight national portfolio scale and research leadership in autism, affective disorders, cognitive behavioural therapy and dementia.	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust listing “We work from over 60 sites across Northumberland, Newcastle, North Tyneside, Gateshead, South Tyneside and Sunderland.” Page: https://crisnetwork.co/ CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Opening paragraph “The CRIS Network is a group of highly innovative NHS Mental Health Trusts who are working together to accelerate research into dementia and mental health.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ Documents national CRIS Network framing referenced in cohort notes. CNTW — Research and Development https://www.cntw.nhs.uk/services/research-and-development/ Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ Second provenance row documents Trust-declared research leadership themes referenced in notes.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 Supporting evidence for technical anonymisation safeguards underpinning CRIS-type resources. CRIS Network https://crisnetwork.co Section: Meta description “CRIS Network is developing a research platform across the UK that harnesses over 2.5 million anonymised patient records for research into dementia.” Page: https://crisnetwork.co/ Supporting national-network context for anonymised record reuse at scale. CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Is CRIS an Opt-in or an Opt-out model? “CRIS works on an opt-out model. Data is de-identified and is anonymous when made available for research. However, patients always have the option to opt their record out from being included in CRIS.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ Decision tree per docs/data-dictionary.md: (1) Individual-level information exists within the NHS record system (YES). (2) Access is framed as de-identified secondary use with an opt-out, not affirmative per-project consent for each secondary-use analysis → aligns with consent_level=2 (S251/CAG-style confidential secondary use). (3) No evidence that all service users have opted in to recontact for future studies → not level 3. (4) No interventional consent → not level 4.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Methods “We describe the development of the South London and Maudsley NHS Foundation Trust (SLAM) Biomedical Research Centre (BRC) Case Register Interactive Search tool (CRIS) which allows research-accessible datasets to be derived from SLAM, the largest provider of secondary mental healthcare in Europe.” Page: https://doi.org/10.1186/1471-244X-9-51 Supporting evidence that CRIS-type resources are EHR-derived secondary datasets, not a deep phenotyping interview cohort. CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: What is CRIS? “It is a software solution that removes information from an electronic medical record that might identify an individual.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ Characterisation tree step 1: resource is derived from routine clinical electronic records for secondary analysis without a described research-only validated instrument battery → characterisation_depth=1 (Routine EHR).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Derivation “N/A — derived score” Page: https://doi.org/10.1186/1471-244X-9-51 Mechanical derivation per docs/data-dictionary.md: all ten modality flags FALSE (including has_linked_health_records=FALSE because the archive is the NHS EHR, not a separate research dataset linked to NHS records) → data_availability=1.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). De-identified NHS trust electronic health record research database — a clinical records resource, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Not published	twics_eligible=FALSE per schema definition (requires consent_level=4); this resource is consent_level=2.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Methods “We describe the development of the South London and Maudsley NHS Foundation Trust (SLAM) Biomedical Research Centre (BRC) Case Register Interactive Search tool (CRIS) which allows research-accessible datasets to be derived from SLAM, the largest provider of secondary mental healthcare in Europe.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE per data-dictionary: CRIS is an EHR secondary-use tool, not a named research PROM battery administered under a cohort protocol.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Methods “All clinical data, including free text, are available for analysis in the form of anonymised datasets.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: no evidence of a research-grade cognitive test battery programme as a defining modality of the CRIS archive class.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “The most common assigned primary diagnoses were within the ICD mood disorders (n = 12,756) category followed by schizophrenia and related disorders (8158), substance misuse (7749), neuroses (7105) and organic disorders (6414).” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: tabulations are diagnoses from clinical records, not a structured physical measurement research programme.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: no biobanking modality described for CRIS as an EHR resource.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: no genomics archive described.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: no omics modality described.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: CRIS profile concerns clinical records, not imaging archives.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE: no wearable programme described.