Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
All validation packs

Cohort validation pack

MCS

Millennium Cohort Study

Generated 6 Oct 2026, 10:36 · ID 18

Unverified

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

75

Total fields

42

Field-cited

0

Whole-record source only

7

AI-inferred, no source yet

21

Searched — not published

26

No value held

28

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

42 of 70 reviewable fields are cited to a source (60%) · 7 with no source yet · 21 searched — not published · 26 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

MCSField-cited
Response for Short name
Full name

Required

Millennium Cohort StudyField-cited
Response for Full name
Managing organisation

Recommended

UCL Centre for Longitudinal StudiesField-cited
Response for Managing organisation
Primary site

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as single lead site assignment: MCS is managed centrally by CLS with UK-wide participant coverage and no single DIGIT site mapping published.

Response for Primary site
Website URL

Recommended

https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/Field-cited
Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

https://www.cataloguementalhealth.ac.uk/MCSField-cited
  • Catalogue of Mental Health Measures

    https://www.cataloguementalhealth.ac.uk

    Section: Official sitemap study URL

    “https://www.cataloguementalhealth.ac.uk/MCS”

    Page: https://www.cataloguementalhealth.ac.uk/MCS

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as single cohort contact: page lists PI and general mailbox but no designated database contact_name field owner.

Response for Contact name
Contact email

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE for direct cohort contact_email: only general mailbox (clsdata@ucl.ac.uk) and PI email are published, no dedicated cohort access contact for this field semantics.

Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

UK longitudinal birth cohort following around 19,000 young people born in 2000-02 across England, Scotland, Wales and Northern Ireland, with repeated survey sweeps from infancy into adulthood.Field-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Intro

    “The Millennium Cohort Study (MCS) is a UK longitudinal birth study. It is following the lives of around 19,000 young people born across England, Scotland, Wales and Northern Ireland in 2000-02.”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Description
Total N

Required

18,827Field-cited
  • PubMed abstract — MCS cohort profile

    https://pubmed.ncbi.nlm.nih.gov/24550246/

    Section: Abstract

    “18 552 families (18 827 children) were recruited to the cohort in the first sweep.”

    Page: https://pubmed.ncbi.nlm.nih.gov/24550246/

Response for Total N
Total N qualifier

Recommended

approximateField-cited
  • PubMed abstract — MCS cohort profile

    https://pubmed.ncbi.nlm.nih.gov/24550246/

    Section: Abstract

    “18 552 families (18 827 children) were recruited to the cohort in the first sweep.”

    Page: https://pubmed.ncbi.nlm.nih.gov/24550246/

Response for Total N qualifier
Year established

Recommended

2000Field-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Intro

    “born across England, Scotland, Wales and Northern Ireland in 2000-02.”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Year established
Active cohort

Recommended

YesField-cited
Response for Active cohort
Ongoing recruitment

Recommended

NoField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Study type

    “following the lives of around 19,000 young people born ... in 2000-02”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Ongoing recruitment
Refreshed cohort

Recommended

YesField-cited
Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no cohort-wide published recontact success percentage found across reviewed CLS/HRA/PubMed sources.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no single retention_rate metric published in reviewed sources for current wave.

Response for Retention rate

Published references

Recommended

doi:10.1093/ije/dyu001, doi:10.14301/llcs.v7i4.410Field-cited
  • Connelly and Platt — Cohort Profile: UK Millennium Cohort Study (IJE 2014)

    https://doi.org/10.1093/ije/dyu001

    Section: Citation

    “https://doi.org/10.1093/ije/dyu001”

    Page: https://academic.oup.com/ije/article/43/6/1719/703283

  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: About MCS

    “Joshi, H. and Fitzsimons, E. (2016).”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Published references
Notes

Recommended

National MCS resource with multi-wave follow-up, linked administrative health/education records, and genetic/biological sample access via CLS data governance pathways.Field-cited
  • HDRUK Innovation Gateway

    https://healthdatagateway.org

    Section: HDRUK collection check

    “UK Longitudinal Linkage Collaboration ... Millennium Cohort Study Dataset”

    Page: https://healthdatagateway.org/collection/98

  • ClinicalTrials.gov

    https://clinicaltrials.gov

    Section: Registry search

    “ClinicalTrials.gov search shell retrieved for term Millennium Cohort Study”

    Page: https://clinicaltrials.gov/search?term=Millennium%20Cohort%20Study

  • ISRCTN

    https://isrctn.com

    Section: Registry search

    “Please enable cookies and JavaScript to use ISRCTN.”

