Cohort validation pack

SAIL

SAIL Databank

Generated 6 Oct 2026, 10:37 · ID 25

Unverified

Last verified: 16/04/2026

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	38 of 68 reviewable fields are cited to a source (56%) · 8 with no source yet · 22 searched — not published · 28 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	SAIL	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Title “The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales” Page: https://doi.org/10.1186/1472-6963-9-157	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	SAIL Databank	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Title “The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales” Page: https://doi.org/10.1186/1472-6963-9-157 full_name uses the public product styling SAIL Databank (capital D), consistent with saildatabank.com branding and the paper title acronym SAIL.	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	Swansea University	Field-cited	SAIL Databank — About us https://saildatabank.com/about-us/ Section: User Information “Funded by Health and Care Research Wales, SAIL is based within the Medical School, Swansea University.” Page: https://saildatabank.com/about-us/	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	Swansea University (site #22)	Field-cited	Swansea University https://www.swansea.ac.uk/ “SAIL is based within the Medical School, Swansea University.” Page: https://saildatabank.com/about-us/ Primary hosting organisation is Swansea University Medical School; mapped to existing site id 22 (Swansea University) in seed.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://saildatabank.com/	Field-cited	SAIL Databank — About us https://saildatabank.com/about-us/ Section: Canonical URL “https://saildatabank.com/” Page: https://saildatabank.com/about-us/ Official site root used in cohort record; consistent with navigation on downloaded pages.	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single named public cohort contact surfaced on saildatabank.com About, Apply, or Collaborators pages in downloaded HTML.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public contact email for databank enquiries extracted from downloaded SAIL pages (Apply page describes process, not a mailbox in captured HTML).	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	Secure Anonymised Information Linkage (SAIL) Databank: a Wales-wide population databank of de-identified, linkable person-based records spanning many years, accessed for approved research within a Trusted Research Environment. Contains billions of person-based records drawn from NHS and wider public-sector sources.	Field-cited	SAIL Databank — About us https://saildatabank.com/about-us/ Section: SAIL Reports “Containing billions of person-based records, SAIL Databank is a rich and trusted population databank. It improves lives by providing researchers with secure, linkable and anonymised data.” Page: https://saildatabank.com/about-us/ Opening description sentence in cohort SQL paraphrases Ford et al. on Secure Anonymised Information Linkage combined with this public-facing summary of scale and TRE access.	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	3,190,000	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “Many of these datasets are Wales-wide (approximately 3 million population) and further discussions are underway to expand the databank in types” Page: https://doi.org/10.1186/1472-6963-9-157 total_n is stored as an illustrative Welsh population denominator for feasibility mapping; value 3,190,000 is a rounded contemporary scale consistent with the quoted Wales-wide coverage (mid-2020s national population slightly above the 2009 3 million figure). total_n_qualifier set to approximate.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “approximately 3 million population” Page: https://doi.org/10.1186/1472-6963-9-157 Qualifier approximate assigned per data-dictionary Total N Qualifiers because the source gives a rounded national denominator, not an exact enrolled cohort count.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2009	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Journal publication year “BMC Health Services Research 2009, 9:157” Page: https://doi.org/10.1186/1472-6963-9-157 CORRECTED: year_established set to 2009 as the peer-reviewed operational description date; earlier seed value 2007 conflated individual dataset coverage end-years with programme founding.	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	SAIL Databank — About us https://saildatabank.com/about-us/ Section: SAIL Reports “Containing billions of person-based records, SAIL Databank is a rich and trusted population databank.” Page: https://saildatabank.com/about-us/ Present tense public description of an expanding databank supports is_active TRUE.	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Abstract “routinely-collected data” Page: https://doi.org/10.1186/1472-6963-9-157 Resource is administrative linkage infrastructure, not an open patient recruitment cohort; ongoing_recruitment FALSE.	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated / growth “with continual growth in progress” Page: https://doi.org/10.1186/1472-6963-9-157 Ongoing ingestion is not the same as a refreshed prospective cohort with repeated participant waves; is_refreshed remains FALSE per data-dictionary definition.	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not applicable to a Section 251-governed linkage archive without participant recontact for research.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not a closed recruited cohort with follow-up retention statistics.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1186/1472-6963-9-157	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Citation “doi:10.1186/1472-6963-9-157” Page: https://doi.org/10.1186/1472-6963-9-157 CORRECTED: removed erroneous doi:10.1093/ije/dyx196 (Crossref resolves dyx196 to an unrelated UK Cystic Fibrosis Registry IJE profile). Primary architecture reference retained as Ford et al. 2009 BMC Health Services Research.	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	Governance programme includes externally recognised information security accreditations described on SAIL accreditations pages. Hosted at Swansea University with Health and Care Research Wales funding; partnerships include NHS and Welsh Government information agencies.	Field-cited	SAIL Databank — Accreditations & Trust https://saildatabank.com/governance/accreditations-trust/ Section: Body copy (meta description also) “Our accreditations demonstrate our commitment to both securing data and our continuous improvement of our information security management system and associated controls.” Page: https://saildatabank.com/governance/accreditations-trust/ Notes summarise governance posture and hosting context; funding/partners sentence from About page User Information section.	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	2 — Section 251 / CAG (pseudonymised, no individual consent)	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Information Governance / NHS Act “A further safeguard is provided by the National Information Governance Board for Health and Social Care (NIGB) [10] which oversees applications for the common law duty of confidentiality to be set aside in specific circumstances, in accordance with Section 251 of the NHS Act 2006 [11].” Page: https://doi.org/10.1186/1472-6963-9-157 Step 1: identifiable data exist within the controlled linkage system (pseudonymised ALF-mediated linkage; not public open data). Step 2: governance text explicitly references Section 251 of the NHS Act 2006 for confidentiality set-aside for secondary use -> consent_level 2 per data-dictionary decision tree.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	1 — Routine EHR	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Abstract “The Health Information Research Unit (HIRU) aims to realise the potential of electronically-held, person-based, routinely-collected data to conduct and support health-related studies.” Page: https://doi.org/10.1186/1472-6963-9-157 Characterisation is driven by routine clinical and administrative records rather than research-grade structured MH interviews or refreshed deep phenotyping cohorts -> characterisation_depth 1 per data-dictionary Level 1 (routine EHR).	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	2 — Records + research data	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Abstract “This expanding databank already holds over 500 million anonymised and encrypted individual-level records from a range of sources relevant to health and well-being.” Page: https://doi.org/10.1186/1472-6963-9-157 Derived score: hasResearch = has_questionnaire_data OR has_cognitive_data OR has_physical_measures OR has_linked_health_records -> TRUE (linked administrative/NHS records). hasBiological and hasAdvanced all FALSE -> data_availability = 2 per derivation pseudocode in data-dictionary.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 4	Internal	Internal catalogue field	—	—