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Abstract “allowing in-depth secondary analysis of both numerical, string and free text data, whilst preserving anonymity through technical and procedural safeguards.” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE per data-dictionary: passive smartphone/sensor digital phenotyping is not established from clinical free-text NLP alone.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Overlap resolution “N/A — dictionary rule” Page: https://doi.org/10.1186/1471-244X-9-51 FALSE per docs/data-dictionary.md: NHS EHR research copies use has_nhs_linkage / specific linkage flags; has_linked_health_records is for separate linked administrative research datasets, not the Trust EHR itself.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No biosample_types array documented for CNTW CRIS.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No genotyping platform documented.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No imaging_modalities research archive documented for CRIS.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a stable TEXT[] inventory: routine EHR fields may contain scores, but reviewed pages do not publish an enumerated measure list suitable for mental_health_measures[].	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Methods “We describe the development of the South London and Maudsley NHS Foundation Trust (SLAM) Biomedical Research Centre (BRC) Case Register Interactive Search tool (CRIS) which allows research-accessible datasets to be derived from SLAM, the largest provider of secondary mental healthcare in Europe.” Page: https://doi.org/10.1186/1471-244X-9-51 Supporting evidence for the generic CRIS design as an NHS EHR derivative. CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: What is CRIS? “It is a software solution that removes information from an electronic medical record that might identify an individual.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ TRUE: CRIS is built from NHS electronic medical records held by the Trust.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Not published	Searched — not published UNSOURCEABLE as TRUE: Reviewed Trust CRIS and R&D pages do not document approved GP-primary-care research linkages for CRIS; left FALSE.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Not published	Searched — not published UNSOURCEABLE as TRUE: No ONS mortality linkage paragraph on reviewed Trust CRIS/R&D pages; left FALSE.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Not published	Searched — not published UNSOURCEABLE as TRUE: No education/NPD linkage paragraph on reviewed Trust CRIS/R&D pages; left FALSE.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	direct_application	Field-cited	CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Who will access this information? “They will also need to have their project application approved by an oversight committee to gain access to any data.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ Mapped to data_access_mechanism='direct_application' per docs/data-dictionary.md: researchers apply via the custodian pathway (email contact on the same page) with committee approval before receiving data access.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	CRIS (CNTW NHS FT; CRIS Network member)	Field-cited	CRIS Network https://crisnetwork.co Section: Page title “CRIS Network” Page: https://crisnetwork.co/ Second provenance row: registry branding for the wider network. CNTW — Clinical Record Interactive Search (CRIS) https://www.cntw.nhs.uk/services/research-and-development/cris/ Section: Opening paragraph “The CRIS Network is a group of highly innovative NHS Mental Health Trusts who are working together to accelerate research into dementia and mental health.” Page: https://www.cntw.nhs.uk/services/research-and-development/cris/ tre_platform summarises the hosted product as Trust CRIS within the national CRIS Network programme.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Field-cited	HDRUK Innovation Gateway https://healthdatagateway.org Page: https://healthdatagateway.org/search?search=CNTW%20CRIS UNSOURCEABLE: HDR UK web search capture did not surface an obvious CNTW-specific CRIS dataset landing page with a data_dictionary_url in the agent session. DPUK Cohort Directory https://dementiasplatform.uk Page: https://data.dpuk.ukserp.ac.uk/cohortdirectory/Search?q=CNTW UNSOURCEABLE: DPUK cohort directory search capture did not locate a CNTW CRIS cohort profile with a data_dictionary_url.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No numeric median application-to-access timeline on reviewed Trust pages.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public tariff captured on reviewed Trust R&D page.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No extractable age_distribution JSON on reviewed CNTW R&D page for the CRIS resource.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No extractable sex_distribution JSON.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No ethnicity_distribution JSON.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No median age published on reviewed CNTW R&D page for CRIS.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No percent_female published on reviewed pages.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No percent_non_white statistic published on reviewed pages.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	regional	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust listing “providing services across an area totalling 2,200 square miles” Page: https://crisnetwork.co/ geographic_coverage=regional: one NHS provider trust serving a named multi-county geography (North East plus North Cumbria in the Trust's registered name), not national coverage.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: EHR record time span / earliest coverage date for CNTW CRIS not stated on reviewed Trust R&D page.