    Page: https://www.isrctn.com/search?q=Millennium+Cohort+Study

  • CLS — Data access

    https://cls.ucl.ac.uk/data-access-training/data-access/

    Section: Data access

    “Most CLS research data are publicly available through public repositories, primarily the UK Data Service.”

    Page: https://cls.ucl.ac.uk/data-access-training/data-access/

Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

3 — Broad consent (recontactable for future studies)Field-cited
  • HRA — Millennium Cohort Study summary

    https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/millennium-cohort-study/

    Section: Research summary

    “This application seeks REC approval for the ongoing work of the study over the next five years. This work involves 1) Keeping in touch with and tracing cohort members”

    Page: https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/millennium-cohort-study/

Response for Consent level (axis)
Characterisation depth (axis)

Required

3 — Multi-domain MH characterisationField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Intro + sweeps

    “It has tracked measures such as physical, socio-emotional, cognitive and behavioural development... Data are available from eight main sweeps of MCS.”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Characterisation depth (axis)
Data availability (axis)

Required

3 — Adds biological specimens/molecular dataField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Data + special data

    “Most MCS data are available for free via the UK Data Service [SN 2000031].”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 2Internal

Internal catalogue field

——
Population type

Recommended

General populationNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

UnknownNot published
  • Searched — not published

    UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoNot published
Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

YesField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Intro

    “It has tracked measures such as physical, socio-emotional, cognitive and behavioural development”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Questionnaire / interview
Cognitive testing

Recommended

YesField-cited
  • PubMed abstract — MCS cohort profile

    https://pubmed.ncbi.nlm.nih.gov/24550246/

    Section: Abstract

    “A range of health-related data have been collected as well as measures concerning ... cognitive ability”

    Page: https://pubmed.ncbi.nlm.nih.gov/24550246/

Response for Cognitive testing
Physical measures

Recommended

NoField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Intro

    “It has tracked measures such as physical, socio-emotional, cognitive and behavioural development”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Physical measures
Biosamples

Recommended

YesField-cited
Response for Biosamples
Genomic data

Recommended

YesField-cited
Response for Genomic data
Omics

Recommended

NoField-cited
Response for Omics
Imaging

Recommended

NoField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Special data links

    “MCS tracked cognitive development through early life”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Imaging
Wearable / sensor

Recommended

NoField-cited
Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Special data links

    “Special data”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Digital phenotyping
Linked health records

Recommended

YesField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Linked data summary

    “Researchers can access administrative health and education data linked to MCS survey data. These include Hospital Episode Statistics”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Linked health records
Biosample types

Recommended

salivaField-cited
Response for Biosample types
Genotyping platform

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: reviewed public pages confirm genetic/exome data but do not specify platform name for MCS in the quoted sections.

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE/Not applicable: no imaging modalities evidenced for MCS in reviewed sources.

Response for Imaging modalities
Mental health measures

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as complete harmonised measure list from reviewed pages; source pages indicate measures exist but not a bounded canonical array for this field.

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value heldNo source yet

No citation linked to this field yet.

Response for Data subcategories

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value heldNo source yet

No citation linked to this field yet.

Response for Consent and use permissions

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value heldNo source yet

No citation linked to this field yet.

Response for Access pathways

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value heldNo source yet

No citation linked to this field yet.

Response for Within-cohort coverage metrics

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
Response for NHS linkage
GP linkage

Recommended

NoNot published
  • Searched — not published

    UNSOURCEABLE: linked data pages confirm health linkage generally but do not explicitly isolate GP-primary-care linkage for MCS.

Response for GP linkage
Death registry linkage

Recommended

NoField-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Linked data summary

    “Researchers can access administrative health and education data linked to MCS survey data.”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Death registry linkage
Education linkage

Recommended

YesField-cited
Response for Education linkage
Data access mechanism

Recommended

direct_applicationField-cited
  • CLS — Data access

    https://cls.ucl.ac.uk/data-access-training/data-access/

    Section: Data access

    “Most CLS research data are publicly available through public repositories, primarily the UK Data Service.”

    Page: https://cls.ucl.ac.uk/data-access-training/data-access/

Response for Data access mechanism
TRE platform

Recommended

UK Data ServiceField-cited
Response for TRE platform
Data dictionary URL

Recommended

https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/Field-cited
Response for Data dictionary URL
Data access timeline (days)

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no numeric application-to-access timeline published.

