Cohort validation pack
Our Future Health
Our Future Health
Generated 6 Oct 2026, 10:37 · ID 14
Instructions for reviewers
- Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
- Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
- Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.
Overview
93
Total fields
73
Field-cited
0
Whole-record source only
4
AI-inferred, no source yet
11
Searched — not published
15
No value held
15
Needs review
Source coverage
Summary of how well fields in this pack are linked to evidence.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Field-level source coverage Optional | 73 of 88 reviewable fields are cited to a source (83%) · 4 with no source yet · 11 searched — not published · 15 with no value held | Computed | No citation linked to this field yet. | No response selected | No notes |
Identity and ownership
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Short name Required | Our Future Health | Field-cited |
| No response selected | No notes |
Full name Required | Our Future Health | Field-cited |
| No response selected | No notes |
Managing organisation Recommended | Our Future Health Ltd | Field-cited |
| No response selected | No notes |
Primary site Recommended | No value held | Not published |
| No response selected | No notes |
Website URL Recommended | https://ourfuturehealth.org.uk/ | Field-cited |
| No response selected | No notes |
Catalogue of Mental Health Measures URL Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Contact name Recommended | No value held | Not published |
| No response selected | No notes |
Contact email Recommended | access@ourfuturehealth.org.uk | Field-cited |
| No response selected | No notes |
Summary and status
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Description Required | UK-wide prospective cohort programme recruiting up to 5 million adults. It includes baseline questionnaires, linked NHS records, genotyping, and clinic measurements with recontact for follow-on studies. | Field-cited |
| No response selected | No notes |
Total N Required | 1,929,752 | Field-cited |
| No response selected | No notes |
Total N qualifier Recommended | approximate | Field-cited |
| No response selected | No notes |
Year established Recommended | 2022 | Field-cited |
| No response selected | No notes |
Active cohort Recommended | Yes | Field-cited |
| No response selected | No notes |
Ongoing recruitment Recommended | Yes | Field-cited |
| No response selected | No notes |
Refreshed cohort Recommended | Yes | Field-cited |
| No response selected | No notes |
Recontact success rate Recommended | No value held | Not published |
| No response selected | No notes |
Retention rate Recommended | No value held | Not published |
| No response selected | No notes |
Published references Recommended | doi:10.1093/ije/dyaf171 | Field-cited |
| No response selected | No notes |
Notes Recommended | Target 5 million. Broad consent with recontact for follow-on studies and trials. Includes linked health records, biobanked blood samples, and genotype data. | Field-cited |
| No response selected | No notes |
3D cohort mapping
Consent, characterisation, and data availability axes used on the cohort map.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent level (axis) Required | 3 — Broad consent (recontactable for future studies) | Field-cited |
| No response selected | No notes |
Characterisation depth (axis) Required | 2 — Standardised MH instruments | Field-cited |
| No response selected | No notes |
Data availability (axis) Required | 3 — Adds biological specimens/molecular data | Field-cited |
| No response selected | No notes |
Cohort map group (derived) Recommended | Group 3 | Internal | Internal catalogue field | — | — |
Population type Recommended | General population | Not published |
| No response selected | No notes |
Industry engagement status Recommended | Established access process | Not published |
| No response selected | No notes |
Parent cohort / programme Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
TWiCs eligible Recommended | No | Field-cited |
| No response selected | No notes |
Data modalities
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Questionnaire / interview Recommended | Yes | Field-cited |
| No response selected | No notes |
Cognitive testing Recommended | No | Field-cited |
| No response selected | No notes |
Physical measures Recommended | Yes | Field-cited |
| No response selected | No notes |
Biosamples Recommended | Yes | Field-cited |
| No response selected | No notes |
Genomic data Recommended | Yes | Field-cited |
| No response selected | No notes |
Omics Recommended | No | Field-cited |
| No response selected | No notes |
Imaging Recommended | No | Field-cited |
| No response selected | No notes |
Wearable / sensor Recommended | No | Field-cited |
| No response selected | No notes |
Digital phenotyping Recommended | No | Field-cited |
| No response selected | No notes |
Linked health records Recommended | Yes | Field-cited |
| No response selected | No notes |
Biosample types Recommended | blood | Field-cited |
| No response selected | No notes |
Genotyping platform Recommended | Custom Illumina Infinium Excalibur beadchip array | Field-cited |
| No response selected | No notes |
Imaging modalities Recommended | No value held | Not published |
| No response selected | No notes |
Mental health measures Recommended | No value held | Not published |
| No response selected | No notes |
Data subcategories
Structured modality and subcategory rows used alongside the high-level data-type flags.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Data modality: Blood sample Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · biosamples · biospecimen type · parent: Biospecimen collection · Blood sample | Field-cited |
