Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
All validation packs

Cohort validation pack

Understanding Society

Understanding Society: UK Household Longitudinal Study

Generated 6 Oct 2026, 10:36 · ID 19

Unverified

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

72

Total fields

41

Field-cited

0

Whole-record source only

8

AI-inferred, no source yet

18

Searched — not published

25

No value held

26

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

41 of 67 reviewable fields are cited to a source (61%) · 8 with no source yet · 18 searched — not published · 25 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

Understanding SocietyField-cited
Response for Short name
Full name

Required

Understanding Society: UK Household Longitudinal StudyField-cited
Response for Full name
Managing organisation

Recommended

University of EssexField-cited
Response for Managing organisation
Primary site

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: National multi-institution cohort; no single primary site asserted in reviewed public sources (about page, main survey docs, data releases, HDRUK UK LLC collection).

Response for Primary site
Website URL

Recommended

https://www.understandingsociety.ac.uk/Field-cited
  • Understanding Society — About the Study

    https://www.understandingsociety.ac.uk/about/about-the-study

    Section: Site identity

    “Understanding Society is the UK Household Longitudinal Study.”

    Page: https://www.understandingsociety.ac.uk/about/about-the-study

Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

https://www.cataloguementalhealth.ac.uk/UKHLSField-cited
  • Catalogue of Mental Health Measures

    https://www.cataloguementalhealth.ac.uk

    Section: Official sitemap study URL

    “https://www.cataloguementalhealth.ac.uk/UKHLS”

    Page: https://www.cataloguementalhealth.ac.uk/UKHLS

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No named single study contact owner published on reviewed public documentation pages.

Response for Contact name
Contact email

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No direct contact email published on reviewed cohort summary/documentation pages.

Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

UK-wide longitudinal household panel survey with annual interviews since 2009, including mental health, social and economic measures.Field-cited
  • Understanding Society — Main survey documentation

    https://www.understandingsociety.ac.uk/documentation/mainstage

    Section: Main survey overview

    “Understanding Society, the UK Household Longitudinal Study, is a longitudinal survey of the members of approximately 40,000 households (at Wave 1) in the United Kingdom.”

    Page: https://www.understandingsociety.ac.uk/documentation/mainstage

Response for Description
Total N

Required

40,000Field-cited
Response for Total N
Total N qualifier

Recommended

approximateField-cited
  • Understanding Society — Main survey documentation

    https://www.understandingsociety.ac.uk/documentation/mainstage

    Section: Main survey overview

    “approximately 40,000 households (at Wave 1)”

    Page: https://www.understandingsociety.ac.uk/documentation/mainstage

Response for Total N qualifier
Year established

Recommended

2009Field-cited
Response for Year established
Active cohort

Recommended

YesField-cited
Response for Active cohort
Ongoing recruitment

Recommended

YesField-cited
  • Understanding Society — About the Study

    https://www.understandingsociety.ac.uk/about/about-the-study

    Section: Longitudinal design

    “We interview participants every year so that short- and long-term changes in people's lives can be investigated.”

    Page: https://www.understandingsociety.ac.uk/about/about-the-study

Response for Ongoing recruitment
Refreshed cohort

Recommended

YesField-cited
  • Understanding Society — About the Study

    https://www.understandingsociety.ac.uk/about/about-the-study

    Section: Continuous collection

    “We interview participants every year so that short- and long-term changes in people's lives can be investigated.”

    Page: https://www.understandingsociety.ac.uk/about/about-the-study

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No cohort-wide recontact_success_rate percentage published in reviewed sources.

Response for Recontact success rate

Retention rate

Recommended

90.00Field-cited
  • Understanding Society — Who are our participants?

    https://www.understandingsociety.ac.uk/about/who-are-our-participants

    Section: Participant continuity

    “Around 90% of participants who took part in the previous wave continue to take part in Understanding Society in the next wave”

    Page: https://www.understandingsociety.ac.uk/about/who-are-our-participants

Response for Retention rate

Published references

Recommended

10.14301/llcs.v3i1.159Field-cited
Response for Published references
Notes

Recommended

Main survey waves continue annually; data available through UK Data Service access tiers.No source yet

No citation linked to this field yet.

Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

3 — Broad consent (recontactable for future studies)Field-cited
  • Understanding Society — About the Study

    https://www.understandingsociety.ac.uk/about/about-the-study

    Section: Administrative linkage statement

    “Study data can be linked, with consent, to administrative records from other sources to build a richer picture of households.”

    Page: https://www.understandingsociety.ac.uk/about/about-the-study

Response for Consent level (axis)
Characterisation depth (axis)

Required

3 — Multi-domain MH characterisationField-cited
  • Understanding Society — Main survey documentation

    https://www.understandingsociety.ac.uk/documentation/mainstage

    Section: Survey scope

    “The overall purpose of Understanding Society is to provide high-quality longitudinal data on subjects such as health, work, education, income, family, and social life”

    Page: https://www.understandingsociety.ac.uk/documentation/mainstage

Response for Characterisation depth (axis)
Data availability (axis)

Required

3 — Adds biological specimens/molecular dataField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Data releases

    “Biomarker and genetics data was released in 2014. Epigenetics data was released in 2017, with a further dataset added in 2021.”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 2Internal

