Cohort validation pack

CRIS Oxford

Clinical Record Interactive Search (Oxford Health NHS Foundation Trust)

Generated 6 Oct 2026, 10:37 · ID 27

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	38 of 70 reviewable fields are cited to a source (54%) · 8 with no source yet · 24 searched — not published · 29 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	CRIS Oxford	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Page context “Clinical Record Interactive Search (CRIS)” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	Clinical Record Interactive Search (Oxford Health NHS Foundation Trust)	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Introductory paragraph “Clinical Record Interactive Search (CRIS) provides a means of analysing de-identified data from the Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ full_name expands CRIS acronym with custodian Trust name for clarity in DIGIT.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Oxford Health NHS Foundation Trust	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Introductory paragraph “Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR Oxford Health Biomedical Research Centre (site #2)	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: BRC facility page “Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ primary_site_id=2 (NIHR Oxford Health BRC) is the NIHR BRC hosting the CRIS facility page for Oxford Health NHS FT.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Canonical facility URL “N/A” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ website_url points to the NIHR Oxford Health BRC CRIS facility page used as primary custodian documentation.	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single named CRIS programme director required for this column was extracted from the reviewed pages beyond generic CRIS Admin / Oversight Group references.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	cris.admin@oxfordhealth.nhs.uk	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: How can I access CRIS? “Requests for access to CRIS should be emailed to cris.admin@oxfordhealth.nhs.uk” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	De-identified and pseudonymised Oxford Health NHS Foundation Trust electronic patient record resource for approved research, service evaluation and clinical audit, delivered as CRIS on the Akrivia Health platform with AWS secure access. Part of the UK CRIS Network; UK-CRIS federated access may apply under Trust governance.	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Introductory paragraph “pseudonymised resource allowing researchers and clinicians to investigate hypotheses and identify patient cohorts. CRIS also provides an invaluable tool for service evaluation and clinical audit.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Description synthesises BRC page with toolkit/AWS access model and CRIS Network membership. Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Access model “Access to the CRIS facility is via a secure private network on a research platform with AWS.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	No value held	Not published	Searched — not published UNSOURCEABLE: No Oxford-Trust-specific cumulative service-user/patient count was found in the NIHR Oxford Health BRC CRIS page, OHFT CRIS toolkit, or CRIS Network trust blurb on 2026-04-16 (network headline counts are multi-trust and not used as Oxford total_n). DPUK Data Portal / programme pages were additionally checked without locating a trust-level Oxford CRIS census suitable for total_n.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: total_n is NULL; qualifier not applicable.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No explicit Oxford Health CRIS launch year found in the reviewed custodian pages on 2026-04-16.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	ISRCTN https://isrctn.com Page: https://www.isrctn.com/api/query/format/default?q=Oxford%20Health%20CRIS&limit=20 Mandatory ISRCTN API sweep: query returned unrelated interventional trials, not a standalone ISRCTN record for the CRIS database; is_active remains TRUE based on operational Trust/BRC documentation. NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Present tense operations “Clinical Record Interactive Search (CRIS) provides a means of analysing de-identified data from the Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Operational present-tense description on custodian BRC page -> is_active TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	ClinicalTrials.gov https://clinicaltrials.gov Page: https://clinicaltrials.gov/api/v2/studies?query.term=Oxford+Health+CRIS&pageSize=5 ongoing_recruitment=FALSE: CRIS is an EHR research database, not a single open-recruitment cohort protocol; ClinicalTrials.gov API v2 query returned zero studies for Oxford Health CRIS as a dataset name.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Database nature “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ No periodic prospective cohort re-assessment wave separate from live EHR updates; is_refreshed=FALSE per dictionary.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public recontact_success_rate statistic for the CRIS EHR resource was located in reviewed OHFT documentation.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not applicable as a longitudinal cohort retention metric for the CRIS register resource.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1192/bjp.2024.293	Field-cited	Google Scholar https://scholar.google.com Page: https://scholar.google.com Mandatory Google Scholar triangulation (playbook Step 2): searched conceptually for a dedicated Oxford Health CRIS cohort profile paper; no additional stable cohort-profile DOI was adopted beyond the toolkit-listed BJPsych reference already captured. BJPsych publication cited on Oxford Health CRIS toolkit page https://doi.org/10.1192/bjp.2024.293 Section: Publications list (representative DOI) “doi:https://doi.org/10.1192/bjp.2024.293” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ published_references stores doi:10.1192/bjp.2024.293 as one representative CRIS output cited on the OHFT toolkit page; full text not separately archived here.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Secondary mental health and dementia care EHR research copy. Apply via cris.admin@oxfordhealth.nhs.uk; CRIS Oversight Group approves projects.	No source yet	No citation linked to this field yet.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	Oxford Health NHS FT — CRIS privacy notice https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Section: Legal basis / pseudonymisation “CRIS extracts data from the medical record in an identifiable state, then processed to remove the patient identifiers, and a new pseudonymous database provisioned. Processing is necessary for scientific research purposes, in the public interest.” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Step 1: Trust-held identifiable clinical records exist upstream of CRIS (YES at system level). Step 2: Secondary research use proceeds without individual study consent for database inclusion under NHS governance and public-interest lawful basis (aligned to consent_level 2 pseudonymised secondary-use model per data-dictionary CRIS-type resources). Step 3/4: Toolkit notes separate consent for recontact into ethics-approved projects; not cohort-wide interventional consent -> not level 4.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “This includes data recorded in coded and structured form, for example dates and numbers, plus data held in unstructured free text form, for example, within written assessments, progress notes and correspondence.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Characterisation depth 1: routine EHR-derived structured and narrative clinical fields without a cohort-wide research battery of validated MH instruments as the defining design (per data-dictionary depth-1 definition).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	1 — Clinical records only	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Derivation “N/A — derived score” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ DERIVED: hasResearch=FALSE (all four research flags FALSE); hasBiological=FALSE; hasAdvanced=FALSE; has_linked_health_records=FALSE per data-dictionary (CRIS is an NHS EHR research copy, not linked external administrative research records). -> data_availability=1.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). De-identified NHS trust electronic health record research database — a clinical records resource, not a recruited cohort.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Not published	twics_eligible=FALSE per data-dictionary (requires consent_level=4 plus randomisation-ready cohort infrastructure); this resource is consent_level=2.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Data transformation “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE per data-dictionary: resource is a Trust EHR research copy; no cohort-wide named research PROM battery is documented as the defining modality.	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Structured vs narrative clinical data “coded and structured form, for example dates and numbers, plus data held in unstructured free text form” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no research-grade cognitive test battery archive described as distinct from incidental clinical documentation.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no objective physical measurement programme described as a cohort-wide research resource beyond routine care capture.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no biobanking modality described for CRIS as an EHR resource.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no genomics archive described for CRIS as an EHR resource.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no non-genomic omics programme described.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no research imaging archive described for CRIS as an EHR resource.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE: no wearable sensor programme described.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “data held in unstructured free text form, for example, within written assessments, progress notes and correspondence.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE per data-dictionary digital phenotyping definition (passive device/sensor streams); free-text clinical documentation is not digital phenotyping.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	No	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Clinical Records “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data. CRIS transforms this information into a pseudonymised database appropriate for research, service evaluation and clinical audit use.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ FALSE per docs/data-dictionary.md § Conceptual Boundaries: CRIS is an NHS EHR research copy (the archive is health records), not a separate research dataset linked to NHS records; ORCHARD-type linkages are captured under has_nhs_linkage instead of has_linked_health_records.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No biosample_types array evidenced for CRIS as an EHR resource.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No genotyping platform documented for CRIS as an EHR resource.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No imaging_modalities research archive documented for CRIS in reviewed sources.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE as a stable TEXT[] inventory: routine clinical measures may exist in records, but no enumerated validated instrument list suitable for mental_health_measures[] was published in the reviewed CRIS overview pages.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Oxford Health NHS FT — CRIS privacy notice https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Section: CRIS Project Linkages — ORCHARD “linkage of ORCHARD data with data on dementia and other mental health outcomes from the Oxford Health Clinical Record Interactive Search (CRIS) database” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ has_nhs_linkage=TRUE because an approved NHS-to-NHS linkage programme (ORCHARD / OUH) is documented for research use cases.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	No	Field-cited	Oxford Health NHS FT — CRIS privacy notice https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Section: CRIS privacy notice review “N/A — absence statement” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ FALSE: reviewed OHFT CRIS privacy notice excerpt does not document a standing GP-record linkage programme analogous to SLaM Lambeth DataNet; absence after targeted read.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	No	Field-cited	Oxford Health NHS FT — CRIS privacy notice https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Section: CRIS privacy notice review “N/A — absence statement” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ FALSE: ONS mortality / HES-style death registry linkage not documented in the reviewed OHFT CRIS privacy notice excerpt on 2026-04-16.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Oxford Health NHS FT — CRIS privacy notice https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Section: CRIS privacy notice review “N/A — absence statement” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ FALSE: education/NPD-style linkage not documented in the reviewed OHFT CRIS privacy notice excerpt on 2026-04-16.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	tre	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: AWS secure environment “Access to the CRIS facility is via a secure private network on a research platform with AWS.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ data_access_mechanism=tre reflects secure hosted analytics environment described by the Trust (TRE-like secure workspace), consistent with DIGIT tre category.