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Live EHR-backed resource without a single published last_data_collection_date on reviewed pages.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Administrative EHR resource — not a prospective cohort with recruitment_start_date.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not applicable for this resource type.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “schizophrenia and related disorders (8158)” Page: https://doi.org/10.1186/1471-244X-9-51 estimated_n NULL: SLaM-register illustration counts are not a CNTW-specific audited census. Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “schizophrenia and related disorders (8158)” Page: https://doi.org/10.1186/1471-244X-9-51 Phase A: psychotic disorders are documented in CRIS-type ICD-coded registers; relationship kept.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Bipolar disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Bipolar disorder · Mood Disorders	Field-cited	CNTW — Research and Development https://www.cntw.nhs.uk/services/research-and-development/ Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ estimated_n NULL: leadership statement is not a numeric CRIS stratum count. CNTW — Research and Development https://www.cntw.nhs.uk/services/research-and-development/ Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ Phase B NEW: affective disorders explicitly named as a Trust research leadership area → bipolar disorder diagnosis area added.	Response for Diagnosis area: Bipolar disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “The most common assigned primary diagnoses were within the ICD mood disorders (n = 12,756) category” Page: https://doi.org/10.1186/1471-244X-9-51 estimated_n NULL: illustration counts only. Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “The most common assigned primary diagnoses were within the ICD mood disorders (n = 12,756) category” Page: https://doi.org/10.1186/1471-244X-9-51 Phase A: mood disorders evidenced for CRIS-type registers.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “neuroses (7105)” Page: https://doi.org/10.1186/1471-244X-9-51 estimated_n NULL: illustration counts only. Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “neuroses (7105)” Page: https://doi.org/10.1186/1471-244X-9-51 Phase A: anxiety-spectrum coded presentations in CRIS-type data; mapped conservatively to GAD.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Autism spectrum conditions Recommended Confirm this diagnosis area applies and estimated N if shown.	Autism spectrum conditions · Neurodevelopmental	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ estimated_n NULL: leadership statement is not a numeric CRIS stratum count. CNTW — Research and Development https://www.cntw.nhs.uk/services/research-and-development/ Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ Phase B NEW: autism explicitly named as a Trust research leadership area.	Response for Diagnosis area: Autism spectrum conditionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Substance use disorders Recommended Confirm this diagnosis area applies and estimated N if shown.	Substance use disorders · Substance Use	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “substance misuse (7749)” Page: https://doi.org/10.1186/1471-244X-9-51 estimated_n NULL: illustration counts only. Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Results “substance misuse (7749)” Page: https://doi.org/10.1186/1471-244X-9-51 Phase B NEW: substance misuse diagnoses tabulated in foundational CRIS register paper.	Response for Diagnosis area: Substance use disordersAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	Stewart R et al. 2009 — SLAM BRC Case Register / CRIS (BMC Psychiatry) https://doi.org/10.1186/1471-244X-9-51 Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ estimated_n NULL: leadership statement is not a numeric CRIS stratum count. CNTW — Research and Development https://www.cntw.nhs.uk/services/research-and-development/ Section: Research strengths “We are regarded as research leaders in autism, affective disorders, Cognitive Behavioural Therapy and dementia.” Page: https://www.cntw.nhs.uk/services/research-and-development/ Phase B NEW: dementia explicitly named as a Trust research leadership area.	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: NIHR Newcastle Biomedical Research Centre Recommended	NIHR Newcastle Biomedical Research Centre · North East England	Field-cited	CRIS Network https://crisnetwork.co Section: Member trust listing “Northumberland, Tyne and Wear NHS Foundation Trust is one of the largest mental health and disability Trusts in England employing more than 6,000 staff, serving a population of approximately 1.4 million” Page: https://crisnetwork.co/ cohort_sites links cohort 30 to site_id=9 (NIHR Newcastle BRC) as the regional research anchor because DIGIT has no dedicated CNTW Trust site row; CRIS Network text uses the legacy Trust name while the legal provider is CNTW.	Response for Linked site: NIHR Newcastle Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from CNTW CRIS information page, CNTW Research and Development pages, CRIS Network member listing (legacy Trust naming), Stewart et al. 2009 (BMC Psychiatry), Google Scholar cohort-profile search, HDR UK Innovation Gateway search capture, DPUK cohort directory search capture, ClinicalTrials.gov API v2 (full trust name, CNTW mental-health keyword query, St Nicholas Hospital + CNTW, Newcastle mental health union), and ISRCTN API (full trust name, CNTW AND mental health, CNTW acronym-only query). No public cumulative CRIS record census for this Trust was located.	Internal	Internal catalogue field	—	—