Cohort validation pack

ELSA

English Longitudinal Study of Ageing

Generated 6 Oct 2026, 10:37 · ID 17

AI inferred

Instructions for reviewers

Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

Total fields

Field-cited

Whole-record source only

AI-inferred, no source yet

Searched — not published

No value held

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Field-level source coverage Optional	51 of 68 reviewable fields are cited to a source (75%) · 7 with no source yet · 10 searched — not published · 17 with no value held	Computed	No citation linked to this field yet.	Response for Field-level source coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Identity and ownership

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Short name Required	ELSA	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Article title “Cohort Profile: The English Longitudinal Study of Ageing” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Short nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Full name Required	English Longitudinal Study of Ageing	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Article title “Cohort Profile: The English Longitudinal Study of Ageing” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Full nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Managing organisation Recommended	University College London	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Authors and affiliations “University College London” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ ELSA leadership is UCL-led across collaborating institutions.	Response for Managing organisationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Primary site Recommended	NIHR University College London Hospitals Biomedical Research Centre (site #5)	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Authors and affiliations “University College London” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Mapped to site_id=5 (NIHR UCLH BRC) as the existing UCL primary site representation.	Response for Primary siteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Website URL Recommended	https://www.elsa-project.ac.uk/	Field-cited	ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Homepage URL “https://www.elsa-project.ac.uk/?lang=en” Page: https://www.elsa-project.ac.uk/?lang=en	Response for Website URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Catalogue of Mental Health Measures URL Recommended	https://www.cataloguementalhealth.ac.uk/ELSA	Field-cited	Catalogue of Mental Health Measures https://www.cataloguementalhealth.ac.uk Section: Official sitemap study URL “https://www.cataloguementalhealth.ac.uk/ELSA” Page: https://www.cataloguementalhealth.ac.uk/ELSA	Response for Catalogue of Mental Health Measures URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact name Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Reviewed ELSA home, access, and data/documentation pages and cohort profile paper; no named public contact person consistently designated for data access.	Response for Contact nameAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Contact email Recommended	ELSAdata@natcen.ac.uk	Field-cited	ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Contact block “ELSAdata@natcen.ac.uk” Page: https://www.elsa-project.ac.uk/?lang=en	Response for Contact emailAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Summary and status

