Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
All validation packs

Cohort validation pack

QResearch

QResearch

Generated 6 Oct 2026, 10:37 · ID 24

Unverified

Last verified: 16/04/2026

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

75

Total fields

40

Field-cited

0

Whole-record source only

8

AI-inferred, no source yet

22

Searched — not published

28

No value held

30

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

40 of 70 reviewable fields are cited to a source (57%) · 8 with no source yet · 22 searched — not published · 28 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

QResearchField-cited
Response for Short name
Full name

Required

QResearchField-cited
Response for Full name
Managing organisation

Recommended

Queen Mary University of LondonField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: About

    “QResearch is hosted within the Wolfson Institute of Population Health at Queen Mary University of London.”

    Page: https://www.qresearch.org/about/

Response for Managing organisation
Primary site

Recommended

Queen Mary University of London (site #26)Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: About

    “QResearch relocated to Queen Mary University of London in 2025 with the appointment of Professor Hippisley-Cox as the inaugural Professor of Clinical Epidemiology and Predictive Medicine.”

    Page: https://www.qresearch.org/about/

Response for Primary site
Website URL

Recommended

https://www.qresearch.org/Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Canonical URL

    “https://www.qresearch.org/”

    Page: https://www.qresearch.org/

Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No single named public cohort contact field identified on reviewed QResearch pages.

Response for Contact name
Contact email

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Contact emails on site are obfuscated in downloaded HTML snapshot; no stable plaintext address extracted for this field.

Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

Large consolidated database derived from anonymised UK general practice electronic health records, with linked secondary care and mortality data for approved research use.Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “QResearch is a large consolidated database derived from the anonymised health records of over 40 million patients.”

    Page: https://www.qresearch.org/

Response for Description
Total N

Required

40,000,000Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “derived from the anonymised health records of over 40 million patients”

    Page: https://www.qresearch.org/

Response for Total N
Total N qualifier

Recommended

approximateField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “over 40 million patients”

    Page: https://www.qresearch.org/

Response for Total N qualifier
Year established

Recommended

2003Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: About

    “QResearch was established as a new high quality ethical database for research in 2003 at the University of Nottingham by Professor Julia Hippisley-Cox (Chief Investigator) in collaboration with EMIS Health (now Optum).”

    Page: https://www.qresearch.org/about/

Response for Year established
Active cohort

Recommended

YesField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “The practices are spread throughout the UK and include data from patients who are currently registered with the practices as well as historical patients who may have died or left.”

    Page: https://www.qresearch.org/

Response for Active cohort
Ongoing recruitment

Recommended

NoField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “QResearch is a large consolidated database derived from the anonymised health records of over 40 million patients.”

    Page: https://www.qresearch.org/

Response for Ongoing recruitment
Refreshed cohort

Recommended

YesField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “currently registered with the practices as well as historical patients who may have died or left”

    Page: https://www.qresearch.org/

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No recontact success metric published for the database resource.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No participant retention rate applicable to the EHR resource as a whole.

Response for Retention rate

Published references

Recommended

doi:10.14236/jhi.v12i1.108, doi:10.1136/bmjopen-2014-005809, doi:10.1001/jamapsychiatry.2022.3614Field-cited
  • Hippisley-Cox et al. QRESEARCH: a new general practice database for research (Inform Prim Care 2004)

    https://doi.org/10.14236/jhi.v12i1.108

    Section: Citation

    “doi: 10.14236/jhi.v12i1.108”

    Page: https://pubmed.ncbi.nlm.nih.gov/15140353/

  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Citation

    “doi: 10.1136/bmjopen-2014-005809”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

  • Ranger et al. Preexisting Neuropsychiatric Conditions and Associated Risk… (JAMA Psychiatry 2023)

    https://doi.org/10.1001/jamapsychiatry.2022.3614

    Section: Citation

    “doi: 10.1001/jamapsychiatry.2022.3614”

    Page: https://pubmed.ncbi.nlm.nih.gov/36350602/

Response for Published references
Notes

Recommended

Data are de-identified at source for extracts; linkage and governance are described on the QResearch ethics pages. Applications are via QWeb with QMUL co-applicant requirements.Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Ethics and Confidentiality

    “Researchers only receive subsets of anonymised data required to answer their research question”

    Page: https://www.qresearch.org/about/ethics-and-confidentiality/

Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

2 — Section 251 / CAG (pseudonymised, no individual consent)Field-cited
  • Hippisley-Cox et al. QRESEARCH: a new general practice database for research (Inform Prim Care 2004)

    https://doi.org/10.14236/jhi.v12i1.108

    Section: Ethics and Confidentiality

    “The processing of patient identifiers for secure data linkage without individual consent has been supported under 'section 251' by the Health Research Authority following advice from the Confidentiality Advisory Group (CAG reference 25/CAG/0147).”