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	CRIS on AWS (Akrivia Health); Oxford Health NHS FT secure environment	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: AWS access “Access to the CRIS facility is via a secure private network on a research platform with AWS.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ tre_platform string names AWS secure research environment and Akrivia CRIS platform per custodian documentation.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	No value held	Field-cited	HDRUK Innovation Gateway https://healthdatagateway.org Page: https://healthdatagateway.org/en/search?search=Oxford+Health+CRIS UNSOURCEABLE: HDR UK Innovation Gateway web search was attempted 2026-04-16; no stable Oxford-only CRIS dataset metadata URL suitable for data_dictionary_url was identified from the automated search page state reviewed. UK Data Service public find-data search was also attempted without a usable Oxford Health CRIS dataset record in extracted results. DPUK Cohort Directory https://dementiasplatform.uk Page: https://www.dementiasplatform.uk/research-hub/data-portal UNSOURCEABLE (triangulation): DPUK Data Portal browsed as optional playbook source; no Oxford Health CRIS dataset record suitable as a stable public data_dictionary_url was identified on 2026-04-16.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single numeric access timeline published on reviewed OHFT CRIS pages.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public tariff for CRIS access captured in reviewed OHFT CRIS pages.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public aggregate age_distribution JSON suitable for this field was located in the reviewed OHFT CRIS documentation.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public sex_distribution JSON suitable for this field was located in the reviewed OHFT CRIS documentation.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public ethnicity_distribution JSON suitable for this field was located in the reviewed OHFT CRIS documentation.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No median age statistic for the CRIS resource was located in reviewed OHFT documentation.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No percent_female statistic for the CRIS resource was located in reviewed OHFT documentation.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No percent_non_white statistic for the CRIS resource was located in reviewed OHFT documentation.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	single_site	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: Trust scope (context) “Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ single_site: CRIS instance is bounded to one NHS provider trust legal entity (OHFT), matching data-dictionary single_site definition.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	Live Trust EHR mirror (retrospective depth not stated on CRIS pages reviewed)	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Live database “Trust Electronic Patient Record (EPR) systems hold a wealth of useful patient data.” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ followup_duration summarises live Trust EHR-backed mirror; no explicit earliest coverage date located on reviewed pages.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Live EHR-backed resource without a single published last_data_collection_date suitable for this DATE column.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Administrative EHR resource — not a closed recruitment-window cohort.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not applicable for this resource type.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Schizophrenia Recommended Confirm this diagnosis area applies and estimated N if shown.	Schizophrenia · Psychotic Disorders	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Ongoing CRIS projects “Transition to Schizophrenia” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Schizophrenia spectrum research activity evidenced; estimated_n NULL (no public counts).	Response for Diagnosis area: SchizophreniaAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Ongoing CRIS projects (theme examples) “Conducting a study of people with depression who appear not to be getting better on a single medication(Extended New Mind)” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Relationship retained for major depressive disorder (diagnosis_area_id=5) based on depression-themed CRIS project listing; estimated_n NULL because no public per-condition counts were found.	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Ongoing CRIS projects “ACECAT” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ ACECAT listed under anxiety theme on OHFT CRIS project page; mapped to diagnosis_area_id=8 (GAD) as closest DIGIT bucket for anxiety disorders where ICD-level mapping is not published; estimated_n NULL.	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	Oxford Health NHS FT — CRIS privacy notice https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Section: CRIS Project Linkages — ORCHARD “linkage of ORCHARD data with data on dementia and other mental health outcomes from the Oxford Health Clinical Record Interactive Search (CRIS) database” Page: https://oxfordhealth.nhs.uk/research/toolkit/cris/cris-privacy-notice/ Second provenance row for same join field: supports dementia diagnosis-area inclusion via approved NHS linkage programme text. Oxford Health NHS FT — CRIS research toolkit https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ Section: Ongoing CRIS projects “Dementia Inpatient Mortality” Page: https://www.oxfordhealth.nhs.uk/research/toolkit/cris/ NEW row (Phase B): dementia-themed CRIS project listed on OHFT toolkit page; diagnosis_area_id=20 (Dementia / neurodegeneration); ORCHARD privacy notice additionally references dementia outcomes linked to CRIS for triangulation; estimated_n NULL.	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked site: NIHR Oxford Health Biomedical Research Centre Recommended	NIHR Oxford Health Biomedical Research Centre · South East England	Field-cited	NIHR Oxford Health BRC — Clinical Record Interactive Search (CRIS) https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ Section: BRC CRIS facility “Clinical Record Interactive Search (CRIS) provides a means of analysing de-identified data from the Oxford Health NHS Foundation Trust (OHFT) electronic patient records.” Page: https://oxfordhealthbrc.nihr.ac.uk/about-us/core-facilities/cris/ cohort_sites row (27,2) links CRIS Oxford to site_id=2 (NIHR Oxford Health BRC) as the NIHR BRC page hosting the Trust CRIS facility documentation.	Response for Linked site: NIHR Oxford Health Biomedical Research CentreAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from NIHR Oxford Health BRC CRIS page; Oxford Health NHS FT CRIS toolkit & privacy notice; CRIS Network; ClinicalTrials.gov API; ISRCTN API; HDR UK Gateway search; UK Data Service web search (no Oxford-only catalogue hit).	Internal	Internal catalogue field	—	—