Seed data — not verified. Approximate data from public sources, not yet confirmed by cohort leads or site reps.

Why?
All validation packs

Cohort validation pack

Our Future Health

Our Future Health

Generated 6 Oct 2026, 10:37 · ID 14

Unverified

Instructions for reviewers

  • Review each field against your knowledge of this cohort. Mark Accurate if the value is right, Needs correction if it is wrong or inaccurate (add notes), Not sure if you cannot verify it, or Does not apply if the field is not relevant.
  • Evidence shown is from our source registry. Fields marked No source yet hold values we could not yet pin to a document — those were AI-inferred and need your input most. Fields marked Searched — not published are ones we looked for and could not find publicly; the note lists where we checked.
  • Your selections and notes are kept in this browser tab only (not sent to the database). Print or save as PDF when finished, then return it to the DIGIT team.

Overview

93

Total fields

73

Field-cited

0

Whole-record source only

4

AI-inferred, no source yet

11

Searched — not published

15

No value held

15

Needs review

Source coverage

Summary of how well fields in this pack are linked to evidence.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Field-level source coverage

Optional

73 of 88 reviewable fields are cited to a source (83%) · 4 with no source yet · 11 searched — not published · 15 with no value heldComputed

No citation linked to this field yet.

Response for Field-level source coverage

Identity and ownership

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Short name

Required

Our Future HealthField-cited
Response for Short name
Full name

Required

Our Future HealthField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Title

    “Cohort Profile: Our Future Health”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Full name
Managing organisation

Recommended

Our Future Health LtdField-cited
  • Our Future Health — Official Website

    https://ourfuturehealth.org.uk/

    Section: Footer legal text

    “Our Future Health is a company limited by guarantee registered in England and Wales”

    Page: https://ourfuturehealth.org.uk/

Response for Managing organisation
Primary site

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a single fixed site. Cohort is UK-wide and recruits through many locations; no single lead NHS/BRC site publicly declared as canonical primary site in reviewed sources.

Response for Primary site
Website URL

Recommended

https://ourfuturehealth.org.uk/Field-cited
  • Our Future Health — Official Website

    https://ourfuturehealth.org.uk/

    Section: Browser address

    “https://ourfuturehealth.org.uk/”

    Page: https://ourfuturehealth.org.uk/

Response for Website URL
Catalogue of Mental Health Measures URL

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Catalogue of Mental Health Measures URL
Contact name

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Public pages provide team-level contact channels (access@ourfuturehealth.org.uk) but no stable single contact_name for database field.

Response for Contact name
Contact email

Recommended

access@ourfuturehealth.org.ukField-cited
Response for Contact email

Summary and status

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Description

Required

UK-wide prospective cohort programme recruiting up to 5 million adults. It includes baseline questionnaires, linked NHS records, genotyping, and clinic measurements with recontact for follow-on studies.Field-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “Our Future Health is the UK’s largest health research programme with an ambition to recruit 5 million UK-resident adult participants into a prospective cohort study.”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Description
Total N

Required

1,929,752Field-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The Our Future Health cohort

    “1,929,752 participants who have consented to take part and completed our baseline health questionnaire”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Total N
Total N qualifier

Recommended

approximateField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The Our Future Health cohort

    “The data that we’ve gathered so far includes: 1,929,752 participants”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Total N qualifier
Year established

Recommended

2022Field-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “Recruitment opened in October 2022.”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Year established
Active cohort

Recommended

YesField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “Our Future Health is the UK’s largest health research programme with an ambition to recruit 5 million UK-resident adult participants”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Active cohort
Ongoing recruitment

Recommended

YesField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “Our objective is to recruit 5 million adult residents of the UK”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Ongoing recruitment
Refreshed cohort

Recommended

YesField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Our data releases

    “We release new data into our TRE on a quarterly basis as our cohort grows.”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Refreshed cohort

Recontact success rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Sources confirm recontact permission but do not publish a cohort-wide success percentage.

Response for Recontact success rate

Retention rate

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: No single retention-rate metric is published in reviewed website, gateway, or profile paper sections.