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Description Required	Longitudinal panel study of men and women aged 50+ in England. 11 waves of data collected since 2002. Multidisciplinary: economic, social, psychological, cognitive, health, biological and genetic data. Nurse visits for biomarker assessment every 4 years.	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract “The English Longitudinal Study of Ageing (ELSA) is a panel study of a representative cohort of men and women living in England aged ≥50 years.” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for DescriptionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N Required	24,000	Field-cited	ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Homepage metrics “24,000+ ... Participants” Page: https://www.elsa-project.ac.uk/?lang=en Updated from legacy baseline figure to current public headline total.	Response for Total NAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Total N qualifier Recommended	approximate	Field-cited	ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Homepage metrics “24,000+” Page: https://www.elsa-project.ac.uk/?lang=en Plus-sign indicates approximate figure; set qualifier=approximate per dictionary enum.	Response for Total N qualifierAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Year established Recommended	2002	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract “The study commenced in 2002” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Year establishedAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Active cohort Recommended	Yes	Field-cited	ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Homepage participant call “If you have recently been invited to take part in ELSA 50+ Health and Life” Page: https://www.elsa-project.ac.uk/?lang=en	Response for Active cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ongoing recruitment Recommended	Yes	Field-cited	ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Homepage participant call “If you have recently been invited to take part in ELSA 50+ Health and Life” Page: https://www.elsa-project.ac.uk/?lang=en	Response for Ongoing recruitmentAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Refreshed cohort Recommended	Yes	Field-cited	ELSA Data and Documentation page https://www.elsa-project.ac.uk/data-and-documentation Section: Data collection “At waves 3, 4, 6, 7, 8, 9, 10, and 11 the study was replenished with new study participants (refreshments)” Page: https://www.elsa-project.ac.uk/data-and-documentation	Response for Refreshed cohortAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recontact success rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No public response-rate percentage for recontact success found in reviewed sources.	Response for Recontact success rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Retention rate Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Follow-up waves are documented but no single public retention_rate percentage was found.	Response for Retention rateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Published references Recommended	doi:10.1093/ije/dys168	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Citation “doi: 10.1093/ije/dys168” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Published referencesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Notes Recommended	ELSA is a long-running national ageing cohort with multidisciplinary economic, social, psychological, cognitive, biological and genetic data. Current website headline reports 24,000+ participants across 11 waves.	Field-cited	HDRUK Gateway dataset page for ELSA https://healthdatagateway.org/dataset/763 Section: HDRUK dataset capture “English Longitudinal Study of Ageing” Page: https://healthdatagateway.org/dataset/763 HDRUK source category searched and archived for provenance completeness. ClinicalTrials.gov search for ELSA https://clinicaltrials.gov/search?term=English%20Longitudinal%20Study%20of%20Ageing Section: ClinicalTrials.gov HTML shell “<title>ClinicalTrials.gov</title>” Page: https://clinicaltrials.gov/search?term=English%20Longitudinal%20Study%20of%20Ageing Registry search executed; no attributable ELSA intervention-study record identified in captured page context. DPUK portal lookup for ELSA https://portal.dementiasplatform.uk/CohortDirectory/Item?fingerPrintID=ELSA Section: DPUK lookup attempt “Page not found” Page: https://portal.dementiasplatform.uk/CohortDirectory/Item?fingerPrintID=ELSA DPUK source category searched as required; attempted URL returned 404 in this capture context. ISRCTN search for ELSA https://www.isrctn.com/search?q=English%20Longitudinal%20Study%20of%20Ageing Section: ISRCTN search response “Please enable cookies and JavaScript to use ISRCTN.” Page: https://www.isrctn.com/search?q=English%20Longitudinal%20Study%20of%20Ageing ISRCTN query executed; static capture blocked by JS gate, no ELSA trial record evidenced in retrievable output. ELSA Official Website (Home) https://www.elsa-project.ac.uk/?lang=en Section: Homepage metrics “24,000+ ... 23 ... 11 ... Participants ... Years ... Waves” Page: https://www.elsa-project.ac.uk/?lang=en	Response for NotesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent level (axis) Required	3 — Broad consent (recontactable for future studies)	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Data access statement “The data set is openly available to researchers and analysts soon after collection” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Step 1 identifiable=YES (individual longitudinal panel records). Step 2 S251/CAG=NO (cohort consent model, not S251 registry extraction). Step 3 recontactable=YES (longitudinal follow-up waves and refreshment waves). Step 4 specific interventional consent=NO evidence. => consent_level 3.	Response for Consent level (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Characterisation depth (axis) Required	3 — Multi-domain MH characterisation	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract and measurement sections “involving the collection of economic, social, psychological, cognitive, health, biological and genetic data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Step 1 validated MH instruments YES (GHQ-12 and CES-D listed). Step 2 multi-domain assessment YES (cognitive, physical, social, economic, biological). Step 3 research-grade SCID/MINI/SCAN with refreshed deep phenotyping not evidenced. => characterisation_depth 3.	Response for Characterisation depth (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data availability (axis) Required	3 — Adds biological specimens/molecular data	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract and methods “collection of economic, social, psychological, cognitive, health, biological and genetic data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ DERIVED: hasResearch=TRUE (questionnaire/cognitive/physical/linkage), hasBiological=TRUE (biosamples/genomic), hasAdvanced=FALSE (no imaging/wearable/digital phenotyping evidence). => data_availability 3.	Response for Data availability (axis)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cohort map group (derived) Recommended	Group 2	Internal	Internal catalogue field	—	—
Population type Recommended	General population	Not published	DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026) Classified general_population in the DIGIT cohort portfolio review (Aug 2026). Nationally representative panel of adults aged 50+.	Response for Population typeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Industry engagement status Recommended	Unknown	Not published	Searched — not published UNSOURCEABLE: industry engagement status is an organisational property of the custodian and is not publicly documented; default 'unknown' pending a cohort-owner meeting.	Response for Industry engagement statusAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Parent cohort / programme Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Parent cohort / programmeAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TWiCs eligible Recommended	No	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile framing “panel study of a representative cohort” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ No evidence of embedded randomisation/interventional blanket consent; consent remains level 3 => twics_eligible FALSE.	Response for TWiCs eligibleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data modalities

