Cohort validation pack

CRIS CPFT

CPFT clinical records research database

Generated 6 Oct 2026, 10:36 · ID 28

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	38 of 70 reviewable fields are cited to a source (54%) · 8 with no source yet · 24 searched — not published · 31 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	CRIS CPFT	Field-cited	CPFT NHS Trust — Research https://www.cpft.nhs.uk/research Section: HTML title “Research \| CPFT NHS Trust” Page: https://www.cpft.nhs.uk/research Short name 'CRIS CPFT' is the DIGIT resource label for CPFT's de-identified clinical records research database in the CRIS family; title confirms CPFT NHS Trust as custodian context.	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	CPFT clinical records research database	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Setting “Cambridgeshire & Peterborough NHS Foundation Trust, a mental health trust providing secondary mental health care in England.” Page: https://doi.org/10.1136/bmjopen-2017-017504 full_name set to 'CPFT clinical records research database' in cohort SQL to avoid implying UK-CRIS federated membership without trust-level confirmation on crisnetwork.co.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Cambridgeshire and Peterborough NHS Foundation Trust	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Setting “Cambridgeshire & Peterborough NHS Foundation Trust, a mental health trust providing secondary mental health care in England.” Page: https://doi.org/10.1136/bmjopen-2017-017504	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	Cambridgeshire and Peterborough NHS Foundation Trust (site #70)	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Affiliations / context “Department of Psychiatry, School of Clinical Medicine, University of Cambridge, Cambridge, UK.” Page: https://doi.org/10.1136/bmjopen-2017-017504 primary_site_id=NULL: custodian is CPFT (no dedicated CPFT sites row in DIGIT); Cambridge BRC is not asserted as statutory host of the CPFT research database from this evidence alone.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.cpft.nhs.uk/research	Field-cited	CPFT NHS Trust — Research https://www.cpft.nhs.uk/research Section: Canonical URL “https://www.cpft.nhs.uk/research” Page: https://www.cpft.nhs.uk/research	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no single named database contact published on the CPFT research landing page snapshot reviewed.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public database contact email identified on CPFT research landing page snapshot reviewed.	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	De-identified/anonymised mental health care records derived from CPFT electronic clinical records for approved research (including observational dementia studies). Distinct from the UK-CRIS federated network homepage list (April 2026) which names twelve member trusts without listing CPFT; CPFT is nevertheless a large secondary-care mental health provider with published research using its research database.	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Sample “251 DLB and 222 AD identified from an anonymised database derived from electronic clinical case records across an 8-year period (2005-2012), with mortality data updated to May 2015.” Page: https://doi.org/10.1136/bmjopen-2017-017504	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE as a single cumulative count: reviewed sources provide study-specific extracts (e.g., DLB/AD case counts) but not a trust-wide cumulative service-user total suitable for total_n without a dedicated public statistic.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE while total_n is NULL.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2005	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Sample “across an 8-year period (2005-2012)” Page: https://doi.org/10.1136/bmjopen-2017-017504 year_established=2005 as earliest documented coverage window for the anonymised research database extract used in this cohort-profile-style study.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	CPFT NHS Trust — Research https://www.cpft.nhs.uk/research Section: Research with care “Every year we run studies with thousands of participants to learn more about conditions and find new therapies and treatments that work for different people.” Page: https://www.cpft.nhs.uk/research Trust research programme described in present tense with ongoing studies -> is_active TRUE for the research database resource context.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	ClinicalTrials.gov https://clinicaltrials.gov Page: https://clinicaltrials.gov ongoing_recruitment=FALSE: ClinicalTrials.gov API returns interventional studies where CPFT is a collaborator/site, but nothing establishes the CPFT research database itself as an open patient-recruitment cohort protocol analogous to a trial. ISRCTN XML API search (see log) returned totalCount=0 for a standalone CRIS CPFT dataset registration.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Sample window “with mortality data updated to May 2015.” Page: https://doi.org/10.1136/bmjopen-2017-017504 Live EHR-backed anonymised database may receive ongoing updates, but is_refreshed=FALSE because sources do not document periodic whole-cohort re-phenotyping waves as defined in the data dictionary.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable / not published as a cohort recontact statistic for this EHR research database in reviewed sources.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable as a longitudinal cohort retention metric for this resource type in reviewed sources.