| No response selected | No notes |
Data modality: DNA sample Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · biosamples · biospecimen type · parent: Biospecimen collection · DNA extracted for genotyping workflow | Field-cited |
| No response selected | No notes |
Data modality: Biospecimen collection Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · biosamples · category marker · Blood sample and stored biosamples | Field-cited |
| No response selected | No notes |
Data modality: Genotyping array Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · genomics · derived genomic data · Custom Illumina Infinium Excalibur genotyping array | Field-cited |
| No response selected | No notes |
Data modality: Linked NHS records Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · linked health records · category marker · Linked NHS England records | Field-cited |
| No response selected | No notes |
Data modality: Linked cancer registry Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · linked health records · linked record type · parent: Linked NHS records · Cancer registry linkage in published profile | Field-cited |
| No response selected | No notes |
Data modality: Linked death registry Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · linked health records · linked record type · parent: Linked NHS records · ONS death registration linkage | Field-cited |
| No response selected | No notes |
Data modality: Clinical / physical measurements Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · physical measures · category marker · Clinic measurement data | Field-cited |
| No response selected | No notes |
Data modality: Anthropometry Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · physical measures · clinical physical measure · parent: Clinical / physical measurements · Height, body weight and waist circumference | Field-cited |
| No response selected | No notes |
Data modality: Blood pressure / vitals Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · physical measures · clinical physical measure · parent: Clinical / physical measurements · Blood pressure, heart rate and heart rhythm | Field-cited |
| No response selected | No notes |
Data modality: Lipid profile Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · physical measures · clinical physical measure · parent: Clinical / physical measurements · Lipid profile available for a clinic-measurement subset | Field-cited |
| No response selected | No notes |
Data modality: Questionnaire / interview data Recommended Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known. | available · questionnaires · category marker · Baseline health questionnaire | Field-cited |
| No response selected | No notes |
Consent and use permissions
Specific use permissions separate from the 3D consent-level axis.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Consent/use: Biosample research use Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | permitted · biosample use · local operational permission · Participants with samples · Programme stores biosamples and genotype data for approved research. | Field-cited |
| No response selected | No notes |
Consent/use: Industry / commercial research considered Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | permitted · commercial use · local operational permission · Registered researchers · Access materials describe fees varying by affiliated organisation; commercial organisations may apply under governance controls. | Field-cited |
| No response selected | No notes |
Consent/use: Health record linkage permitted Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | permitted · data linkage · local operational permission · Consented participants with linkage · Linked NHS England records and death registrations are available. | Field-cited |
| No response selected | No notes |
Consent/use: Data sharing permitted Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | restricted · data sharing · local operational permission · Approved registered researchers · Approved data are accessed in the Our Future Health TRE. | Field-cited |
| No response selected | No notes |
Consent/use: Ethics approval required Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | restricted · governance · duo modifier · Registered researchers · Requests are reviewed under Our Future Health governance before access is granted. | Field-cited |
| No response selected | No notes |
Consent/use: Participant recontact permitted Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | permitted · recontact · local operational permission · Consented participants · Participants are asked for permission to be contacted for follow-on research. | Field-cited |
| No response selected | No notes |
Consent/use: Health / medical / biomedical research use Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | permitted · research use · duo permission · DUO:0000002 · Registered researchers · Approved registered researchers can request access. | Field-cited |
| No response selected | No notes |
Consent/use: Approach for trials permitted Recommended Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ. | restricted · trial approach · local operational permission · Consented participants · Follow-on research contact is permitted; trial-specific consent is still required. | Field-cited |
| No response selected | No notes |
Access pathways