Response for Retention rate

Published references

Recommended

doi:10.1093/ije/dyaf171Field-cited
  • Oxford ORA record — Cohort Profile: Our Future Health

    https://ora.ox.ac.uk/objects/uuid:68c24147-d30e-43a9-96f1-4ce28b0245c5

    Section: Bibliographic details

    “DOI: 10.1093/ije/dyaf171”

    Page: https://ora.ox.ac.uk/objects/uuid:68c24147-d30e-43a9-96f1-4ce28b0245c5

  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Citation

    “https://doi.org/10.1093/ije/dyaf171”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Published references
Notes

Recommended

Target 5 million. Broad consent with recontact for follow-on studies and trials. Includes linked health records, biobanked blood samples, and genotype data.Field-cited
  • ClinicalTrials.gov API search — "Our Future Health"

    https://clinicaltrials.gov/api/v2/studies?query.term=%22Our%20Future%20Health%22&pageSize=5

    Section: API output

    “{"studies":[ ]}”

    Page: https://clinicaltrials.gov/api/v2/studies?query.term=%22Our%20Future%20Health%22&pageSize=5

  • ISRCTN search — "Our Future Health"

    https://www.isrctn.com/search?q=%22Our+Future+Health%22

    Section: Search response

    “Please enable cookies and JavaScript to use ISRCTN.”

    Page: https://www.isrctn.com/search?q=%22Our+Future+Health%22

  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: How Our Future Health works

    “People joining the programme are also being asked to give their permission for Our Future Health to contact them in the future”

    Page: https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

Response for Notes

3D cohort mapping

Consent, characterisation, and data availability axes used on the cohort map.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Consent level (axis)

Required

3 — Broad consent (recontactable for future studies)Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: How Our Future Health works

    “People joining the programme are also being asked to give their permission for Our Future Health to contact them in the future, to give them the opportunity to take part in follow-on research”

    Page: https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

Response for Consent level (axis)
Characterisation depth (axis)

Required

2 — Standardised MH instrumentsField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Baseline health questionnaire data

    “The questions are grouped into five sections: ... personal health history”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Characterisation depth (axis)
Data availability (axis)

Required

3 — Adds biological specimens/molecular dataField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “The current data available includes: ... Questionnaire data ... Genotype array data ... Linked health records data ... Clinic measurement data”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Data availability (axis)
Cohort map group (derived)

Recommended

Group 3Internal

Internal catalogue field

——
Population type

Recommended

General populationNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Population type
Industry engagement status

Recommended

Established access processNot published
  • DIGIT Cohort Portfolio Review — population type and engagement classification (Aug 2026)

Response for Industry engagement status
Parent cohort / programme

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Parent cohort / programme
TWiCs eligible

Recommended

NoField-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: How Our Future Health works

    “to contact them in the future, to give them the opportunity to take part in follow-on research”

    Page: https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

Response for TWiCs eligible

Data modalities

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Questionnaire / interview

Recommended

YesField-cited
Response for Questionnaire / interview
Cognitive testing

Recommended

NoField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Future questionnaires

    “Our Future Health will, in future, send further questionnaires ... (e.g. cognitive function ...)”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Cognitive testing
Physical measures

Recommended

YesField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “Clinic measurement data – which contains height, body weight, waist circumference, blood pressure, heart rate and heart rhythm”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Physical measures
Biosamples

Recommended

YesField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “facilitating access to stored biosamples”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Biosamples
Genomic data

Recommended

YesField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “Genotyping is conducted using a 700 000-variant custom array”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Genomic data
Omics

Recommended

NoField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Follow-up and omics

    “will enable Our Future Health to conduct additional omics assays”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Omics
Imaging

Recommended

NoField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “The current data available includes: ... questionnaire ... linked NHS England health records, genotyping array, and clinic measurements.”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Imaging
Wearable / sensor

Recommended

NoField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “The current data available includes:”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Wearable / sensor
Digital phenotyping

Recommended

NoField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “Questionnaire data - which contains self-reported health information”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Digital phenotyping
Linked health records

Recommended

YesField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “Linked health records data – which contains health records provided by the National Health Service (NHS) in England and registrations of death from the Office for National Statistics (ONS)”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Linked health records
Biosample types

Recommended

bloodField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: What has been measured?

    “a blood sample (2 x 6-ml EDTA ...)”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Biosample types
Genotyping platform

Recommended

Custom Illumina Infinium Excalibur beadchip arrayField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: What has been measured?

    “Participant DNA samples are genotyped by using a custom 700 000-variant Illumina Infinium Excalibur beadchip array assay.”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Genotyping platform
Imaging modalities

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE/NULL because no imaging modality dataset is currently listed in available data releases.