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1136/bmjopen-2017-017504	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: ELocationID DOI “10.1136/bmjopen-2017-017504” Page: https://doi.org/10.1136/bmjopen-2017-017504	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Primary site set to the CPFT NHS foundation trust row (site 70), the statutory host of the CPFT research database. Align naming with published CPFT affiliation studies rather than UK-CRIS federated branding alone.	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: CRIS Network list “12” Page: https://crisnetwork.co Homepage emphasises twelve participating NHS mental health trusts; CPFT is not named in the extracted member list in the saved snapshot — notes field documents potential branding mismatch with 'CRIS CPFT' labelling vs federated membership.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Sample / governance context “anonymised database derived from electronic clinical case records” Page: https://doi.org/10.1136/bmjopen-2017-017504 Step1 identifiable at individual level in source system=YES but research extracts are anonymised. Step2 access for secondary research without fresh individual consent aligns with NHS UK Section 251/CAG-style governance for identifiable/pseudonymised care data flows (Level 2 per data-dictionary). Step3/4 (recontact/interventional consent) not evidenced as defining feature of the database resource.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “To use routine clinical data to investigate survival in dementia with Lewy bodies (DLB) compared with Alzheimer's dementia (AD).” Page: https://doi.org/10.1136/bmjopen-2017-017504 L1 routine EHR/clinical records=YES. L2 systematic validated research PROM battery under study protocol=NOT evidenced as defining property of the database resource. -> characterisation_depth=1 (aligned with verified CRIS SLaM seed approach).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Methods framing “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 Derived per data-dictionary: hasResearch=false (no questionnaire/cognitive/physical/linked_health_records TRUE); hasBiological=false; hasAdvanced=false -> data_availability=1.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). De-identified NHS trust electronic health record research database — a clinical records resource, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Governance framing “anonymised database derived from electronic clinical case records” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: TWiCs eligibility requires consent_level=4 per dictionary; this resource is Level 2.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE per dictionary: profile evidences routine clinical record research database, not a named research questionnaire battery administered under a study protocol.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: no evidence of a dedicated research cognitive test battery as a defining modality of the database resource in this source.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: no cohort-wide objective physical measurement programme described for the database resource in this source.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: no biobanking modality described.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: no genomics archive described.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: no omics modality described.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: not a research imaging archive resource.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: digital phenotyping as defined for research-grade device phenotyping not evidenced here.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE per docs/data-dictionary.md overlap rule: the cohort resource is an NHS mental health care record system; use has_nhs_linkage rather than has_linked_health_records.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no biosample_types array documented for this database resource in reviewed sources.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not documented.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not documented as a database modality.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a stable TEXT[] instrument list without full-text mining beyond the reviewed abstract/setting.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Setting “mental health trust providing secondary mental health care in England.” Page: https://doi.org/10.1136/bmjopen-2017-017504 TRUE: resource is derived from NHS trust electronic clinical records (hospital mental health care records).	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 has_gp_linkage remains default FALSE: reviewed sources do not document systematic GP-record linkage as a standing database feature.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Sample “with mortality data updated to May 2015.” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: the paper documents mortality follow-up for a specific study extract, but does not explicitly state a standing ONS death-registry linkage product for the CPFT research database as defined by has_death_registry_linkage in the data dictionary.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “routine clinical data” Page: https://doi.org/10.1136/bmjopen-2017-017504 FALSE: no education/DfE linkage documented for the database resource in reviewed sources.