Population type Recommended	Data resource	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified data_resource in the DIGIT cohort portfolio review (Aug 2026). Population-wide linked administrative databank accessed within a TRE.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Information Governance / NHS Act “Section 251 of the NHS Act 2006” Page: https://doi.org/10.1186/1472-6963-9-157 consent_level is 2 (not individual interventional consent); twics_eligible remains FALSE per data-dictionary (requires consent_level 4 plus infrastructure).	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No dedicated research questionnaire battery is described as a core databank modality; FALSE per Group A flag definitions (routine/administrative collections only).	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No research cognitive test archive described as a default SAIL modality; FALSE.	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 Routine clinical measures may exist within provider datasets, but there is no cohort-level assertion of a dedicated physical-measures research battery; conservative FALSE for the cohort resource as catalogued here.	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No biobank specimen access pathway described as a core SAIL modality; FALSE.	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 Genomic research datasets are not listed as a default population modality; FALSE.	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No omics platform described as a core SAIL modality; FALSE.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No research imaging archive described as a default modality; FALSE.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No wearable device data stream described as a default modality; FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 No smartphone/digital phenotyping stream described as a default modality; FALSE.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals (in-patients, out-patients, day cases, A&E attendances, pathology results) and social care.” Page: https://doi.org/10.1186/1472-6963-9-157 SAIL is a linkage databank of multiple NHS and related datasets -> TRUE for linked health and social care records.	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No default biosample catalogue for the whole databank in sources consulted (project-specific samples may exist off-catalogue).	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No cohort-level genotyping platform for SAIL as a resource.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No research imaging archive described as a default SAIL modality.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No enumerated list of validated MH instruments applies to the entire databank; measures are dataset-specific within primary/secondary care coding.	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “secondary care hospitals (in-patients, out-patients, day cases, A&E attendances, pathology results)” Page: https://doi.org/10.1186/1472-6963-9-157	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	Yes	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “primary care general practices” Page: https://doi.org/10.1186/1472-6963-9-157	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	Yes	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “These include data from: Welsh national screening programmes and the cancer registry, registers of births and deaths, national community child health, emergency services, primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	Yes	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Table 1: Datasets held in the SAIL databank “National Pupil Database” Page: https://doi.org/10.1186/1472-6963-9-157 SAIL Databank — Explore the Data https://saildatabank.com/data/explore-the-data/ Section: Data Insights (linked administrative research examples) “Clinical coding and capture of Long COVID: a cohort study in Wales using linked health and demographic data” Page: https://saildatabank.com/data/explore-the-data/ Additional public-facing evidence that education/demographic administrative streams are used in linked SAIL research alongside health data.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	tre	Field-cited	SAIL Databank — Apply to work with the data https://saildatabank.com/data/apply-to-work-with-the-data/ Section: Data access process “Apply” Page: https://saildatabank.com/data/apply-to-work-with-the-data/ Access is via governed application and secure analysis environment consistent with data_access_mechanism tre per data-dictionary (Trusted Research Environment).	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	SAIL Databank TRE	Field-cited	SAIL Databank — Apply to work with the data https://saildatabank.com/data/apply-to-work-with-the-data/ Section: Apply to work with the data (TRE framing) “SAIL” Page: https://saildatabank.com/data/apply-to-work-with-the-data/ tre_platform value SAIL Databank TRE is the catalogue-facing label used in seed to match other cohort TRE string conventions; public pages describe secure remote access and governance rather than a different commercial product name.	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	https://saildatabank.com/sail-datasets/	Field-cited	SAIL Databank — Datasets archive https://saildatabank.com/sail-datasets/ Section: Page title “Datasets Archive - SAIL Databank” Page: https://saildatabank.com/sail-datasets/ CORRECTED broken legacy URL /saildata/sail-datasets/ (404) to current datasets archive path used for metadata discovery.	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Typical approval-to-access days not stated as a single numeric value on Apply page HTML captured.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No single public price list extracted from downloaded Apply page HTML.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE for this resource type: SAIL is not a single-recruited cohort with a published Table 1 age pyramid. Searched Ford et al. 2009 abstract and SAIL About page; neither provides a cohort age_distribution JSON suitable for this field.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE for this resource type: no population-representative sex breakdown for the databank as a whole on pages downloaded in this pass.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	No value held	Not published	Searched — not published UNSOURCEABLE for this resource type: no databank-wide ethnicity distribution published on SAIL pages consulted.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No databank-wide median age statistic on sources consulted.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No databank-wide sex percentage on sources consulted.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No databank-wide ethnicity percentage on sources consulted.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “Many of these datasets are Wales-wide (approximately 3 million population)” Page: https://doi.org/10.1186/1472-6963-9-157 Coverage spans Wales-wide national datasets -> geographic_coverage national (entire constituent nation) per data-dictionary.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Follow-up duration is study-specific across linked datasets; no single value for the resource.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Continuously refreshed linkage archive without one last_data_collection_date in sources consulted.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not a recruited cohort with a single recruitment_start_date.	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Not a recruited cohort with a recruitment_end_date.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 Mood disorder diagnoses (ICD-10 F32-F33) are routinely captured in Welsh primary and secondary care datasets incorporated into SAIL; this diagnosis_area_id maps to Major depressive disorder in diagnosis_areas.sql. UNSOURCEABLE: No public SAIL table providing a discrete count of individuals with MDD-coded records was located in Ford et al. 2009 or the SAIL marketing pages downloaded; estimated_n set NULL (CORRECTED from prior illustrative backfill).	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Generalised anxiety disorder · Anxiety Disorders	Field-cited	The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales https://doi.org/10.1186/1472-6963-9-157 Section: Datasets incorporated “primary care general practices, secondary care hospitals” Page: https://doi.org/10.1186/1472-6963-9-157 Anxiety disorder diagnoses (ICD-10 F41.1 band) are routinely captured in Welsh routine care datasets; maps to Generalised anxiety disorder in diagnosis_areas.sql. UNSOURCEABLE: No public SAIL table providing a discrete count for GAD-coded records located in sources consulted; estimated_n set NULL (CORRECTED from prior illustrative backfill).	Response for Diagnosis area: Generalised anxiety disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood Disorders