    Page: https://www.qresearch.org/about/ethics-and-confidentiality/

Response for Consent level (axis)
Characterisation depth (axis)

Required

1 — Routine EHRField-cited
  • Ranger et al. Preexisting Neuropsychiatric Conditions and Associated Risk… (JAMA Psychiatry 2023)

    https://doi.org/10.1001/jamapsychiatry.2022.3614

    Section: DESIGN, SETTING, AND PARTICIPANTS

    “Prepandemic (2015-2020) and contemporary (2020-2021) longitudinal cohorts were derived from the QResearch database of English primary care records.”

    Page: https://pubmed.ncbi.nlm.nih.gov/36350602/

Response for Characterisation depth (axis)
Data availability (axis)

Required

1 — Clinical records onlyField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Flag derivation

    “practices contributing to the QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 4Internal

Internal catalogue field

——
Population type

Recommended

Data resourceNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • Hippisley-Cox et al. QRESEARCH: a new general practice database for research (Inform Prim Care 2004)

    https://doi.org/10.14236/jhi.v12i1.108

    Section: Ethics and Confidentiality

    “The processing of patient identifiers for secure data linkage without individual consent has been supported under 'section 251'”

    Page: https://www.qresearch.org/about/ethics-and-confidentiality/

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “risk prediction algorithms developed using the QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “open cohort study using practices contributing to the QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Cognitive testing
Physical measures

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “routinely collected primary care electronic medical records”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Physical measures
Biosamples

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Biosamples
Genomic data

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Genomic data
Omics

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Omics
Imaging

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Imaging
Wearable / sensor

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “QResearch database”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
  • Hippisley-Cox et al. The performance of seven QPrediction risk scores… (BMJ Open 2014)

    https://doi.org/10.1136/bmjopen-2014-005809

    Section: Abstract context

    “electronic medical records”

    Page: https://pubmed.ncbi.nlm.nih.gov/25168040/

Response for Digital phenotyping
Linked health records

Recommended

NoField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Data dictionary rule application

    “QResearch is a large consolidated database derived from the anonymised health records”

    Page: https://www.qresearch.org/

Response for Linked health records
Biosample types

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Core database is electronic records; no biosample types array applicable.

Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No genotyping platform for core QResearch resource.

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No imaging modalities for core resource.

Response for Imaging modalities
Mental health measures

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Resource is not centred on a fixed named instrument list; studies vary by coded diagnoses/medications.

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Special Features

    “the entire database has been linked to cause of death data, cancer and hospital data at individual patient level with linkages extending back as far as 1993.”

    Page: https://www.qresearch.org/

Response for NHS linkage
GP linkage

Recommended

NoField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “QResearch is a large consolidated database derived from the anonymised health records of over 40 million patients.”

    Page: https://www.qresearch.org/

Response for GP linkage
Death registry linkage

Recommended

YesField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Special Features

    “linked to cause of death data, cancer and hospital data at individual patient level”

    Page: https://www.qresearch.org/

Response for Death registry linkage
Education linkage

Recommended

NoField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Information for Researchers — Linked NHS Digital data

    “Linked NHS Digital data for Hospital Episode Statistics (HES) Death Register, Cancer Registry data, COVID infection and COVID vaccination data”

    Page: https://www.qresearch.org/information/information-for-researchers/

Response for Education linkage
Data access mechanism

Recommended

treField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Ethics and Confidentiality

    “The linked data are only available on servers at Queen Mary University of London”

    Page: https://www.qresearch.org/about/ethics-and-confidentiality/

Response for Data access mechanism
TRE platform

Recommended

QWeb (QMUL isolated research servers)Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Ethics and Confidentiality

    “The research computers are dedicated isolated computers (i.e. it is not linked to the NHSnet or external networks). These computers are the single point of access to the data collected by QResearch.”