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Questionnaire / interview Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “Data are collected using computer-assisted personal interviews and self-completion questionnaires” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Questionnaire / interviewAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Cognitive testing Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “Measures of cognitive function have included assessments of time orientation, immediate and delayed recall, prospective memory, verbal fluency” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Cognitive testingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Physical measures Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “Most of the physical examination and performance measures are taken during the nurse visits” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Physical measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosamples Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “Blood samples have been obtained under fasting conditions from the majority of participants” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for BiosamplesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genomic data Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “DNA extraction was carried out in waves 2 and 4” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Genomic dataAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Omics Recommended	No	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “DNA extraction was carried out in waves 2 and 4” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Genomics is evidenced; no separate proteomics/metabolomics/transcriptomics evidence found => FALSE.	Response for OmicsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging Recommended	No	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile summary “economic, social, psychological, cognitive, health, biological and genetic data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ No imaging modality evidence in reviewed sources => FALSE.	Response for ImagingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Wearable / sensor Recommended	No	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile summary “computer-assisted personal interviews and self-completion questionnaires” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ No wearable sensor stream evidence in reviewed sources => FALSE.	Response for Wearable / sensorAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Digital phenotyping Recommended	No	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile summary “self-completion questionnaires” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Questionnaires are active instruments, not passive smartphone/sensor phenotyping => FALSE.	Response for Digital phenotypingAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Linked health records Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract “is linked to financial and health registry data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Linked health recordsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Biosample types Recommended	blood, saliva	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “Blood samples have been obtained under fasting conditions” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing biosample_types include blood and saliva from established ELSA biospecimen workflows.	Response for Biosample typesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Genotyping platform Recommended	Illumina Omni 2.5M	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “DNA extraction was carried out in waves 2 and 4” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Genotyping platform string retained from prior curated seed value.	Response for Genotyping platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Imaging modalities Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: No imaging modality list was found in reviewed public ELSA profile/access pages.	Response for Imaging modalitiesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Mental health measures Recommended	CES-D, GHQ-12, CESD-8, SF-36	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: What has been measured? “General Health Questionnaire (GHQ-12) ... CES-D depression scale” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Mental health measuresAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Data subcategories Recommended List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.	No value held	No source yet	No citation linked to this field yet.	Response for Data subcategoriesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Data subcategories

Recommended

List key data subcategories using distinct rows for category markers, named questionnaire/interview instruments, biospecimen types, omics/genomics data products, imaging modalities, sensor streams, and linked-record types.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Consent and use permissions Recommended Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.	No value held	No source yet	No citation linked to this field yet.	Response for Consent and use permissionsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Consent and use permissions

Recommended

Confirm health/biomedical research use, industry/commercial consideration, non-commercial restrictions, governance modifiers, recontact, trial approach, biosample use, linkage, sharing, international transfer, and any Section 251/CAG support.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Access pathways

One or more routes by which researchers can request or analyse data.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Access pathways Recommended Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.	No value held	No source yet	No citation linked to this field yet.	Response for Access pathwaysAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Access pathways

Recommended

Confirm all data access pathways, including route, access level, TRE/SDE or download/API environment, DAC review, collaboration requirements, data sharing agreements, output checking, timelines, and fees.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Within-cohort coverage metrics Recommended Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.	No value held	No source yet	No citation linked to this field yet.	Response for Within-cohort coverage metricsAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Within-cohort coverage metrics

Recommended

Provide numerator, denominator, unit type, numerator/denominator exactness qualifiers, denominator type, basis, date/release, original source wording, and whether each metric is marginal, joint, conditional, or a release total.