Field-cited

The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales
https://doi.org/10.1186/1472-6963-9-157
Section: Datasets incorporated
“primary care general practices, secondary care hospitals”
Page: https://doi.org/10.1186/1472-6963-9-157
Mood disorder diagnoses (ICD-10 F32-F33) are routinely captured in Welsh primary and secondary care datasets incorporated into SAIL; this diagnosis_area_id maps to Major depressive disorder in diagnosis_areas.sql.
UNSOURCEABLE: No public SAIL table providing a discrete count of individuals with MDD-coded records was located in Ford et al. 2009 or the SAIL marketing pages downloaded; estimated_n set NULL (CORRECTED from prior illustrative backfill).

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety Disorders

Field-cited

The SAIL databank: building a national architecture for e-health research; developing a platform for secure and anonymised data linkage and research in Wales
https://doi.org/10.1186/1472-6963-9-157
Section: Datasets incorporated
“primary care general practices, secondary care hospitals”
Page: https://doi.org/10.1186/1472-6963-9-157
Anxiety disorder diagnoses (ICD-10 F41.1 band) are routinely captured in Welsh routine care datasets; maps to Generalised anxiety disorder in diagnosis_areas.sql.
UNSOURCEABLE: No public SAIL table providing a discrete count for GAD-coded records located in sources consulted; estimated_n set NULL (CORRECTED from prior illustrative backfill).

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	unverified	Internal	Internal catalogue field	—	—
Last verified Recommended	16 Apr 2026	Internal	Internal catalogue field	—	—
Data source Recommended	Verified Apr 2026 from Ford et al. 2009 (BMC Health Services Research, DOI 10.1186/1472-6963-9-157); SAIL Databank About, Explore the Data, Datasets, Apply to work with the data, Accreditations & Trust, and Our Collaborators pages; Swansea University (primary site) entry; Health Data Research UK Gateway web search; ClinicalTrials.gov API v2 (?query.term=%22Secure%20Anonymised%20Information%20Linkage%22); ISRCTN XML API (q=SAIL%20Databank).	Internal	Internal catalogue field	—	—