Response for Data access timeline (days)
Data access cost

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: reviewed sources do not provide a cohort-specific access cost schedule.

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE from reviewed public sources: no exact JSON-compatible age-band percentages published on accessed pages.

Response for Age distribution
Sex distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE from reviewed public sources: no exact current sex-distribution percentages published on accessed pages.

Response for Sex distribution
Ethnicity distribution

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE from reviewed public sources: no exact current ethnicity-distribution percentages published on accessed pages.

Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no precise median age value published on reviewed pages.

Response for Median age
Percent female

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no exact female percentage in reviewed public pages; value set NULL.

Response for Percent female
Percent non-white

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: no exact non-white percentage in reviewed public pages; value set NULL.

Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
Response for Geographic coverage
Follow-up duration

Recommended

24+ years (2000-present)Field-cited
  • CLS — Millennium Cohort Study

    https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

    Section: Intro + sweeps

    “born ... in 2000-02 ... Data are available from eight main sweeps”

    Page: https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as exact date from reviewed pages; only wave-level statements were available.

Response for Last data collection date
Recruitment start date

Recommended

1 Sept 2000Field-cited
  • PubMed abstract — MCS cohort profile

    https://pubmed.ncbi.nlm.nih.gov/24550246/

    Section: Abstract

    “children born at the turn of the new century”

    Page: https://pubmed.ncbi.nlm.nih.gov/24550246/

Response for Recruitment start date
Recruitment end date

Recommended

31 Jan 2002Field-cited
  • PubMed abstract — MCS cohort profile

    https://pubmed.ncbi.nlm.nih.gov/24550246/

    Section: Abstract

    “children born at the turn of the new century”

    Page: https://pubmed.ncbi.nlm.nih.gov/24550246/

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood DisordersField-cited
  • CLS — One in four girls is depressed at age 14

    https://cls.ucl.ac.uk/one-in-four-girls-is-depressed-at-age-14-new-study-reveals/

    Section: News article

    “24 per cent of girls and 9 per cent of boys are depressed at age 14.”

    Page: https://cls.ucl.ac.uk/one-in-four-girls-is-depressed-at-age-14-new-study-reveals/

Response for Diagnosis area: Major depressive disorder
Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety DisordersField-cited
  • CLS — One in four girls is depressed at age 14

    https://cls.ucl.ac.uk/one-in-four-girls-is-depressed-at-age-14-new-study-reveals/

    Section: News article

    “18 per cent having symptoms of depression and anxiety”

    Page: https://cls.ucl.ac.uk/one-in-four-girls-is-depressed-at-age-14-new-study-reveals/

Response for Diagnosis area: Generalised anxiety disorder
Diagnosis area: ADHD

Recommended

Confirm this diagnosis area applies and estimated N if shown.

ADHD · Neurodevelopmental · est. n=264Field-cited
  • Russell et al. — ASD and ADHD prevalence in MCS

    https://doi.org/10.1007/s10803-013-1849-0

    Section: Abstract

    “1.4 % reportedly had ADHD”

    Page: https://pubmed.ncbi.nlm.nih.gov/23719853/

  • Russell et al. — ASD and ADHD prevalence in MCS

    https://doi.org/10.1007/s10803-013-1849-0

    Section: Abstract

    “1.4 % reportedly had ADHD”

    Page: https://pubmed.ncbi.nlm.nih.gov/23719853/

Response for Diagnosis area: ADHD
Diagnosis area: Autism spectrum conditions

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Autism spectrum conditions · Neurodevelopmental · est. n=320Field-cited
  • Russell et al. — ASD and ADHD prevalence in MCS

    https://doi.org/10.1007/s10803-013-1849-0

    Section: Abstract

    “1.7 % of children were reported as having ASD”

    Page: https://pubmed.ncbi.nlm.nih.gov/23719853/

  • Russell et al. — ASD and ADHD prevalence in MCS

    https://doi.org/10.1007/s10803-013-1849-0

    Section: Abstract

    “1.7 % of children were reported as having ASD”

    Page: https://pubmed.ncbi.nlm.nih.gov/23719853/

Response for Diagnosis area: Autism spectrum conditions

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked sites

Optional

No value heldNo source yet

No citation linked to this field yet.

Response for Linked sites

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

No value heldInternal

Internal catalogue field

——
Data source

Recommended

No value heldInternal

Internal catalogue field

——
Validate: MCS | DIGIT