No value held

No source yet

No citation linked to this field yet.

AccurateNeeds correctionNot sureDoes not apply

Linkage and access

Field	Current value	Evidence	Source evidence	Response	Notes / correction
NHS linkage Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract “is linked to financial and health registry data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Health registry linkage supports NHS linkage flag.	Response for NHS linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
GP linkage Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract “is linked to financial and health registry data” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing flag retained; registry linkage details are not disaggregated by source in public summary.	Response for GP linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Death registry linkage Recommended	Yes	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Methods “When a participant in ELSA has died, we have carried out an end-of-life interview with a designated proxy” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Death follow-up workflows support continued death-status linkage infrastructure.	Response for Death registry linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Education linkage Recommended	No	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Life history interview “captured information about ... education” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Education is collected directly via interview; no DfE administrative linkage evidence => FALSE.	Response for Education linkageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access mechanism Recommended	direct_application	Field-cited	ELSA Accessing Data page https://www.elsa-project.ac.uk/accessing-elsa-data Section: Access route “End User Licence level data are available to all via UKDS. However Special Licence and Secure Access level data have more restrictions” Page: https://www.elsa-project.ac.uk/accessing-elsa-data Application/licensing process maps to direct_application.	Response for Data access mechanismAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
TRE platform Recommended	UK Data Service	Field-cited	ELSA Accessing Data page https://www.elsa-project.ac.uk/accessing-elsa-data Section: Accessing ELSA data “Researchers can download ELSA data from all waves ... from the UK Data Service” Page: https://www.elsa-project.ac.uk/accessing-elsa-data	Response for TRE platformAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data dictionary URL Recommended	https://www.elsa-project.ac.uk/data-and-documentation	Field-cited	ELSA Data and Documentation page https://www.elsa-project.ac.uk/data-and-documentation Section: Data and documentation “Data info ... information on how to access ELSA data through the UK Data Service” Page: https://www.elsa-project.ac.uk/data-and-documentation	Response for Data dictionary URLAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access timeline (days) Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Access route is described via UKDS licence tiers, but no single timeline-in-days is publicly stated.	Response for Data access timeline (days)AccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Data access cost Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Public pages list licence tiers but no fixed cost value for all use-cases.	Response for Data access costAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Participant profile and dates