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	direct_application	Field-cited	CPFT NHS Trust — Research https://www.cpft.nhs.uk/research Section: Research with care “Work with the CPFT Research Team on studies and clinical trials” Page: https://www.cpft.nhs.uk/research direct_application: access is trust-governed via research/R&D processes rather than an open API.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	CPFT research database (de-identified clinical records)	Field-cited	CPFT NHS Trust — Research https://www.cpft.nhs.uk/research Section: Research with care “We work with global, national and local partners to conduct high quality, groundbreaking research into mental and physical health” Page: https://www.cpft.nhs.uk/research tre_platform set descriptively to 'CPFT research database (de-identified clinical records)' in cohort SQL; not a commercial TRE product name in reviewed pages.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Field-cited	HDRUK Innovation Gateway https://healthdatagateway.org Page: https://healthdatagateway.org/search?search=Cambridgeshire%20Peterborough%20mental%20health HDR UK Gateway browser search attempted during verification; no stable CPFT-specific dataset landing URL was captured into a downloaded Gateway HTML file in this session (no local_file). UNSOURCEABLE: no public data_dictionary_url identified in reviewed CPFT pages or the BMJ Open paper.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no numeric application-to-access timeline published on reviewed pages.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no public tariff captured.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not published as a distributional JSON summary for the database resource in reviewed sources.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not published as a distributional JSON summary for the database resource in reviewed sources.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: ethnicity breakdown for the database resource not extracted from reviewed sources.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no median age for the full database population in reviewed sources.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no percent female for the full database population in reviewed sources.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: no ethnicity percentage for the full database population in reviewed sources.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	regional	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Setting “Cambridgeshire & Peterborough NHS Foundation Trust, a mental health trust providing secondary mental health care in England.” Page: https://doi.org/10.1136/bmjopen-2017-017504 geographic_coverage=regional: trust serves defined Cambridgeshire & Peterborough geography (not national coverage).	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a single VARCHAR summary for the live database: study-specific windows exist but are not a global follow-up label.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: live EHR-backed resource without a single published last_data_collection_date suitable for this DATE column.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: administrative research database — not a closed recruitment-window cohort.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: not applicable.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	Agent verification search log — CRIS CPFT (cohort 28) Page: https://pubmed.ncbi.nlm.nih.gov/ Schizophrenia diagnosis area retained: PubMed affiliation searches return many CPFT-affiliated schizophrenia publications (see log); relationship is supported at trust research activity level though not by Price et al. dementia paper. UNSOURCEABLE: no public denominator for schizophrenia service users in the research database suitable for estimated_n.	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Agent verification search log — CRIS CPFT (cohort 28) Page: https://pubmed.ncbi.nlm.nih.gov/ Major depressive disorder retained as plausible for a large English secondary-care mental health trust population; no REMOVE evidence after Phase B triangulation. UNSOURCEABLE: prior numeric estimates removed as unsourced approximations.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	Agent verification search log — CRIS CPFT (cohort 28) Page: https://pubmed.ncbi.nlm.nih.gov/ Generalised anxiety disorder retained as plausible common secondary-care presentation; no REMOVE evidence after Phase B triangulation. UNSOURCEABLE: prior numeric estimates removed as unsourced approximations.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Sample “251 DLB and 222 AD identified” Page: https://doi.org/10.1136/bmjopen-2017-017504 estimated_n left NULL in join row because counts are study-specific extracts, not stable database-wide prevalence denominators. Price A et al. 2017 — Mortality in DLB vs AD using CPFT anonymised database (BMJ Open) https://doi.org/10.1136/bmjopen-2017-017504 Section: Objectives “To use routine clinical data to investigate survival in dementia with Lewy bodies (DLB) compared with Alzheimer's dementia (AD).” Page: https://doi.org/10.1136/bmjopen-2017-017504 NEW (Phase B): dementia/neurodegeneration outcomes explicitly studied using the anonymised database extract.	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from CPFT research homepage; Price et al. 2017 BMJ Open (CPFT anonymised clinical records database); crisnetwork.co (contextual UK-CRIS programme materials); ClinicalTrials.gov API (CPFT as collaborator/site); ISRCTN API (no standalone CRIS dataset registration); PubMed affiliation searches for diagnosis-area plausibility.	Internal	Internal catalogue field	—	—