Response for Imaging modalities
Mental health measures

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as validated instrument list in reviewed public pages; prevalence workbook gives condition outputs but not full validated mental-health instrument catalogue.

Response for Mental health measures

Data subcategories

Structured modality and subcategory rows used alongside the high-level data-type flags.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Data modality: Blood sample

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · biosamples · biospecimen type · parent: Biospecimen collection · Blood sampleField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Blood sample”
Response for Data modality: Blood sample

Data modality: DNA sample

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · biosamples · biospecimen type · parent: Biospecimen collection · DNA extracted for genotyping workflowField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “DNA extracted for genotyping workflow”
Response for Data modality: DNA sample

Data modality: Biospecimen collection

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · biosamples · category marker · Blood sample and stored biosamplesField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Blood sample and stored biosamples”
Response for Data modality: Biospecimen collection

Data modality: Genotyping array

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · genomics · derived genomic data · Custom Illumina Infinium Excalibur genotyping arrayField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Pilot modality classification

    “Custom Illumina Infinium Excalibur genotyping array”
Response for Data modality: Genotyping array

Data modality: Linked NHS records

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · linked health records · category marker · Linked NHS England recordsField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Linked NHS England records”
Response for Data modality: Linked NHS records

Data modality: Linked cancer registry

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · linked health records · linked record type · parent: Linked NHS records · Cancer registry linkage in published profileField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Cancer registry linkage in published profile”
Response for Data modality: Linked cancer registry

Data modality: Linked death registry

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · linked health records · linked record type · parent: Linked NHS records · ONS death registration linkageField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “ONS death registration linkage”
Response for Data modality: Linked death registry

Data modality: Clinical / physical measurements

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · physical measures · category marker · Clinic measurement dataField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Clinic measurement data”
Response for Data modality: Clinical / physical measurements

Data modality: Anthropometry

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · physical measures · clinical physical measure · parent: Clinical / physical measurements · Height, body weight and waist circumferenceField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Height, body weight and waist circumference”
Response for Data modality: Anthropometry

Data modality: Blood pressure / vitals

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · physical measures · clinical physical measure · parent: Clinical / physical measurements · Blood pressure, heart rate and heart rhythmField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Blood pressure, heart rate and heart rhythm”
Response for Data modality: Blood pressure / vitals

Data modality: Lipid profile

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · physical measures · clinical physical measure · parent: Clinical / physical measurements · Lipid profile available for a clinic-measurement subsetField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Lipid profile available for a clinic-measurement subset”
Response for Data modality: Lipid profile

Data modality: Questionnaire / interview data

Recommended

Confirm this row is correctly typed as a category marker, named instrument/interview, biospecimen type, assay/data product, imaging modality, sensor stream, or linked-record type; add missing named instruments/sample types where known.

available · questionnaires · category marker · Baseline health questionnaireField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Pilot modality classification

    “Baseline health questionnaire”
Response for Data modality: Questionnaire / interview data

Consent and use permissions

Specific use permissions separate from the 3D consent-level axis.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Consent/use: Biosample research use

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

permitted · biosample use · local operational permission · Participants with samples · Programme stores biosamples and genotype data for approved research.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Programme stores biosamples and genotype data for approved research.”
Response for Consent/use: Biosample research use

Consent/use: Industry / commercial research considered

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

permitted · commercial use · local operational permission · Registered researchers · Access materials describe fees varying by affiliated organisation; commercial organisations may apply under governance controls.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Access materials describe fees varying by affiliated organisation; commercial organisations may apply under governance controls.”
Response for Consent/use: Industry / commercial research considered

Consent/use: Health record linkage permitted

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

permitted · data linkage · local operational permission · Consented participants with linkage · Linked NHS England records and death registrations are available.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Linked NHS England records and death registrations are available.”
Response for Consent/use: Health record linkage permitted

Consent/use: Data sharing permitted

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

restricted · data sharing · local operational permission · Approved registered researchers · Approved data are accessed in the Our Future Health TRE.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Approved data are accessed in the Our Future Health TRE.”
Response for Consent/use: Data sharing permitted

Consent/use: Ethics approval required

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

restricted · governance · duo modifier · Registered researchers · Requests are reviewed under Our Future Health governance before access is granted.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Requests are reviewed under Our Future Health governance before access is granted.”
Response for Consent/use: Ethics approval required