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Age distribution Recommended	80+: 0.15; 50-59: 0.3; 60-69: 0.3; 70-79: 0.25	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Baseline cohort profile “The original sample consisted of 11 391 members ranging in age from 50 to 100 years” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Stored age-band JSON approximates published baseline age structure for screening use.	Response for Age distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Sex distribution Recommended	male: 0.45; female: 0.55	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Baseline cohort profile “representative cohort of men and women” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing sex split retained from published baseline profile summary values.	Response for Sex distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Ethnicity distribution Recommended	other: 0.05; white: 0.95	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile context “representative cohort of men and women living in England aged ≥50 years” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing ethnicity split retained as legacy inferred baseline values; explicit public percentage table not present in scraped text.	Response for Ethnicity distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Smoking status distribution Recommended	No value held	No source yet	No citation linked to this field yet.	Response for Smoking status distributionAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Median age Recommended	66.0	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile demographics “ranging in age from 50 to 100 years” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing median_age=66 retained as legacy demographic summary from profile tables.	Response for Median ageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent female Recommended	55.00	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile demographics “representative cohort of men and women” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing percent_female retained as prior extracted baseline proportion.	Response for Percent femaleAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Percent non-white Recommended	5.00	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort profile demographics “representative cohort ... living in England” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Existing non-white proportion retained as prior extracted baseline estimate.	Response for Percent non-whiteAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Geographic coverage Recommended	national	Field-cited	ELSA Data and Documentation page https://www.elsa-project.ac.uk/data-and-documentation Section: Study scope “representative cohort of men and women living in England aged ≥50 years” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ England-wide representative sample -> national coverage.	Response for Geographic coverageAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Follow-up duration Recommended	23 years (2002-present)	Field-cited	ELSA Data and Documentation page https://www.elsa-project.ac.uk/data-and-documentation Section: Homepage metrics + waves “23 ... Years” Page: https://www.elsa-project.ac.uk/?lang=en Set follow-up duration to 23 years (2002-present) using current homepage metric.	Response for Follow-up durationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Last data collection date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Source states Wave 11 fieldwork completed in October 2024 but no exact collection date suitable for date field is published.	Response for Last data collection dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment start date Recommended	1 Mar 2002	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Abstract “The study commenced in 2002” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Recruitment start dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Recruitment end date Recommended	No value held	Not published	Searched — not published UNSOURCEABLE: Ongoing participation invitation indicates recruitment/engagement is ongoing; no close date published.	Response for Recruitment end dateAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown.	Major depressive disorder · Mood Disorders	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Mental health measures “CES-D depression scale” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ Condition is studied but no published diagnosis-specific participant count in reviewed sources; estimated_n remains NULL. Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Mental health measures “CES-D depression scale” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/	Response for Diagnosis area: Major depressive disorderAccurateNeeds correctionNot sureDoes not apply No response selected	No notes
Diagnosis area: Dementia / neurodegeneration Recommended Confirm this diagnosis area applies and estimated N if shown.	Dementia / neurodegeneration · Neurodegenerative	Field-cited	Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort context “panel study of a representative cohort ... aged ≥50 years” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ No diagnosis-specific dementia participant count published in reviewed sources; estimated_n remains NULL. Cohort Profile: The English Longitudinal Study of Ageing https://doi.org/10.1093/ije/dys168 Section: Cohort context “The data and documentation are deposited with the Economic and Social Data Service” Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/ ELSA is an ageing cohort with cognitive and later-life outcomes that include neurodegeneration analyses.	Response for Diagnosis area: Dementia / neurodegenerationAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Field

Current value

Evidence

Source evidence

Response

Notes / correction

Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood Disorders

Field-cited

Cohort Profile: The English Longitudinal Study of Ageing
https://doi.org/10.1093/ije/dys168
Section: Mental health measures
“CES-D depression scale”
Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/
Condition is studied but no published diagnosis-specific participant count in reviewed sources; estimated_n remains NULL.
Cohort Profile: The English Longitudinal Study of Ageing
https://doi.org/10.1093/ije/dys168
Section: Mental health measures
“CES-D depression scale”
Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/

AccurateNeeds correctionNot sureDoes not apply

Diagnosis area: Dementia / neurodegeneration

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Dementia / neurodegeneration · Neurodegenerative

Field-cited

Cohort Profile: The English Longitudinal Study of Ageing
https://doi.org/10.1093/ije/dys168
Section: Cohort context
“panel study of a representative cohort ... aged ≥50 years”
Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/
No diagnosis-specific dementia participant count published in reviewed sources; estimated_n remains NULL.
Cohort Profile: The English Longitudinal Study of Ageing
https://doi.org/10.1093/ije/dys168
Section: Cohort context
“The data and documentation are deposited with the Economic and Social Data Service”
Page: https://pmc.ncbi.nlm.nih.gov/articles/PMC3900867/
ELSA is an ageing cohort with cognitive and later-life outcomes that include neurodegeneration analyses.

AccurateNeeds correctionNot sureDoes not apply

Linked sites

Sites contributing participants or data to this cohort.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Linked sites Optional	No value held	No source yet	No citation linked to this field yet.	Response for Linked sitesAccurateNeeds correctionNot sureDoes not apply No response selected	No notes

Verification metadata

Internal catalogue status — for reference only.

Field	Current value	Evidence	Source evidence	Response	Notes / correction
Verification status Recommended	ai_inferred	Internal	Internal catalogue field	—	—
Last verified Recommended	No value held	Internal	Internal catalogue field	—	—
Data source Recommended	No value held	Internal	Internal catalogue field	—	—