One or more routes by which researchers can request or analyse data.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Access pathway: Managed access / DAC Recommended Confirm route, access level, environment type, DAC review, collaboration, data sharing agreement, output checking, platform, timeline, cost, URL, and whether multiple routes are possible. | available on application · access level: secure environment · environment: tre sde · DAC review required · data sharing agreement required · output checking required · Our Future Health Access Board · 60 days · Fee required; varies by organisation · https://research.ourfuturehealth.org.uk/apply-to-access-the-data/ · Requests are reviewed before TRE access is granted. | Field-cited |
| No response selected | No notes |
Access pathway: Trusted Research Environment Recommended Confirm route, access level, environment type, DAC review, collaboration, data sharing agreement, output checking, platform, timeline, cost, URL, and whether multiple routes are possible. | available · access level: secure environment · environment: tre sde · DAC review required · data sharing agreement required · output checking required · Our Future Health Trusted Research Environment · 60 days · Fee required; varies by organisation · https://research.ourfuturehealth.org.uk/apply-to-access-the-data/ · Approved data are accessed in the Our Future Health TRE. | Field-cited |
| No response selected | No notes |
Within-cohort coverage
Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Coverage: Consented participants with baseline questionnaire Recommended Confirm numerator, denominator, unit type, exactness qualifiers, denominator type, basis, as-of date/release, source wording, and whether the metric is marginal, joint, conditional, or a release total. | 1,929,752 / 1,929,752 (100%) · unit: participants · denominator: consented participants · basis: completed · status: available · as of 15 Apr 2026 · scope: release total · source value: 1,929,752 consented participants · Matches the current total_n value in the seed source set. Later public releases should update both total_n and this metric together. | Field-cited |
| No response selected | No notes |
Linkage and access
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
NHS linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
GP linkage Recommended | No | Field-cited |
| No response selected | No notes |
Death registry linkage Recommended | Yes | Field-cited |
| No response selected | No notes |
Education linkage Recommended | No | Field-cited |
| No response selected | No notes |
Data access mechanism Recommended | tre | Field-cited |
| No response selected | No notes |
TRE platform Recommended | Our Future Health Trusted Research Environment (TRE) | Field-cited |
| No response selected | No notes |
Data dictionary URL Recommended | https://research.ourfuturehealth.org.uk/data-and-cohort/ | Field-cited |
| No response selected | No notes |
Data access timeline (days) Recommended | 60 | Field-cited |
| No response selected | No notes |
Data access cost Recommended | Fee required; varies by organisation | Field-cited |
| No response selected | No notes |
Participant profile and dates
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Age distribution Recommended | 80+: 0.022; 18-39: 0.244; 40-59: 0.373; 60-79: 0.361 | Field-cited |
| No response selected | No notes |
Sex distribution Recommended | male: 0.427; female: 0.573 | Field-cited |
| No response selected | No notes |
Ethnicity distribution Recommended | asian: 0.055; black: 0.016; mixed: 0.018; other: 0.014; white: 0.897 | Field-cited |
| No response selected | No notes |
Smoking status distribution Recommended | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Median age Recommended | 52.0 | Field-cited |
| No response selected | No notes |
Percent female Recommended | 57.30 | Field-cited |
| No response selected | No notes |
Percent non-white Recommended | 10.30 | Field-cited |
| No response selected | No notes |
Geographic coverage Recommended | national | Field-cited |
| No response selected | No notes |
Follow-up duration Recommended | No value held | Not published |
| No response selected | No notes |
Last data collection date Recommended | No value held | Not published |
| No response selected | No notes |
Recruitment start date Recommended | 1 Oct 2022 | Field-cited |
| No response selected | No notes |
Recruitment end date Recommended | No value held | Not published |
| No response selected | No notes |
Diagnosis areas
Mental health diagnosis areas represented in this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Diagnosis area: Major depressive disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Major depressive disorder · Mood Disorders · est. n=93,960 | Field-cited |
| No response selected | No notes |
Diagnosis area: Generalised anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Generalised anxiety disorder · Anxiety Disorders · est. n=189,120 | Field-cited |
| No response selected | No notes |
Diagnosis area: Social anxiety disorder Recommended Confirm this diagnosis area applies and estimated N if shown. | Social anxiety disorder · Anxiety Disorders · est. n=45,950 | Field-cited |
| No response selected | No notes |
Linked sites
Sites contributing participants or data to this cohort.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Linked sites Optional | No value held | No source yet | No citation linked to this field yet. | No response selected | No notes |
Verification metadata
Internal catalogue status — for reference only.
| Field | Current value | Evidence | Source evidence | Response | Notes / correction |
|---|---|---|---|---|---|
Verification status Recommended | unverified | Internal | Internal catalogue field | — | — |
Last verified Recommended | No value held | Internal | Internal catalogue field | — | — |
Data source Recommended | No value held | Internal | Internal catalogue field | — | — |