Cohort validation pack
MCS
Millennium Cohort Study
Generated 6 Oct 2026, 10:36 · ID 18
Instructions for reviewers
- Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
- Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
- Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.
Overview
75
Total fields
42
Field-cited
0
Whole-record source only
7
AI-inferred, no source yet
21
Searched — not published
26
No value held
28
Needs review
Source coverage
Summary of how well fields in this pack are linked to evidence.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Field-level source coverage Optional | 42 of 70 reviewable fields are cited to a source (60%) · 7 with no source yet · 21 searched — not published · 26 with no value held | Computed | No citation linked to this field yet. | No response selected | No notes |
Identity and ownership
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Short name Required | MCS | Field-cited |
| No response selected | No notes |
Full name Required | Millennium Cohort Study | Field-cited |
| No response selected | No notes |
Managing organisation Recommended | UCL Centre for Longitudinal Studies | Field-cited |
| No response selected | No notes |
Primary site Recommended | No value held | Not published |
| No response selected | No notes |
Website URL Recommended | https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/ | Field-cited |
| No response selected | No notes |
Catalogue of Mental Health Measures URL Recommended | https://www.cataloguementalhealth.ac.uk/MCS | Field-cited |
| No response selected | No notes |
Contact name Recommended | No value held | Not published |
| No response selected | No notes |
Contact email Recommended | No value held | Not published |
| No response selected | No notes |
Summary and status
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Description Required | UK longitudinal birth cohort following around 19,000 young people born in 2000-02 across England, Scotland, Wales and Northern Ireland, with repeated survey sweeps from infancy into adulthood. | Field-cited |
| No response selected | No notes |
Total N Required | 18,827 | Field-cited |
| No response selected | No notes |
Total N qualifier Recommended | approximate | Field-cited |
| No response selected | No notes |
Year established Recommended | 2000 | Field-cited |
| No response selected | No notes |
Active cohort Recommended | Yes | Field-cited |
| No response selected | No notes |
Ongoing recruitment Recommended | No | Field-cited |
| No response selected | No notes |
Refreshed cohort Recommended | Yes | Field-cited |
| No response selected | No notes |
Recontact success rate Recommended | No value held | Not published |
| No response selected | No notes |
Retention rate Recommended | No value held | Not published |
| No response selected | No notes |
Published references Recommended | doi:10.1093/ije/dyu001, doi:10.14301/llcs.v7i4.410 | Field-cited |
| No response selected | No notes |
Notes Recommended | National MCS resource with multi-wave follow-up, linked administrative health/education records, and genetic/biological sample access via CLS data governance pathways. | Field-cited |
| No response selected | No notes |
3D cohort mapping
Consent, characterisation, and data availability axes used on the cohort map.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent level (axis) Required | 3 — Broad consent (recontactable for future studies) | Field-cited |
| No response selected | No notes |
Characterisation depth (axis) Required | 3 — Multi-domain MH characterisation | Field-cited |
| No response selected | No notes |
Data availability (axis) Required | 3 — Adds biological specimens/molecular data | Field-cited |
| No response selected | No notes |
Cohort map group (derived) Recommended | Group 2 | Internal | Internal catalogue field | — | — |
Population type Recommended | General population | Not published |
| No response selected | No notes |
Industry engagement status Recommended | Unknown | Not published |
| No response selected | No notes |
Parent cohort / programme Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
TWiCs eligible Recommended | No | Not published | No response selected | No notes |
Data modalities
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Questionnaire / interview Recommended | Yes | Field-cited |
| No response selected | No notes |
Cognitive testing Recommended | Yes | Field-cited |
| No response selected | No notes |
Physical measures Recommended | No | Field-cited |
| No response selected | No notes |
Biosamples Recommended | Yes | Field-cited |
| No response selected | No notes |
Genomic data Recommended | Yes | Field-cited |
| No response selected | No notes |
Omics Recommended | No | Field-cited |
| No response selected | No notes |
Imaging Recommended | No | Field-cited |
| No response selected | No notes |
Wearable / sensor Recommended | No | Field-cited |
| No response selected | No notes |
Digital phenotyping Recommended | No | Field-cited |
| No response selected | No notes |
Linked health records Recommended | Yes | Field-cited |
| No response selected | No notes |
Biosample types Recommended | saliva | Field-cited |
| No response selected | No notes |
Genotyping platform Recommended | No value held | Not published |
| No response selected | No notes |
Imaging modalities Recommended | No value held | Not published |
| No response selected | No notes |
Mental health measures Recommended | No value held | Not published |
| No response selected | No notes |
Data subcategories
Structured modality and subcategory rows used alongside the high-level data-type flags.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Consent and use permissions
Specific use permissions separate from the 3D consent-level axis.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Access pathways
One or more routes by which researchers can request or analyse data.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Within-cohort coverage
Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total. | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Linkage and access
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
NHS linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
GP linkage Recommended | No | Not published |
| No response selected | No notes |
Death registry linkage Recommended | No | Field-cited |
| No response selected | No notes |
Education linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
Data access mechanism Recommended | direct_application | Field-cited |
| No response selected | No notes |
TRE platform Recommended | UK Data Service | Field-cited |
| No response selected | No notes |
Data dictionary URL Recommended | https://cls.ucl.ac.uk/cls-studies/millennium-cohort-study/ | Field-cited |
| No response selected | No notes |
Data access timeline (days) Recommended | No value held | Not published |
| No response selected | No notes |
Data access cost Recommended | No value held | Not published |
| No response selected | No notes |
Participant profile and dates
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Age distribution Recommended | No value held | Not published |
| No response selected | No notes |
Sex distribution Recommended | No value held | Not published |
| No response selected | No notes |
Ethnicity distribution Recommended | No value held | Not published |
| No response selected | No notes |
Smoking status distribution Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Median age Recommended | No value held | Not published |
| No response selected | No notes |
Percent female Recommended | No value held | Not published |
| No response selected | No notes |
Percent non-white Recommended | No value held | Not published |
| No response selected | No notes |
Geographic coverage Recommended | national | Field-cited |
| No response selected | No notes |
Follow-up duration Recommended | 24+ years (2000-present) | Field-cited |
| No response selected | No notes |
Last data collection date Recommended | No value held | Not published |
| No response selected | No notes |
Recruitment start date Recommended | 1 Sept 2000 | Field-cited |
| No response selected | No notes |
Recruitment end date Recommended | 31 Jan 2002 | Field-cited |
| No response selected | No notes |
Diagnosis areas
Mental health diagnosis areas represented in this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Major depressive disorder · Mood Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Generalised anxiety disorder · Anxiety Disorders | Field-cited |
| No response selected | No notes |
Diagnosis area: ADHD Recommended Confirm this diagnosis area applies and estimated N if shown. | ADHD · Neurodevelopmental · est. n=264 | Field-cited |
| No response selected | No notes |
Diagnosis area: Autism spectrum conditions Recommended Confirm this diagnosis area applies and estimated N if shown. | Autism spectrum conditions · Neurodevelopmental · est. n=320 | Field-cited |
| No response selected | No notes |
Linked sites
Sites contributing participants or data to this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Linked sites Optional | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Verification metadata
Internal catalogue status — for reference only.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Verification status Recommended | unverified | Internal | Internal catalogue field | — | — |
Last verified Recommended | No value held | Internal | Internal catalogue field | — | — |
Data source Recommended | No value held | Internal | Internal catalogue field | — | — |