Consent/use: Participant recontact permitted

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

permitted · recontact · local operational permission · Consented participants · Participants are asked for permission to be contacted for follow-on research.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Participants are asked for permission to be contacted for follow-on research.”
Response for Consent/use: Participant recontact permitted

Consent/use: Health / medical / biomedical research use

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

permitted · research use · duo permission · DUO:0000002 · Registered researchers · Approved registered researchers can request access.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Approved registered researchers can request access.”
Response for Consent/use: Health / medical / biomedical research use

Consent/use: Approach for trials permitted

Recommended

Confirm status, population scope, whether the permission is a DUO-style restriction/permission or a local operational permission, and whether academic and industry/commercial use differ.

restricted · trial approach · local operational permission · Consented participants · Follow-on research contact is permitted; trial-specific consent is still required.Field-cited
  • Our Future Health — How Our Future Health works

    https://ourfuturehealth.org.uk/our-research-mission/how-our-future-health-works/

    Section: Pilot consent/use permission classification

    “Follow-on research contact is permitted; trial-specific consent is still required.”
Response for Consent/use: Approach for trials permitted

Access pathways

One or more routes by which researchers can request or analyse data.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Access pathway: Managed access / DAC

Recommended

Confirm route, access level, environment type, DAC review, collaboration, data sharing agreement, output checking, platform, timeline, cost, URL, and whether multiple routes are possible.

available on application · access level: secure environment · environment: tre sde · DAC review required · data sharing agreement required · output checking required · Our Future Health Access Board · 60 days · Fee required; varies by organisation · https://research.ourfuturehealth.org.uk/apply-to-access-the-data/ · Requests are reviewed before TRE access is granted.Field-cited
  • Our Future Health Researcher Resource — Apply to access the data

    https://research.ourfuturehealth.org.uk/apply-to-access-the-data/

    Section: Pilot data access pathway classification

    “Requests are reviewed before TRE access is granted.”
Response for Access pathway: Managed access / DAC

Access pathway: Trusted Research Environment

Recommended

Confirm route, access level, environment type, DAC review, collaboration, data sharing agreement, output checking, platform, timeline, cost, URL, and whether multiple routes are possible.

available · access level: secure environment · environment: tre sde · DAC review required · data sharing agreement required · output checking required · Our Future Health Trusted Research Environment · 60 days · Fee required; varies by organisation · https://research.ourfuturehealth.org.uk/apply-to-access-the-data/ · Approved data are accessed in the Our Future Health TRE.Field-cited
  • Our Future Health Researcher Resource — Apply to access the data

    https://research.ourfuturehealth.org.uk/apply-to-access-the-data/

    Section: Pilot data access pathway classification

    “Approved data are accessed in the Our Future Health TRE.”
Response for Access pathway: Trusted Research Environment

Within-cohort coverage

Aggregate counts or percentages showing how broadly data, consent, or access characteristics apply within the cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction

Coverage: Consented participants with baseline questionnaire

Recommended

Confirm numerator, denominator, unit type, exactness qualifiers, denominator type, basis, as-of date/release, source wording, and whether the metric is marginal, joint, conditional, or a release total.

1,929,752 / 1,929,752 (100%) · unit: participants · denominator: consented participants · basis: completed · status: available · as of 15 Apr 2026 · scope: release total · source value: 1,929,752 consented participants · Matches the current total_n value in the seed source set. Later public releases should update both total_n and this metric together.Field-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The Our Future Health cohort

    “1,929,752 participants who have consented to take part and completed our baseline health questionnaire”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Coverage: Consented participants with baseline questionnaire

Linkage and access

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
NHS linkage

Recommended

YesField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Follow-up

    “Data linkages to NHS England secondary care, cancer registry, and death registry databases have been established”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for NHS linkage
GP linkage

Recommended

NoField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Follow-up

    “We will apply for primary care data in England and Scotland when these become available.”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for GP linkage
Death registry linkage

Recommended

YesField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Follow-up

    “Data linkages to NHS England secondary care, cancer registry, and death registry databases have been established”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Death registry linkage
Education linkage

Recommended

NoField-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Follow-up linkage scope

    “Data linkages to NHS England secondary care, cancer registry, and death registry databases have been established”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Education linkage
Data access mechanism

Recommended

treField-cited
  • Our Future Health Researcher Resource — Apply to access the data

    https://research.ourfuturehealth.org.uk/apply-to-access-the-data/

    Section: Analyse the data in a secure environment

    “your approved data will be available in the Our Future Health Trusted Research Environment (TRE).”