Internal catalogue field

——
Population type

Recommended

General populationNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • Understanding Society — About the Study

    https://www.understandingsociety.ac.uk/about/about-the-study

    Section: Participation model

    “As a longitudinal study, Understanding Society helps us explore how life in the UK is changing”

    Page: https://www.understandingsociety.ac.uk/about/about-the-study

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

YesField-cited
Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
  • Understanding Society — Main survey documentation

    https://www.understandingsociety.ac.uk/documentation/mainstage

    Section: Main survey overview

    “The overall purpose ... on subjects such as health, work, education, income, family, and social life”

    Page: https://www.understandingsociety.ac.uk/documentation/mainstage

Response for Cognitive testing
Physical measures

Recommended

YesField-cited
Response for Physical measures
Biosamples

Recommended

YesField-cited
Response for Biosamples
Genomic data

Recommended

YesField-cited
Response for Genomic data
Omics

Recommended

YesField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Biomarker and genetics data

    “Epigenetics data was released in 2017, with a further dataset added in 2021. ... Proteomics panels ... are available.”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Omics
Imaging

Recommended

NoField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Data releases sections

    “Main survey ... Biomarker and genetics data ... Linked data”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Imaging
Wearable / sensor

Recommended

NoField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Data releases

    “Innovation Panel ... Wellbeing App Study data are available.”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Data releases

    “Wellbeing App Study data are available.”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Digital phenotyping
Linked health records

Recommended

YesField-cited
  • Understanding Society — About the Study

    https://www.understandingsociety.ac.uk/about/about-the-study

    Section: Key features

    “It can be linked to administrative data. Study data can be linked, with consent, to administrative records from other sources”

    Page: https://www.understandingsociety.ac.uk/about/about-the-study

Response for Linked health records
Biosample types

Recommended

bloodField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Biomarker and genetics data

    “Biomarker and genetics data was released in 2014.”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Genetics availability is documented, but platform/vendor details are not specified in reviewed public pages.

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No imaging modalities are documented for this cohort in reviewed sources.

Response for Imaging modalities
Mental health measures

Recommended

GHQ-12Field-cited
Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
Response for NHS linkage
GP linkage

Recommended

NoField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Linked data listing

    “Linked data ... linked to the English NPD ... linked to DVLA records ... linked to NHS data”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for GP linkage
Death registry linkage

Recommended

NoField-cited
  • Understanding Society — Data releases

    https://www.understandingsociety.ac.uk/documentation/data-releases

    Section: Linked data listing

    “Linked data ... linked to the English NPD ... linked to DVLA records ... linked to NHS data”

    Page: https://www.understandingsociety.ac.uk/documentation/data-releases

Response for Death registry linkage
Education linkage

Recommended

YesField-cited
Response for Education linkage
Data access mechanism

Recommended

direct_applicationField-cited
  • Understanding Society — Access data

    https://www.understandingsociety.ac.uk/documentation/access-data/

    Section: Access statement

    “Researchers who would like to use Understanding Society need to register with the UK Data Service before being allowed to apply for or download datasets.”

    Page: https://www.understandingsociety.ac.uk/documentation/access-data/

Response for Data access mechanism
TRE platform

Recommended

UK Data ServiceField-cited
Response for TRE platform
Data dictionary URL

Recommended

https://www.understandingsociety.ac.uk/documentationField-cited
  • Understanding Society — Main survey documentation

    https://www.understandingsociety.ac.uk/documentation/mainstage

    Section: Navigation context

    “Main survey - Understanding Society”

    Page: https://www.understandingsociety.ac.uk/documentation/mainstage

Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Public access pages describe process and access levels but do not provide a fixed timeline in days.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No fixed cost tariff is published on reviewed public access pages.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Public pages reviewed do not provide a cohort-wide age-band JSON distribution suitable for direct database entry.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Public pages reviewed do not provide a cohort-wide sex JSON distribution suitable for direct database entry.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Public pages reviewed do not provide a cohort-wide ethnicity JSON distribution suitable for direct database entry.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Median age is not published in reviewed public cohort pages.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No public source in reviewed set provides a single cohort-wide female percentage for direct use.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No public source in reviewed set provides a single cohort-wide non-white percentage for direct use.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
Response for Geographic coverage
Follow-up duration

Recommended

>10 yearsField-cited
Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Rolling waves are reported, but no single last_data_collection_date is published for this field.

Response for Last data collection date
Recruitment start date

Recommended

1 Jan 2009Field-cited
Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Cohort remains ongoing; no closed recruitment end date is published.

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Transdiagnostic (anxiety-depression)

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Transdiagnostic (anxiety-depression) · TransdiagnosticField-cited
  • Understanding Society — GHQ-12 derived variable documentation

    https://www.understandingsociety.ac.uk/documentation/mainstage/variables/scghq1_dv/

    Section: GHQ variable definition

    “12 questions of the General Health Questionnaire (GHQ)”

    Page: https://www.understandingsociety.ac.uk/documentation/mainstage/variables/scghq1_dv/

Response for Diagnosis area: Transdiagnostic (anxiety-depression)

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked sites

Optional

No value heldNo source yet

No citation linked to this field yet.

Response for Linked sites

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

No value heldInternal

Internal catalogue field

——
Data source

Recommended

No value heldInternal

Internal catalogue field

——