    Page: https://www.qresearch.org/about/ethics-and-confidentiality/

Response for TRE platform
Data dictionary URL

Recommended

https://www.qresearch.org/guides/Field-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Guides

    “Using ICD-10 Clinical Codes to Build a New Code Group”

    Page: https://www.qresearch.org/guides/

Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as single integer: Information for Researchers states extraction is normally ~6 weeks but end-to-end varies by project.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Costs described as self-funding model on home page without a single numeric fee in reviewed snippets.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No current cohort-wide age JSON published on reviewed qresearch.org pages or abstracts used in this pass.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No cohort-wide sex distribution JSON on reviewed qresearch.org pages.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No cohort-wide ethnicity JSON on reviewed qresearch.org pages.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No single median age for the full dynamic QResearch population on reviewed pages.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No single current percent female for the full population on reviewed pages.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No single current diversity percentage for the full population on reviewed pages.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
  • QResearch — Official Website

    https://www.qresearch.org/

    Section: Home

    “The practices are spread throughout the UK”

    Page: https://www.qresearch.org/

Response for Geographic coverage
Follow-up duration

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as single bucket: home page states records back to 1989 but follow-up varies by patient registration periods.

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Continuously updated resource without one cohort-wide last collection date on reviewed pages.

Response for Last data collection date
Recruitment start date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Not a discrete recruited cohort with one start date.

Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Not applicable.

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Schizophrenia

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Schizophrenia · Psychotic DisordersField-cited
  • Ranger et al. Preexisting Neuropsychiatric Conditions and Associated Risk… (JAMA Psychiatry 2023)

    https://doi.org/10.1001/jamapsychiatry.2022.3614

    Section: DESIGN, SETTING, AND PARTICIPANTS

    “Prepandemic (2015-2020) and contemporary (2020-2021) longitudinal cohorts were derived from the QResearch database of English primary care records.”

    Page: https://pubmed.ncbi.nlm.nih.gov/36350602/

Response for Diagnosis area: Schizophrenia
Diagnosis area: Bipolar disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Bipolar disorder · Mood DisordersField-cited
  • Ranger et al. Preexisting Neuropsychiatric Conditions and Associated Risk… (JAMA Psychiatry 2023)

    https://doi.org/10.1001/jamapsychiatry.2022.3614

    Section: EXPOSURES

    “Diagnosis of and/or medication for anxiety, mood, or psychotic disorders and diagnosis of dementia, depression, schizophrenia, or bipolar”

    Page: https://pubmed.ncbi.nlm.nih.gov/36350602/

Response for Diagnosis area: Bipolar disorder
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood DisordersField-cited
  • Ranger et al. Preexisting Neuropsychiatric Conditions and Associated Risk… (JAMA Psychiatry 2023)

    https://doi.org/10.1001/jamapsychiatry.2022.3614

    Section: EXPOSURES

    “Diagnosis of and/or medication for anxiety, mood, or psychotic disorders and diagnosis of dementia, depression, schizophrenia, or bipolar”

    Page: https://pubmed.ncbi.nlm.nih.gov/36350602/

Response for Diagnosis area: Major depressive disorder
Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety DisordersField-cited
  • Ranger et al. Preexisting Neuropsychiatric Conditions and Associated Risk… (JAMA Psychiatry 2023)

    https://doi.org/10.1001/jamapsychiatry.2022.3614

    Section: EXPOSURES

    “Diagnosis of and/or medication for anxiety, mood, or psychotic disorders”

    Page: https://pubmed.ncbi.nlm.nih.gov/36350602/

Response for Diagnosis area: Generalised anxiety disorder

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked sites

Optional

No value heldNo source yet

No citation linked to this field yet.

Response for Linked sites

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

16 Apr 2026Internal

Internal catalogue field

——
Data source

Recommended

Verified Apr 2026 from qresearch.org (home, about, ethics, information for researchers, guides), PubMed PMID 25168040, PubMed PMID 36350602, Google Scholar search snapshot, HDR UK Gateway search snapshot, ClinicalTrials.gov search snapshot, ISRCTN API query (0 trials), DPUK Data Portal snapshotInternal

Internal catalogue field

——