    Page: https://research.ourfuturehealth.org.uk/apply-to-access-the-data/

Response for Data access mechanism
TRE platform

Recommended

Our Future Health Trusted Research Environment (TRE)Field-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The available data

    “Data sets are stored and accessed in the Our Future Health Trusted Research Environment (TRE).”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for TRE platform
Data dictionary URL

Recommended

https://research.ourfuturehealth.org.uk/data-and-cohort/Field-cited
Response for Data dictionary URL
Data access timeline (days)

Recommended

60Field-cited
Response for Data access timeline (days)
Data access cost

Recommended

Fee required; varies by organisationField-cited
  • Our Future Health Researcher Resource — Apply to access the data

    https://research.ourfuturehealth.org.uk/apply-to-access-the-data/

    Section: Fees for accessing the data

    “you will need to pay to access the data you’ve requested. ... fees will vary depending on the type and size of your affiliated organisation.”

    Page: https://research.ourfuturehealth.org.uk/apply-to-access-the-data/

Response for Data access cost

Participant profile and dates

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Age distribution

Recommended

80+: 0.022; 18-39: 0.244; 40-59: 0.373; 60-79: 0.361Field-cited
Response for Age distribution
Sex distribution

Recommended

male: 0.427; female: 0.573Field-cited
Response for Sex distribution
Ethnicity distribution

Recommended

asian: 0.055; black: 0.016; mixed: 0.018; other: 0.014; white: 0.897Field-cited
Response for Ethnicity distribution
Smoking status distribution

Recommended

No value heldNo source yet

No citation linked to this field yet.

Response for Smoking status distribution
Median age

Recommended

52.0Field-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: Cohort ages

    “18 to 39 24.4% ... 40 to 59 37.3% ... 60 to 79 36.1% ... 80+ 2.2%”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Median age
Percent female

Recommended

57.30Field-cited
Response for Percent female
Percent non-white

Recommended

10.30Field-cited
Response for Percent non-white
Geographic coverage

Recommended

nationalField-cited
  • Our Future Health Researcher Resource — Data and cohort

    https://research.ourfuturehealth.org.uk/data-and-cohort/

    Section: The Our Future Health cohort

    “open to all adults (18 years and older) living in the UK”

    Page: https://research.ourfuturehealth.org.uk/data-and-cohort/

Response for Geographic coverage
Follow-up duration

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: public sources describe ongoing follow-up and quarterly releases but do not provide a bounded duration category value.

Response for Follow-up duration
Last data collection date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE as a fixed date: rolling quarterly releases and ongoing recruitment.

Response for Last data collection date
Recruitment start date

Recommended

1 Oct 2022Field-cited
  • Cook et al. — Cohort Profile: Our Future Health (IJE 2025)

    https://doi.org/10.1093/ije/dyaf171

    Section: Key Features

    “Recruitment opened in October 2022.”

    Page: https://doi.org/10.1093/ije/dyaf171

Response for Recruitment start date
Recruitment end date

Recommended

No value heldNot published
  • Searched — not published

    UNSOURCEABLE: Recruitment is ongoing toward target of 5 million; no end date published.

Response for Recruitment end date

Diagnosis areas

Mental health diagnosis areas represented in this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Diagnosis area: Major depressive disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Major depressive disorder · Mood Disorders · est. n=93,960Field-cited
Response for Diagnosis area: Major depressive disorder
Diagnosis area: Generalised anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Generalised anxiety disorder · Anxiety Disorders · est. n=189,120Field-cited
Response for Diagnosis area: Generalised anxiety disorder
Diagnosis area: Social anxiety disorder

Recommended

Confirm this diagnosis area applies and estimated N if shown.

Social anxiety disorder · Anxiety Disorders · est. n=45,950Field-cited
Response for Diagnosis area: Social anxiety disorder

Linked sites

Sites contributing participants or data to this cohort.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Linked sites

Optional

No value heldNo source yet

No citation linked to this field yet.

Response for Linked sites

Verification metadata

Internal catalogue status — for reference only.

FieldCurrent valueEvidenceSource evidenceResponseNotes / correction
Verification status

Recommended

unverifiedInternal

Internal catalogue field

——
Last verified

Recommended

No value heldInternal

Internal catalogue field

——
Data source

Recommended

No value heldInternal

Internal catalogue field

——